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Open Up Conference

Hiya, I have yet to write about the Open Up conference.  This is because I seem to be lapsing into a bit of pesky depression and have not had the energy to write, or to do much else.  I’ve had a bit of a difficult week.  It’s not helped by a letter from Housing Benefit in which it seems that I’m being suspected of fraud, and they’re coming to my house.   At least I can show them my bank account and prove I’m broke.  Nothing about my claim or circumstances has changed, and I am stressed and upset because of it. So bear with me.  Cheers.

Weekend fluff-ish

For all the skeptically interested out there:

The Secrets of the Psychics with James Randi:

The Peter Popoff sequence is an uncomfortable joy.

I am now very very tired and not feeling as ARGH as I was.  Thanks for your comments.  Do forgive me for sporadic updates, I’ve been a bit stressed and it means I’m not very consistent right now.  I’m keeping weird hours and catching sleep when I can on a lower than usual dose of medication (reduced it, as I mentioned before, I was sleeping far too much) so am all over the place.

Bipolar disorder can suck it, suck it hard.

EDIT: This was not directed at anybody!

I can’t fucking DO THIS ANYMORE.  I want to crack open my skull and scream, “LEAVE ME ALONE!”

How can people celebrate having this stupid fucking illness? It doesn’t make you special.  If you want to be special go get a fucking tattoo or something.   Don’t wish mental illness upon yourself for the street cred, which, by the way, doesn’t exist except within a niche of wankers.  A niche of wankers who wouldn’t associate with you if they saw you within the grip of psychosis.  A niche of wankers who’d use you for comic effect in a tale they were telling their wanker friends as if you were an article they read about in the Guardian and not an actual human being.

I would like to be able to concentrate for MORE THAN FIFTEEN SECONDS AT A FUCKING STRETCH PLEASE.   To function like I should be able to for more than a day.

Yours hypomanically (and still taking medication, worst luck.  Why don’t I get the brilliant, productive, giggly hypomania anymore?  Eh?  Why do I get the paranoid, screaming, wanting to kill people hypomania?  Wanting everyone to die?  Wanting to be amidst the smoking ruins, laughing insanely?   I’m suing.  Trades Descriptions Act.  I’ll ‘ave you) and filled with total rage.

This entry may disappear by the way.  Oh I do love writing, I want to write something that’s hugged for comfort and love, if you could print this out and it would help, as if you felt someone else was there with you, but sometimes I am so pricklingly aware of how much I hate this, and how I’d give anything not to be a manic depressive, to just not be, to see what my life would have been like without it.  Would I have made it to Oxford, would I be a mother?  Would people think better of me, would I be less lonely?

And no, there is no, “working it to my advantage” (how? how do you do that?  How do you harness racing thoughts into any sort of coherency?  Paranoia? Rage? Fear?)  or so on, or viewing it in a different light.  No matter how much some want to subscribe to be a walking work of art, it’s not true, you still have to live and breathe in the real world and this, this is where it is hardest of all.

I am so grateful for what I have in my life.  But it’s no thanks to this fucking stupid illness.

Hooray!

I finally have access to a working computer again!

Oh fuck

Well, I’ll be speaking in front of over hundred people at the Open Up conference:

http://www.oneinfourmag.org/openupconference.html

A free conference about how to communicate sensitively and appropriately about mental health

Encouraging us to reconsider the way we represent mental health difficulty by talking about the issues and hearing from speakers and panellists with direct experience in mental health and of working in media and communications.

For professionals who communicate with the public, for journalists, for people in public bodies and for people with mental health difficulties. Attendance is free but you need to book a place.

Speakers and panellists will have direct experience in mental health and
of working in media and communications. Those already confirmed include:

Alastair Campbell, formerly Tony Blair’s Director of Communications and a campaigner for mental health awareness

Debra Allcock Tyler, CEO, Directory of Social Change

Jacqui Thornton, freelance journalist and former health editor of The Sun

Sue Caro, Senior Diversity Manager, BBC

Shaun Crowe, Regional Co-ordinator, London Mental Health and Employment Partnership

Heather Payne, Media Action Worker, South Warwickshire User Forum

More speakers will be confirmed soon.

Talking about mental health – getting it right: Monday 1st February 2010. Registration: 12.30pm. The conference starts at 1.00pm and finishes at 5.00pm.

The UCH Education Centre, 250 Euston Road, London, NW1 2PG.

Laurie Penny will also be part of the panel I’m speaking on.  Implacable Marigold, the therapist I’ll be talking to about social anxiety next week, will be salivating over this.  I had a panic attack before I went to the pub on Friday.  I wonder how I’ll deal with this, eh!

Get your tickets!

“It’s chips tonight! I burned them! They’re actually twigs! Eat it and like it!”

Hello- can anyone reading my blog comment on this post, please?  For two reasons: 1) to say hi and tell me how you are and 2) there’s a few regulars I’ve been missing and I’m just wondering if you’re all out there and okay!  I’m notoriously bad at responding to comments and emails, but I do read them, thus I notice when people aren’t around. Or maybe just not reading anymore because I’m rubbish.  You don’t have to comment, obviously.  If you do, feel free to post something- a link, a story, anything!

Yours,

Your mother waiting at the door, anxiously jiggling her foot and calling you in for your dinner.

P.S- Thanks for the advice on my previous post.  The general consensus is that I’d have to be mad (AHAHAHA) to quit a medication that semi-works, and to try other methods of not sleepwalking through my life in the meantime.  Otherwise, maybe give it a go but to let my CPN know so she can monitor my mood.

I’m seeing the psychiatrist for a review.  Not, alas, “the gorgeous one”.  That’s probably for the best, as I don’t want to discuss slurring my words and pasting my hair to my face with gelatinous drool in front of someone who probably shaves their pubic hair to make it look bigger for his second job that involves dissolving women’s knickers with a bat of his luxuriant eyelashes.

P.P.S:- I’ve made a website where I can stash my work and write about things that don’t involve, well, drooling on myself.  Or maybe they do.  Look!  It’s at www.seaneenmolloy.co.uk, a URL that will backfire somewhat since it’s been scientifically proven that 99% of people can neither spell nor pronounce my name.  I should have registered, “Just call me Shannon or something, for god’s sake.  No, SHANN- call me Jane”.  Redirected from, “It’s SHAUN-ing, like a verb.  To Shaun.  I Shaun, you Shaun, we Shaun, we are Shauning”.

FUN FACT: A temp agency in multi-cultural London once asked me if I’d consider using a pseudonym or changing my name by deed poll since none of their clients could even work out whether I was a man or a woman by my name alone.  I just flashed a photobooth and asked them to add it to their records.

FUN FACT NUMBER 2: 93% of injuries sustained in the workplace between the years 2003-2007 were caused by my headbutting people who called me, “Paddy” instead of using my actual name. BECAUSE I’M IRISH, Y’SEE!

Thanks to Bekki for the lovely free hosting.

(P.P.P.S: Sorry about blatant validation whoring, but in the madosphere, I become paranoid when people aren’t around anymore in case…)

And the inevitable…

…You saw this coming, didn’t you?  Ending any post with, “I’m doing okay” means…

…I’d like to stop taking my medication.  Because of it, and no matter what dose I take (I’m prescribed 450mg, sometimes I take half that, because I augment it based on my mood), I sleep at least twelve hours a day.  Sometimes more, and never less.   It’s been so prevalent in my life that I call it the, “Twelve Hour Rule”.  If I wake up before then, I’m still sedated, zombified, slurry and likely to walk into traffic.  I can’t function.  I can hardly speak, and being woken up suddenly throws me into shaking shock.

I can’t really take it anymore.  I’m spending over half of my life asleep.  Recently, I’ve missed doses and have been trying to sleep without it.  I can, to a degree, but I don’t feel rested.  Then again, I don’t feel rested on Seroquel, either.  Which is another problem.  I am always tired.  On bad days, I’m bone-snappingly exhausted and completely useless.  I’ve been taking this medication for over two years, and this hasn’t worn off.  I’ve tried a lot of medications (as regular readers will know), and most of them have either made me worse or made me physically ill.

I’m seeing my CPN tomorrow and I want to talk to her about it.  I’m not entirely sure I have enough of a handle on myself to stop it altogether, but I don’t know.  I stopped it taking it completely for a few days about a week ago.  I got the withdrawal first- agitation and unbearable itching, which meant I was popping antihistimines.  But worse than that was paranoia.  It seemed to descend out of nowhere.  Robert came round to my flat and I suddenly started accusing him of cheating on me.   Every time I have stopped taking my medication, I’ve become ill quite quickly.  The longest I went without it was about ten days, and I spend it wanting to die, convinced everybody was talking about me and wishing me dead.

I don’t know if it’s worth quitting the one medication that has some sort of effect on my mood.   But I’m not sure how much longer I can live like this, either.  It’s a huge trade-off, and an even bigger risk.  We’ll see, I guess.

2009-a year in very brief review

Hello!  I’ve been neglecting this blog lately.  It’s been for a combination of reasons.  The first was that I got caught up writing a huge review of 2009, which depressed the feck out of me.  Every time I approached the computer I pulled a hood over my head, gave it the fingers and exhorted it to fuck off.  It was a year of both miseries and marvellousness but the explanation of the miseries were upsetting to write about.  I also decided that because it involved other people, it was best not to post all 3000 words of it.  I can’t really continue to remind the world of things that others may have moved on from.  The second is that I’m knackered and feel as though I have the flu constantly.  Please bear with me if you’re waiting for responses to emails as right now it’s taking me about ten minutes to respond verbally.

The decade can be summed up thusly: Started it as a mentally ill fourteen year old with a leggy, eccentric Englishman.  Ended it as a mentally ill twenty four year old with a leggy, eccentric Englishman.

I was going to write a review of the entire decade, but god, it would take a long time.  I’d love to do in an arch, BBC Four fashion, with archive footage to illustrate my pitfalls- all in shaky, skittering black and white, narrated by Adam Curtis- but alas, the scraps from my Photobucket and from my fitful mind will have to suffice.  Fitful it will be, since I’ve been sleeping terribly lately, not been able to take my medication and am thus covered in a massive, itchy, welt-ridden rash.

I remember my teacher, Mr Conlon, eulogising about how privileged our generation was for straddling two centuries, two millenia, as if we’d lived through it all and were now lying, half-exhausted upon the floor, and this was his rallying cry. To make us arise like shadows when no-one’s looking, to be strong, when really, we lived through the 31st and 1st.  But it has a bit of a resonance with me now, as I didn’t really believe I’d make it to the end of this decade.  It’s been spent battling mental illness and my brain’s as-yet-fruitless attempts to kill me.

As for 2009, what a beast of a year it was.  In summary:

The Crap Stuff

Best to get this out of the way first, so I can end on high, balanced upon the shoulders of two large, grinning men like the FA Cup, only, y’know, a woman, and not made of metal.  On the last line of this post, please be pretending to be Judd Nelson in The Breakfast Club.  Oooooooooooooo-ooooh.

The crap stuff was very crap.  Throughout 2008, I’d been suffering from fairly crippling depression, which, of course, gifted me a night in hospital after downing the contents of my medicine cabinet.  It lifted then, a bit, but I became utterly obsessed with sorting out some aspects of my past (thinking about dying, and wanting it to be okay if I did- look, I wasn’t thinking rationally), and thus I wasn’t really there for the beginning of 2009.  I started the year quite manic, which wasn’t fun.

I had an abortion.  Which I thought I’d be okay with.  Ahahaha.  Instead of coping and moving on, I decided it would be more fun to go absolutely insane.  This took the form of: drinking, slashing my arms up, not sleeping or eating, running away and generally being a complete mess.

Subsequently, Rob and I broke up, after almost four years together (give or take the six months of being split up yet spending most of our time together, when I had manically ended our relationship, then immediately regretted it).  I loved him very very much, he was my best friend, and I am glad that we had that time together, though I wish we’d had a better ending.   We had just gone through too much together, and the abortion was the last straw because it changed, everything.  Still.  I’m a far better person for knowing him.  He saved my life, and, to be cocky, he did it twice.  I’ll always have a lot of love for him.  I guess that’s the best most of us can hope for, really.  OH GET ME THE PHILOSOPHER EH.

The emotional fall-out of the above meant that I cheerfully continued in my insanity for a few months.  I hated myself, hated living here,  felt suicidal with guilt, had to be fed and decided that relationships were not worth it.  I eventually began to feel okay again, though November was a shaky month spent mostly with tissues stuck to my face.

I’ve also been suffering from Physical Illness Undisclosed for most of the year which has sapped my strength and energy, which means I’ve pretty much crawled through the months.

No social life!

The Good Stuff

“Dos and Don’ts for the Mentally Interesting” on Radio 4 was broadcast and well-received, which was lovely, even if I did feel like a hypocrite because Rob and I broke up shortly afterwards.  I had been dreading being slagged off, or being unhelpful or stigmatising.  The award from Mind Mental Health Media was shocking and wonderful, and it lives on my fireplace, ironically mirrored, which means I can hardly look at it! And- this is a cliché, by the way- but through Radio 4,  I met fantastic people like Lou and Fiona.  Being nervously interviewed for BBC Ouch was terrifying fun.  It felt so strange, though, for that to be happening when there was so much chaos in my personal life.  I wish things had been more settled so I could enjoy it more.

I wanted to be working again in 2009, but alas, was too mental to do so.  However, I did write for BBC Ouch and One in Four, which was great and a little bit like having a job where I could put in an hour a month and turn up drunk.  I did some interesting things- like meeting the shadow minister for disabled people and quizzing him on welfare reform- with Rethink.  By the end of 2010, I’d like to be back at work.  Obviously, my ideal profession would be writing my bollocks off and earning a living from it.  However, if that particular dream doesn’t materialise, I’d like to study for NVQs and become a psychiatric nurse, if they let me.

I also met a literary agent in December, so I am writing a sodding book.  Hooray!  This is the first time I’ve mentioned it here, so there you go.  God knows if anything will come of it, other than my inevitable nervous breakdown and descent into alcoholism as I smash my head repeatedly off the keyboard.

Seeing Blur in Hyde Park was rather amazing.

As was Barcelona.

Robert, in general, has been fantastic.  We have such a fraught history (which I’ve never properly gone into, but it involves an imaginary boyfriend I dreamed out while in the midst of a psychotic episode, and I didn’t realise it until I was sixteen), but I’m glad I found him again, that he was a wonderful, if unlikely friend to me when I needed one, and that I finally got the guts to get into a relationship with him.  Things are going well.  It is good.  He is wonder and inspiration strangeness and vitality.  In a way, I’ve been too afraid to succumb to serious illness again, because what if I ruin it again?  What if, what if… etc.  I’m ignoring those fears and just getting on with the happiness.  It makes me fight harder, though.

And, as much as “Irritated”’s comments, well, irritated me, I have to grudgingly concede that focusing less on my illness and my problems has been a good thing.   In the past two months or so, I’ve been just trying to live my life, and I’ve been okay.  Mostly.  It’s been Real Life stuff that has gotten me down.  And it’s almost a relief to know why you are so sad.

Of late I’ve been becoming a little depressed again (very erratic sleeping is not helping, but then again, I should be more diligent in taking my medication), and my body image bullshit is still a problem,  but I’ve mostly been alright, or at least, what passes for alright when it comes to me, which is escaping the attention of the Crisis Team.  Hooray!  If you’ve been reading for a long time, you know that two months of relative stability is a huge thing to me.

This blog is approaching its three year anniversary, which is startling.  On one hand, I thought by three and half years since diagnosis I’d be swanning around all-cured and talking about how well I’m doing, rather than still writing a blog about being mentally ill.  On the other hand, I’m glad I’ve kept something up for three years, and met a network of fellow mentalists from it.  When I was diagnosed, I felt acutely alone, like I was a cork floating to the ends of the earth.  It’s nice to know that I’m part of a raft.

I’m rather late, twelve days into the new decade but- 2009, how was it for you?

Happy new year

Happy new year, everyone!  I spent it half-asleep in Brighton. Cheerio 2009, you were sometimes great and sometimes a big pile of pendulous bollocks.

I have a massive post to make I have yet to finish.  I’m glad the previous one inspired some debate.  And, while I’m here, thank you Mental Nurse for voting me best mood disorder blog, and hooray for Madsadgirl!

China executes Akmal Shaikh

Akmal Shaikh is dead.

http://news.bbc.co.uk/1/hi/uk/8433285.stm

That is heartbreaking.

Edit:  I’m not able to write about this in detail at the moment but to clarify my position: I’m against the death penalty in every circumstance, in every country.  No exceptions.  It is a brutal act, the revenge of the mob and no less so via a needle or a noose.  Those who are saying, “He smuggled heroin in a country that executes people for it” are missing the point, as is anyone saying, “Well, I have a mental illness and I’ve never smuggled heroin”.  So?  For the record, I’ve suffered from manic psychosis and also known people to suffer from psychosis more severe than I have and can completely see how this could happen.  People in the midst of psychotic episodes (and episodes of mania) are extremely vulnerable.  More vulnerable, I imagine, to a group of exploitative criminals.

The point of this is that there is a lot of evidence that he didn’t know what was happening to him, and was duped.  This was not a deliberate act on his part.  He didn’t slyly take a chance and get caught.  He seemed to be seriously mentally ill.  I say, “seemed” because he had not been formally diagnosed with a mental illness.  And I, and other people, might be wrong, and he may not have been ill.  But there is much to the contrary.  (Please read the link I posted at the very top, from the Guardian).

As for not meddling in affairs, China has a history of human rights abuses.  Would you say countries like that, like Saudi Arabia, like North Korea, should not have pressure put upon them to stop these practices?  That said, America also has the death penalty and has until fairly recently executed people with mental illnesses, and I doubt they would have tried to intervene had Akmal been a citizen of their country.  It is somewhat backwards to say we should look after our own, but British government had the right to protest (weakly, as they did) against his execution as he was one of their citizens.

Happy Christmas everybody

Right, I’m off home today, or at least, I hope I am, given that so many flights are being cancelled.

Enjoy the holidays, chaps!  Here is your annual bit of Christmas comedy.

http://www.channel4.com/programmes/father-ted/4od

Cheerio!

A reader asks for advice on the Christmas holidays

Edit: whoops, sorry!

Reposted with permission- I thought you might be able to give her some advice, because I’ve got nothing!  And I seem to be getting the ills so will likely spend Christmas under a duvet screaming, “THE POWER OF CHRIST COMPELS YOU!  SATAN LEAVE THIS GIRL!”

I think I’ve been bipolar since I was 12, but who can tell . . . my parents still don’t believe in mental issues.  I was “technically” diagnosed 12 years ago and have been on medication since.  I hate the medication, but I have to work so that means being “controlled” by substances.  I am now 48.

My issue (at this moment) lies with “family” at the holidays.  My family, as well as my husband’s family, are totally dysfunctional.  If it weren’t for our kids, I would skip the whole thing.  And then there is my oldest from my first marriage.  He is 26 and thinks that the way my family treated me (my husband and I were separated for a year 3-1/2 years ago) during that separation was appalling and wants nothing to do with them at all.  I really consider my family my husband and my children, as the only time we see these other “family” members is on holidays — Easter, Thanksgiving and Christmas.  Yes, for the kicker of all this, they consider themselves Christians, and obviously that’s why Christmas is “the” family holiday.

Any ideas (besides claiming an “episode” on how to avoid the whole bloody mess, or at least minimize the stress) so everyone can enjoy the holidays without it being a phony-baloney gathering of dna-alikes.

Brendan

Tomorrow is the anniversary of the day Brendan was found, and we found out he was gone.  It’s been two years and he is never far from my thoughts.  So I am just writing this to say that I miss him, and I won’t ever forget him. And I don’t think I’ll ever have a friend like him again and I wish he was around because there’s so much I want to tell him, that I want him to tell me.

And I’m sorry the last message I ever sent you was calling you a wankpot.

Christmas is a difficult time for lots of people so please, if you are suffering, ask for help.  It’s selfish of me to say this but don’t leave people like me behind because time really doesn’t make it that much easier.  Eight years later, I still cry when I think of Vicky, I still can barely think of my dad, I still miss Brendan.  Nobody is truly alone, and nobody deserves to die that way.  And it is dying.  It’s not escaping, or running.  It’s dying.

Not that that really helps, though.  I just don’t feel like romanticising it today.

Can’t Cook, Won’t Eat: vicarious enjoyment of food, hating “Femail”

EDIT:  Read this one, the previous one posted on the 10th for some reason so had to delete it!

Also, as much as I appreciate your compliments, you don’t need to comment saying I’m not fat etc.  The point of this is- even if I were, even if I were 400lbs- it doesn’t matter, because there is no shame in a body and nobody has the right to shame your body.  Fat, thin, whatever- it does not matter.

First of all: look who we met!

Robert does not always wear a bicorne, although like Eddie, he used to ponce around in a dress. It was at 2am. Ignore my stupid face please please please.  I would have put a happy yellow face there but that’s very antisocial (edit: that is not fishing for compliments, by the way).   We were at the screening of Eddie Izzard’s self-documentary, “Believe”. It was interesting to see what he’d waded through to be so successful, and he seems superhumanly driven.

But at the Q&A afterwards if he’d just wanked into the audience he’d have saved us all an hour and a half. I still love Eddie Izzard as a comedian, but the lengths of the documentary to show just how BRILLIANT he was became almost parodic. At one point, the voiceover from his tour manager reverentially tells us that his shows are almost a “religious experience”. And then a tearful girl dressed as a bee breaks down and said that Eddie healed her when she was sick. I thought, “Aww, this is touching (unlike Eddie, however. No healing hands, just a CD of Definite Article”). Then I did a double take and stammered, “Hang on a minute- is this documentary seriously comparing Eddie Izzard to Jesus?!”

The premise of the documentary, by the way, was Eddie Izzard was accused of fraud by Watchdog for repeating material in new shows. The episode he was accused in was like some Brasseye special, it was so over the top and ridiculous. So, upset, he took a break from comedy then returned with the all-new Sexie. WATCHDOG. REALLY. WHO CARES. That’s like hanging yourself because Esther Rantzen slagged off your fridge.

So I was left wondering if it wasn’t just a bit of sly mockumentary too. His manner at the Q&A attested that it may not have been. He seems genuinely devastated by the Watchdog shenanigans. He also seems very wounded by the fact that Michael McIntyre is on TV a lot, and he isn’t. If that’s a comedic genius’ aspiration, we’re doomed.  (However, I think almost witty is correct in that it’s mostly an incredulity that McIntyre seems to have just shot all over the place).

My flat is a mess. My bed looks like its been the lucky host of an orgy in which I blew copious amounts of cocaine over the breasts of a nubile young woman, pausing only to flick through some De Beavoir to assuage my dizzied conscience. No such luck. It is the talcum powder I haphazardly snowed upon myself earlier, and it will remain there until I can be bothered/can afford to do a wash. I don’t know why I own talcum powder. There are no soft, rosy baby bums to be buttered, nor do I wear latex pants. (That would look like a joint of meat wrapped in a bin bag). I have no recollection of buying talcum powder, so can only assume it was one of the wares of my hypomanic episode a month ago in which I bought things I decided I needed, or that it’s been sneaked into my bathroom by Robert. What a fucker.

The reason my flat is such a mess is that every time I think, “Right, I’m going to make this place look less like a crack den”, I am inexplicably drawn back to the computer and, almost in a trance, type the words, “Come Dine With Me” into Google. I only recently discovered this wonderful programme, and have devoured almost every delicious episode.

Come Dine with Me is a cookery programme. Four strangers meet up, cook each other dinner, then score each other’s efforts. All this is presided over by a sarcastic narrator whom upon Googling has a face as irritating as his voice. Sounds exciting, doesn’t it? But I’m obsessed. I am helpless in its grip. And it’s not the first, and it won’t be the last. There were times in the recent past when I’d wake up in a sweat and check 4oD for new episodes of Ramsey’s Kitchen Nightmares. When I can be arsed to buy the Sunday papers, it’s usually so I can perv over the Observer Food Monthly.

I can’t cook. I don’t like cooking. It’s boring and I’m shit at it. I give people food poisoning. I heated up something in someone’s microwave the other day and melted the plastic. My warped little failure was a testament to the fact that I just don’t know what the hell to do with food. I have successfully razed four cookers to the ground. And I have an eating disorder, and BDD. Food is a fraught affair for me. I feel guilty when I eat, I feel guilty when I don’t because I’m trying to be healthy, and I am trying not to revisit the land of blacking out after spending the day with my head down a toilet bowl. I am trying to align my emotions with my logic- I am fat, but so what?

It only recently occurred to me that my obsession with cookery programmes and paraphernalia wasn’t despite the fact that I have an eating disorder, but because of the fact I have an eating disorder.

It’s strange that I hadn’t thought of that before. A lot of the people I have know who have also suffered from eating disorders have been obsessed with food. Obsession with food, is, of course, fair dos. I am obsessed with what I put in my mouth (FNAR!). I think about food, all the time. Recently, it’s been on my mind more than usual. I have gained weight since the contraceptive implant, and weirdly, the weight has gone directly to my stomach. It is a bitter irony that the baby I didn’t have seems to have left a phantom in its wake. I genuinely look pregnant.

I had a good day today. I had one of those days where my self esteem was stroked like a purring little kitten. But in my joie de vivre, I thought it was okay to break my own pact about not weighing myself anymore. I could take it! I was in a great mood! But it fucked my mood. I have over 30% body fat, when I used to have under 25%. All my self esteem came pathetically tumbling down because of a few numbers. I felt like a total failure. BMI 27. I am panicked. I spend most of my day in a panic. I hate my face, but you already knew that. It is bloated, deformed. I split whatever I eat in half, and throw one of those halves away. And I have a habit of listing my intake that day to whomever I’m with. I am obsessed with food, and, because of that fact, self-obsessed (I am certainly self-obsessed- just look around you. It’s partly my personality, but partly because various mental brainwrongs make one so- the internal landscape is frightening, the external, threatening). It is dull.

I have been trying to find a more balanced approach to eating in recent months. Robert is the polar opposite of me in that, lithe little sod that he is, he loves to cook and loves to eat. He practically shags attractive kitchenware. He has a pepper grinder that would make most people seriously question if he was overcompensating for something. He’d be buried in a 6ft casserole dish if he could be. When he cooks for me, it’s healthy food, partly to encourage me to eat it, and partly because that’s the food he enjoys most. Sitting down for a meal with him has become part of our relationship. I would miss it. But I still don’t really enjoy eating. So I find my enjoyment in other peoples’ enjoyment.

I watch Robert eating with a mixture of jealousy and joy. Jealousy because he seems to always be eating yet is still slim, and joy because eating makes him happy. When he likes what he’s eating he makes a little unconscious humming noise, like a happy child lost amidst a new toy. When he’s hungry, I become my Irish Catholic grandmother (a close relative of the Jewish mother). “Eat! Eat! You are wasting away! Look at your bones! Let us find you food!” And then I take to the streets dragging him by the hand and morph into a pushy market stall owner at every almost-shut newsagent. “These aubergines! Only a quid! They’d be lovely roasted!”

And cookery shows are food porn. And because I’ve watched Kitchen Nightmares so religiously, I keep thinking that I can go into any restaurant and tell them how to run it better. Or imagine him doing it instead, then carrying me off like An Officer and a Gentlemen.

At the height of my bulimia, I used to go for meals with Rob or with friends, and tuck in with gusto, make all the right noises and not give away the fact that fear was clenching the beating out of my heart. I’d have the dessert, too, and then make noises about being full, fuck off to the bathroom and puke it out. Worried it wasn’t enough, I’d do it again when I got home. Disabled toilets were my best friend and I still instinctively always use them.

So I watch other people having dinner and having fun and think, “That looks nice”. And I read the Food Monthly and think about all the things I’d like to eat.

I’m not even extreme- I’ve met far more extreme people than I. And I have almost never met a woman who doesn’t worry about what she eats. When I was growing up, I’d watch my mother cook meals for us, then sit and eat almost nothing herself. My dad would be the served the biggest portions, us, the girls, smaller ones. We are taught, from a very early age, that “boys need food to be big and strong” and girls need to be pretty, thus, in our warped society, thin. Robert has a male attitude to food, and I have a more pronounced female one. I deserve to eat less, because the price of eating enough is fat, and greed. It is not right, but it’s true.

I have an academic interest in it all. I read a lot about feminism and the fat acceptance movement (How I envy Fat Acceptance bloggers.  They struggled but they got there, to the magic place that my brain lives in but my heart doesn’t). My daily reads are Shapely Prose and Sociological Images. It’s one of the things that I talk most about in my day to day life.  It fascinates me and I have seriously considered studyin it.  It’s one of the things I notice a lot, how people are represented, how prejudice is widespread and accepted.  (And there are some things- interesting to me, at least- if you look on a McDonalds wrapper at the calorie content, the illustration is of a woman.  Usually a “default” is a man- so either this is something progressive, or they think that woman are the ones who will look at the calories, either for themselves, or for their children).

I consider myself a feminist. I spy implicit gender reinforcement in our day-to-day media bombardment. I torture myself by reading Femail (particularly horrible Daily Mail subsection that loves using the word, “lumpy” to describe womens’ bodies) and “womens’ weeklies” because the implicit division makes me angry, and because our little worlds are so little to them. In Take a Break last week, a guy had made his “dream woman”- a robot. And the subheading was, “…but she still talks back!”, because perfect women don’t.

And it irritates me, everything. The WAH obesity epidemic making fat people, and anyone in between, feel as if we’re taxable space-hoggers. The fact that, after I wrote this (it’s two days later- I am really not getting on with stuff lately), I went to Piccadilly Circus and someone shouted, “FAT CUNT!” at me as I walked up the escalator. It angers me that I know, and am, a woman who finds it difficult to eat in public lest she be judged. Who puts the lettuce at the top of the shopping basket as if to say, “I AM TRYING”. That every time a successful woman is interviewed, her physical beauty is mentioned. And if she isn’t what’s considered physically beautiful, then she’s “made up for it” in other ways. IT. DOESN’T. MATTER.

Likewise, I’ve had comments on this blog when I have been severely suffering kicking at my appearance. When I get insulting emails, that’s what they focus on, because, as a woman, the greatest insult you can throw at me is that I am ugly. Once, when I moaned about the three stone I piled on in as many months of antipsychotic treatment, someone had a go at me for it. How can you accept this, they say. When I am very ill, my FAT is the biggest problem. I should be focusing on losing the weight rather than grasping back the last remains of my sanity. Be thin and insane instead of fat and well.

I hate that women are considered shallow, I hate that there’s culture and lifestyle, then female culture and lifestyle, when there should be no such thing. I DREAD writing a book and its cover being a high-heel or something, it just being so because I’m a woman. That someone might call me “sassy”. I’d take that illustrated stiletto and force it through their eyeball. It is geared to make us hate each other. To bitch, to judge, to envy, to blame ourselves and each other for the still present inequality in society. To quantify worth by the size of thighs and not personality. To assume we’re all united by our love of shoes (I do not give a toss about shoes, I hate shopping, I don’t really care to write about relationships, I don’t have “girlfriends” I go to for advice), so that we can be divided in more meaningful ways.  I’m not saying there is no intrinsic worth to the “female” sections of magazines and newspapers, and women-orientated media (indeed, I am a hungry consumer of most of it), just that the power of such a thing is misused.  Some of it is great (such as Jezebel), but even the supposedly intelligent mainstream has two types of women: rich homemakers, rich career women.  And women like me- that is, young people with a mental illness- live in Take a Break and the Sun.

I hate that adverts on the tube encourage us to butcher ourselves and remove the sexual and biological function of our breasts. And I HATE when people call those who undertake it shallow. They’re not shallow. It’s a rational reaction to extraordinary pressure. I hate that it’s seen as trivial. IT IS NOT TRIVIAL. It is insidious. As much as I utterly detest listening to anybody talk to me about their diets (likewise, I hate it when people comment upon my weight unless I ask them to, as I tend to lose weight through unhealthy means) or cleanses or some other crap, I understand the urge to evangelize. Because in the twisted culture war, you’re rallying the troops. Culture is killing women. This isn’t a simple choice someone makes one day. “So, I’ll care”. The choice is made from the moment we’re born. This is what you have to be. You can fight it but it’s still there. It is not vanity. To borrow from Ginsberg, I saw the best minds of my generation destroyed by madness, starving.   The vigilance is a frenzy, the energy, wasted.  Fluttery from hunger, focused on lunch. It’s hard to function on any meaningful level sometimes. The culture around is tunnel vision, except the sense of it getting narrower and narrower is real. The mouth of the tunnel is wider than the exit. We get suffocated, we get stuck.

And yet… for all I am intellectually aware, I am still bulimic and I still have body dysmorphic disorder  Although media dictates that I shouldn’t.  After all, I have a “partner”, I have an outside voice reinforcing the idea that I am beautiful therefore worthy.  But it doesn’t work that way for me and many other people.  It isn’t true that if someone looking at you thinks you’re beautiful, then you are.  I believe the people who think I am.  But it doesn’t change how I feel, and I regret that, because I know how frustrating I am. I still always wear a hat or my hood up, I still have days when I can’t leave the house, I still have scars on my face.  My mind gets it but my emotions don’t.  They’re rubbish.

If it were just a choice…

And I am bitchy, too. I became annoyed at Robert earlier when he was commenting that he’d only eaten about 1500 calories yesterday. For me, that’s overeating, for him, under. I was resentful that was the case. He can twice as much as me and I can eat fuck all. For a second, I felt as if a deep injustice had been wrought in the world. My intellectual mind says, “What the hell. You’re hungry, eat something!” My irrational mind says, “You pig, you’ve eaten too much”. Why should I resent his body, though? His body is his and it is lovely and it would always be. It isn’t his “fault” he is tall and slim and goes to the gym and needs to eat a lot, and that I am short and can’t eat much without putting on weight.  I shouldn’t shame him for his body. It tangles me up, it wastes my energy and it’s why I’m sitting here feeling hungry instead of cooking dinner. And it makes me, even for a second, hate people I love.  And the fact I’m living in clothes that don’t fit me anymore doesn’t help (I thought about investing in Spanx, to hold me in enough so that I didn’t have to buy new things).  But I don’t know what to do.  As soon as I consciously diet, all the old bad behaviour comes back.  And I don’t have any money so I can’t buy new clothes.  Does not make one feel good about themselves, really.

So, I’m trying to see food differently. As social, nurturing and un-hateful. But it’s bloody hard. I just hate the way I look. And I worry that I could achieve everything I’ve ever wanted and still break down every time that I accidentally glance into a mirror, and that hatred will follow me for the rest of my life.

And, in terms of mood, I am alright.  I’ve had a funny six weeks.  A wee hypomanic burst that made me ragey, then two weeks crying in bed.  But, yes, I actually went to a CPN appointment today and said, “I’m fine!”  And I wasn’t lying.  How lovely.

Another December (Written 2nd December)

I have spent most of today crying my eyes out.  Hooray!  And I mean that.  Despite my status as Mentalist Ordinaire, I almost never cry.  I am stoic.  I have a perpetual stick up my bum.  I sneer at tears.  But for the past six weeks, I have been crying almost every day.  And on the days I cry, I really go for it.  Proper, facially disfiguring tears.  The sobbing recently have only been visited upon me when death has been visited upon my loved ones.  And on those lonely hours on a teenage mattress that squeaked too much and made my anguished wailing sound like very vigorous masturbation.  And listening to the Smiths while weeping for some imagined, life-swallowing problem (at least, I guess, my problems then were that I was locked in psychosis, and losing my mind, but also, there was this boy I liked…) is a kind of masturbation.

Ah, I’m trying to be amusing because I feel quite parodic sitting here.  My hair is greasy and half-heartedly scraped back from my blotchy Alice Copper face.  I’m wearing pyjamas, something normally reserved for weekends with my family.  I haven’t slept, and I am exhausted. I have eaten very little.  I look like a lady of the sorrows.

I have been crying because today is December 2nd.  I  place too much importance on anniversaries.   I would, according to rude maths and optimism, have most likely been a mother by now. I wrote about it earlier on my Livejournal then, infuriated with myself, deleted the whole journal.  I don’t feel so scared here.

I am hoping now such a day (like any other day, really) has passed that I might begin to feel better.   I have been very very sad lately.  I have been in touch with a charity and am going to go and talk to them.  Otherwise the other place is…the place.  And I would rather not go back to the old house.

Everything has felt disparate and unsettled lately.  I haven’t seen my CPN in a while, and the appointment I kept myself awake for on Monday never happened.  I was remembering earlier- almost with admiration- myself at the ripe age of nineteen.  A girl of prestigious self harm.  Hateful to be alone. Desperate, wandering, wild-eyed, extreme.  Although I am, for the most part, careful in managing my illness, sometimes I miss her.  Not the self harm.  There is an element of the abusive relationship there.  I have no desire to test the limits.  I don’t want to bind people to me with anything other than love.  It is scary.  It is isolating.

But I miss the fleeting, momentary freedoms of madness.  I feel bound, gagged and numbered sometimes.

At least with crying, with grief over something that has nothing to with being ill (although the reasoning that led to this did), I can feel like this is my own grief.  There is no pill to take it away.  No strategy.  No fruit smoothie.  No sunshine.  Just tears, and one day, soon, I hope, I will feel like I can live with myself again, and with the joys of this brittle, brand-new present, and not the ghosts of the past.  For months I have felt like I was wading through vapours.

I don’t know what to say anymore.

Whoops!

Oh bugger, I am a twat.  I had this on 100 posts per page- I have probably crashed quite a few browsers.  Sorry!  Set to the more sane 40 now.

Your Crumble Narrator

Thank you very much for your congratulations in the previous post.  The award is on top of my fireplace.  Its luminescence sets off my Rutles vinyl nicely.

I haven’t updated until now because I have quite sad, and it isn’t the done thing to turn around and pout when you’re receiving awards and people are telling you you’re great.  All that validation must go to ones’ head, and I wish I was more egotistical than I am so I was floating around haphazardly like a daddy long-legs, bouncing from cloud to cloud bowed by the weight of my head, hindered by my uncertain, hair-breadth legs.

I am certainly not moaning about it. I need that validation sometimes, because I often feel like toss.     But being unhappy right now feels a little bit like being ungrateful.  And I am unhappy at the moment- just the moment.  And it’s little to do with manic depression.

I was asleep for a little while tonight, and then awoken by a phonecall.  My blood freezes when the phone rings at four a.m.  In the middle of the night, it is never good news.  It was a Facebook friend- someone I knew years ago- thinking I might be up to talk.  And I would have been had I been somewhat more awake.  But I wasn’t.

My sleep has been erratic lately, and I am constantly exhausted.  I missed my therapy assessment appointment with the icicle therapist.  I can’t even remember what day it was, and, either way, I was too afraid of her to call.  The thought of her flatline voice worming through the phone handset (I don’t like using my landline, I become obsessed by the patterns of the holes, I lose my concentration), I’m worried now I’ve blown my chance to have therapy, but the alarm didn’t wake me up- it rarely does.  Nothing can cut through antipsychotics except fire and murder.

I’m awake now, close to 6am, because I don’t want to go back to bed.  I didn’t take any medication today because I have to see my social worker tomorrow.  The time was spilling past midnight, then one, then two… and if I’d taken my medication, I would have been in that coma for at least twelve hours and missed my appointment.

I’m putting this entry behind a Read More because it talks about abortion.  I think this month is one of those emotional meltdown ones- it’s near Christmas, which I always find difficult without my dad, my “due” date and Brendan’s anniversary.

Edit: deleting the rest for now.  Too much for me on a public blog.  Basically discussed nightmares, getting counselling from Brook, going off the rails this year, and nice things.  Sorry, and thanks for comments.

Bloody hell. “Dos and Don’ts for the Mentally Interesting” got the Best Radio Drama award at MHM

Well, CRIKEY and other such exclamations from my adopted homeland!  We went to the Mind Mental Health Media Awards at BAFTA yesterday evening expecting to have conversations about how great it was to be nominated and nothing else, and we won Best Radio Drama for the Radio 4 play based on this blog!  It was an immense, yet obviously welcome, shock. None of us had prepared a speech so we pushed erudite producer Fiona to the fore to say some words.

Here are some photos of us and our award (which, kindly, Lou and Fiona asked me to have).  And Jimmy McGovern, who was on the judging panel. Excuse how utterly shite I look.

Melvyn Bragg

Alistair Campbell accepting his award for, "Cracking Up".

Me, Lou and Fiona, featuring our award and MY GIANT KNOCKERS

SUBTLE

Back home, where it now lives

“Dos and Don’ts…” has been surreal- a radio play based on my scribblings here-therefore, my life- was something I’d never even have thought of or imagined anyone would be interested in.  And it’s strange for something that’s so intensely personal to be received in such a lovely way.  It’s so heartening that people feel it helped make a difference.  We all felt quite honoured to even be nominated.  And it’s a strange experience, sitting in a room full of people you don’t have to hide from, because they were all there with the same ideology, that there’s nothing shameful about having a mental illness.   I was reunited with Lou, the dramatist, Fiona and some of the shortlisters I’d met when I did it two years ago, which was nice.  And I think I coped fairly well with people talking to me, thanks to the lovely lovely free booze!

The shortlist was fascinating- have a look for yourself.  I’ve only seen/heard a few things on it (such as Terry Pratchett’s, “Living with Alzheimers”) but I shall now dig out the rest.  The Speaking Out award was given to the men featured in, “Chosen“, a documentary about the sexual abuse they experienced as children.  It was moving, and humbling, to watch them accept their award.

Anyway, HOORAY and such!  I shan’t go on about it  (mostly because I am a bit unwell today) but I feel proud.

Out to Lunch

(Redux- my first version of this disappeared for no reason!)

Right, I deleted my grumpy posts about losing my passport and having to waste money because I couldn’t get my flights and to shell money I don’t have on now getting an 11 hour journey home by ferry. Grr. I had been planning this visit home for ages and was furious that it all fucked up at the last minute due to quite extreme forgetfulness. (Fun fact: I took my passport out of my bag and then put it in a cool little travel wallet I had. Then I triumphantly declared I would put it somewhere safe, somewhere so safe that even tearing the house apart didn’t reveal its whereabouts). Robert is lovingly missing his flight to Belfast on Saturday to get the ferry with me later so that I don’t go mad and nut a Glaswegian in their beautiful face. Oh how I hate being cooped up on trains.

Boils down to: I will be away in Belfast for the next nine days or more, and not contactable by email since my mum lives in a household with no internet. Yes, they exist, but it’s Ireland so we’re lucky to have electricity EH. Have yet to book a return back to London as I’m not sure I’ll try chancing it with a shitload of birth certificates and stuff with Easyjet or if I’ll have to get the ferry back by myself. So! That’s it.

In mood news for a rare relevant post, for the past few weeks have been rather jittery, very anxious, imbued with the raging horn (oh yes), buggered for concentration, sleeping about two nights a week, talking bollocks, and, I guess, slighhtly hypomanic (which Robert was openly bemused at when we went to Tesco the other day and I was gabbling to myself about all the things I was putting in my basket while running up and down the aisles deciding I needed this and that) which is one reason I’ve been struggling with long entries. I’m okay, except that in the hassle to sort out getting home on extremely short notice, I forgot to pick up my prescription and will not have any medication until get back, which, at this point, is in question. That might spell trouble. So, if I come back in a week raving about being the next queen of France (which would be ridiculous, France doesn’t have a monarchy so expect further delusions of, “THEY’RE COMING TO GET ME WITH THE GUILLOTINE! MERDE!”) then do point and laugh. I also find it amazingly funny when I do take my medication and see someone- case in point, the therapy woman on Wednesday. I was still slightly drugged but also quite jittery so I was all over the place, rambling, pacing around then half-slumped. On the way back, the haze mostly lifted but I was almost FOILED by what I thought was half a polo mint in my pocket actually being half a 200mg Seroquel. I popped it in my mouth then spat, but bitter was my disappointment. But I smoked a menthol cigarette so all was well.

I shall leave you with some photos From My Real World and Everything to prove that I have a life, that I’ve taken recently, just to make this entry less of a waste of…internet.

Take care chaps.

Rob, my lovely ex boyfriend, with David, my lovely Scottish friend, playing with his band The New Royal Family at Ant Lib

Robert kissing Jack after kicking a ball into his face on Hallowe'en

We didn't just kidnap a child, that's Robert's stepson, and our pumpkin

 

 

 

Cheerio!  x

When I was a teenager, my best friend lived in Dublin.  Every so often, I’d take the two hour journey from my home town of Belfast and spend a few days with him.  I loved wandering through the wide, windswept streets, secretly reveling in the tin whistle siren songs to the tourists trickling by.  But my favourite place in Dublin was Trinity College.  All I wanted was to study English there.  I imagined myself as a louche Donleavy-esque character, burrowed amidst fusty, loved tomes in an expansive library, happily ensconced in the dual worlds of academia and alcohol.  I would stand outside and run my hands across its historic stones, and wish.  I even printed out a photo of it and blu-tacked it to my bedroom wall. And as ambitious as it was, everybody had faith in me.  I was one of those effortlessly brilliant and ambitious students who’d never got a B in her life.

Instead, I became very unwell.  I missed six months of school, scraped a few GCSEs and was then gently dropped from my A-level courses with the humiliating declaration that my “mental health was more important than my education”.  Then, on an impulsive whim I ran away to London.  Seven years later, I’m still here, still ill and have, of yet, been unable to reattempt education.

Throughout my teenage years, it was assumed, despite the fact I’d suffered severe bouts of mania, depression and psychosis since the age of twelve, that I was just an attention seeking adolescent.  Anybody with a “teen” in their age isn’t ill.  They can’t be ill.   At sixteen, there was some vague hand-gesturing regarding a, “mood disorder”.   I was prescribed a medication that affected my balance so severely that I spent a good few months living on the hall carpet after yet another tumble down the stairs. I stopped taking it and there were no follow up appointments.  Even as I dropped out of school, nobody took my alleged illness seriously, and eventually, that included me.  For the next four years, I was too afraid to see a doctor, convinced that I was wasting their time and that they would dismiss me.  During those years, I deteriorated.  I developed the difficult-to-treat rapid-cycling (in which a person has four or more episodes of illness a year) and it caused untold problems in my relationships.  I lost countless jobs, I had to perform the famous, “moonlight flit” due to the fact I couldn’t pay my rent, I self harmed severely and I began to drink heavily.  At the age of twenty- psychotic, jobless and bleeding from the throat- I was admitted to a psychiatric hospital.  It was only then that I began to receive help for my mental problems.  By then, it had been eight years since I became unwell.

What happened to me is not unusual.  There is, on average, an eight year delay in diagnosing bipolar disorder, in which time the damage in a person’s life may have already been done.   It can also be misdiagnosed as schizophrenia, borderline personality disorder or depression, so the person may not be receiving the right treatment.  In fact, using antidepressants to treat bipolar disorder misdiagnosed as depression can be downright dangerous, triggering mania in some patients.

Mental illness is often not diagnosed until a crisis point has been reached.  It can be for various reasons.  A person can lose insight into their behaviour and refuse to see a doctor, or, in the case of bipolar, they may experience hypomania which can cause someone to feel not only good, but great.   Or, like me, they can think that they’re just flushing NHS hours down the toilet by bothering a doctor.  Or, as revealed in a recent survey of psychiatrists, doctors are simply not recognising the symptoms of mental illness.  And obviously, they’re somewhat easier to recognise when you’re bad enough to be hospitalised.

Finally getting a diagnosis can be a relief.  When I finally received the less-vague diagnosis of bipolar disorder, once I’d gone through the prerequisite period of, “You’re wrong, I’m fine”, I was thankful, in a way, to knew that something ailed me, and I wasn’t just, er, going mad. It explained a lot.  But it was also a harrowing experience.  I had kind of hoped that the doctors of yore were right and I was going through a teenage “phase”.  To be told, with all the characteristic tactlessness that the psychiatric profession is renowned for, that it was likely I’d have to live with this for the rest of my life (ah, the “rest of your life”- a particularly frightening prospect for the barely-lived in twenty year old) rendered me as flat and amorphous as a dinghy with the air let out.  That this too would not, in fact, pass. Yes, it had messed up my life.  But it it had a hand in my personality, my behaviour.  Some people liked me the way I was.  And I wasn’t sure who that person was anymore.  If they would even exist anymore.

I had an image of my future.  I wanted to be carefree until I was in my early nineties.  An elegant writer, well-studied, well-traveled.  Quaffer of wine, that kind of thing.  Taking medication that would change who I thought I was, living a life relatively free of stress, avoiding alcohol, my main confidant being my social worker and being forever saddled with the stigma of mental illness hadn’t figured into it.  Simple things I previously believed would be joyful experiences- such as having a child- were suddenly terrifying.  I’d have to take medication, and even then, only certain medications because others could harm the child.  There would be the grave possibility that I would experience post-natal psychosis, since I am prone to psychosis.  And there is increasing evidence that some mental illnesses are hereditary. So great was my worry that it contributed to my decision to have termination earlier this year.  There were other factors, but it was a position I never imagined I’d find myself in, and sobering reminder of the realities of living with a mental illness.  I’ll never fully adjust to it.  And forgetting it comes at a high price- in my case, when I stop taking medication, I start to become ill.  I need to be aware to be well. Ah, fantastic.  All the pep-talking statements that mental illness only changes your life as much as you let it isn’t true.  You cannot be well by wishing alone.

In a way, you’re damned if you do, and damned if you don’t.  Not being diagnosed leads to not being treated, and being diagnosed leads to a whole world of change.  Whereas I’m glad I didn’t have, “MENTALIST” stamped across my head when I was fifteen, I do sometimes lament what I lost. I don’t regret where my life has taken me.  But I’m sad that I’ll probably never get to Trinity.  Things are different now.

Blogs, forums and resources on ECT

Hello!   Do any of you know of write/moderate/recommend good blogs, forums or resources on Electroconvulsive Therapy?  I’d really like to compile a list and since my computer fried up last week (woe, had to reinstall the operating system), I have lost every single bookmark (fecking loads),  documents et al that I had concerning it.  Or if you’ve had ECT and have any personal experiences you’d be able to share, that would be appreciated too.  I can’t even find my own post on it.

Thank you muchly in advance.  Thanks also for commenting on my previous sad wee post- funny few weeks really to round off a strange year!  I feel like Egbert’s been at my head with a whisk.

EDIT:  This post isn’t about me, I’m not having ECT or anything.

On or around the 2nd of December 2009

Feck

I am embarrassed to be writing this but I need to talk.

(Talk of imaginary spiders and ranting, cut for boringness and embarrassment)

Read more »

Hypocrite

I know the vast majority of people with mental illnesses- like the vast majority of people without- aren’t going to stab me.  So I am feeling quite guilty that this morning, while in the reception area of my local CMHT, I seriously thought I was going to get knifed by someone sitting opposite me. They were staring at me very intently with an air of hostility, and the intensity of the stare frightened me.  I found myself busying myself in a boring way, to show how uninteresting and also unthreatening I was.  I nibbled a bit of the Tesco fruit salad I had in my bag. (I ended up not sleeping.  Thought fruit would perk me up). I pulled my hat down over my ears.  Sauntering up to the desk I forced myself to look cool and unbothered. Then I legged it.

Of course I wasn’t in any danger.  And they could have been staring at me because I looked like an idiot (I did).  And I’ve been the starer in the past.  I’m used to strange behaviour.  I’m often a strange behavee.   I’m wondering if this is a case of Mentally Ill Dominos, in which a circle of people with mental health problems act in ways which are innocuous but which feed into the mentalism of the other people in the room.  In this case, my ever-present paranoia.  Would I have felt the same in ANY waiting room?  Or am I indeed just a stinking hypocrite who’s afraid of people with mental illness?  Or am I just afraid of everyone?

Edit: Aha, showing your own prejudices there!  It was a woman.

Thank you Psych Central! and therapy things

Hello, this entry is sponsored by parenthesis (signifying an aside so you don’t have to).  And tiredness.

I’m in Robert’s new digs in South London, where he was born and grew up.  He is currently in pyjama bottoms exercising with a giant pumpkin.

Edit:

Thanks Robert!

First of all,  THANK YOU! to Psych Central for giving this blog first place in their 2009 Top 10 Bipolar Blogs!  It was second last year so I was happy (and surprised, since I don’t feel I’ve posted much of interest lately) to be first this year.  Here is what they say:

1. The Secret Life of a Manic Depressive
Do’s and Don’ts for the Mentally Interesting was a BBC Radio play based on Seaneen’s blog produced last May and just nominated for a Mind Mental Health Media Award. Always a compelling and honest read, it was no fluke or sympathy vote that caused us to place this blog near the top of our list last year – it deserves many accolades. Well done.

I feel awkward at this kind of thing so will just say thank you for the loveliness. Well done to everybody, especially Bipolar Chica and Patient Anonymous, whose blogs I love.  I’m glad to see that this year includes a lot of newcomers, and not just old timers like me, Spikol et al.  And hooray for the madosphere!  Aceness abounds.

Life, as usual, continues at my undazzling end. I’ve seen not one but two of my Belfast friends of late, which is always lovely (and, for the photographically inclined, feel free to nosey at my October photos on Facebook).  Apparently I sound English to my countrymen’s ears, and Northern Irish to the English.  It’s no wonder my (Irish Republican) family only half-jokingly refer to me as “the traitor”.

It’s been a little bit of a strange month with my moods teetering to and fro.  I’m still feeling a bit weird so excuse me if I sound…er, weird.  I had the drying-out alcoholic shakes, so no sugar in the tea unless I was armed with a sponge at all times.  My mind had been racing a little bit too, with a slew of unsettling negative thoughts, which wasn’t good. Background noise was also turned up to eleven. I’d been on minimal medication for some time- my usual dose is 400mg but I’d cheekily lowered it to 100mg, then to 50mg, occasionally nothing, which, I have discovered, is a bad idea.  I know my reactions well enough to be able to do so fairly safely. Up the dose when hypomania strikes, lower it when depression does.  See-saw. So I upped the dose to 200mg, and the agitation has calmed down.  It had no choice but to, given the fact that I have pretty much spent the past three days asleep because of the extra 100mg.  It’s hard to shiver and shake in your slumber.  Downside is I’m exhausted, my concentration and memory are still shot and I have no idea how to help that.    I joke about my terrible concentration and my memory but it gets me down.  It buggers with two of my greatest joys- writing and reading.  I find it a huge struggle to write sometimes, I can rarely read anything more challenging than a magazine and I’m generally a forgetful, scatterbrained twat.   I need a tattoo pen to write stuff on my forehead but I’d probably forget what to write or get distracted halfway through.  Bollocks.

Last Thursday was my first (first! I thought there was only one!) therapy assessment.  I’d been a wee bit nervous about it as the therapist is an icicle of a woman.  She is beautiful.  That was my first impression of her when I met her last year.  In the olden days when people still cared about the possibilities of verse, many a thigh-rubbing poet heart would have been in an absolute frenzy about her hair, a waterfall cascading in sunlight, the golden silk with which god spun the sands…and so on.  You wouldn’t be able to hear yourself think above the din of quills scratching paper.

And she is cold. Her golden loveliness (even her name is lovely) makes her stiffness more striking.  She is expressionless, often toneless.  She is professional.  The impassive manner of therapists is the stuff of cliches but having had little to do with therapy, it’s something it’ll take me a little while to get used to.  I guess I’m more accustomed to the casual and friendly manner of my social worker.   Though I would much rather speak to someone who is professional than someone who isn’t, or who tries to be chummy and matey without knowing me.  I’m just not used to it.  And besides, we don’t know each other, even professionally.

(Urgh, professionally.  I realise sometimes that seeing me is someone’s job.  We’re not friends, and they might not actually give a toss outside that one hour a week.  It’s a disconcerting thought sometimes and makes me wonder about people’s sense of duty, not just professional people.  How would I feel if I didn’t have anybody, had never had anybody, who cared about me?  Even though I am unsure most of the time if I do, but I must do, because almost everyone does really.  I wonder how I’d feel about my appointments then.  I do, for the most part, look forward to them).

Anyway.  I was in a bit of a funny mood that day (aha).  And nervous, and a bit anxious about rambling and just sounding like a churlish, entitled brat and so on.  I wanted to be articulate, and to answer her questions.  Because these things can feel like the world’s strangest job interview.  (Especially when your social worker is sitting in on it.  But I was glad she was). Read more »

Hooray

I’m going to apply for this.

Addaction SmartScheme

Good idea?

“STATE-SANCTIONED MALINGERING IS THE BIRTISH DISEASE”

“Birtish”?

If this article can’t even be properly edited then why should I trust what they have to say?  Learn to spell.

The Daily Express is a horrendous little rag anyway, but here, for fun.

It is telling that more than1.1million incapacity claim- ants are not suffering from any physical disability at all, but get their handouts by moaning about problems like “stress” and “depression”.

Once again, the largesse of the welfare system provides perverse incentives for people to exaggerate their emotional suffering rather than demonstrate resilience; no wonder, then, that the number of people saying that they are “too stressed” to work has trebled during the 12 years of Labour rule.

By far the greatest outrage is the money dished out to more than 100,000 alcoholics and drug addicts. It is the height of lunacy and immorality for the state to pay people to continue with their dangerous habits. Awarding “disability” handouts to drug abusers makes a complete mockery of the law, given not only that narcotics are illegal but also that a  significant proportion of crime is committed by addicts.

These people deserve spells in prisons, not an easy lifetime on the dole (not sure what’s “easy” about living on £50 a week…). The incapacity benefits system has been disastrous for the moral fibre of our nation.

Ants claiming incapacity benefit is a new one.  But I can understand them being off work for stress.  Ants work really long hours.

I don’t trust any articles written about benefits that still call them “incapacity benefits”.  It is the Employment and Support Allowance now.  If someone can’t even use the correct name for the benefit, they have no authority to write in a national paper about it.

Anyway, there you go.  I am too knackered and pissed off today for much else.  But stop your moaning about potentially fatal illnesses like depression, eh.  Demonstrate more resilience.  Hang yourself from your good old Birtish stiff upper lip.

I am sick of this bullshit being published.  Swap places with someone incapacitated by schizophrenia for a week, you fucking idiots.

Edit: Going to add here, when I was sixteen/seventeen, before I got kicked out of college for being mental and manic, when people thought I’d be destined for Oxford, I used to lie in front of traffic, and think I was Jesus.

6am, awake

And tearful.  I miss my dad. I feel sad, in an almost nice way, because sometimes it’s good to sit in the early morning quietness and miss someone.

I’m going home next month for a week.  My family live in a different house now.  So he has never been there, and yet, I miss his presence.  This is what became of the house we lived in.

God knows what it’s like now.

I wonder if I become depressed and reflective in October because I’m sandwiched between my birthday and Christmas, and two times of my life that will never be the same again.  I think when you have your parents, in some way, even as you grow up- into your twenties, thirties, forties- you can still be a child.  Their child.  There will always be a moment of petulance in an unguarded moment, or someone to bat your wise adult hand away from the hot stove.  And then when a parent is gone, it’s not the same anymore. With Christmasses and birthdays now I don’t feel like my mum’s child but her equal.  Being the Grown Up, making sure she’s okay, and hiding it when I’m not.  No tantrums allowed, however seductive they seem.  I really miss arguing with my dad.  I miss screaming til my lungs are raw and slamming doors so hard the wood splits.  I genuinely miss it.  I miss Christmas day fights too.  It doesn’t feel the same now.

I try to nurture my sense of childishness at Christmastime, by myself, enjoying the lights, being excited by the weather reports, entranced by the midis of carols that would be charmless in July.  I don’t want to lose that.  I don’t want to be cynical and find that part of me is gone.

I become sad when I think of some of the more horrible birthdays and Christmasses we had- the birthday my dad rang up to tell me he wanted to top himself, when I went home for my eighteenth birthday and didn’t even get a card, and a few particularly brutal Christmasses.  There is no way to even up the tally now.  At least the last Christmas, my last one with Paul Molloy being my father, was happy.  He stayed sober for three days or so.  The last I saw of him- as an alive, animated person, not a yellowing sarcophagus, dying- was paying for my taxi to the airport, and, as he got out and headed to the off-licence, he was happy.

Ah, I should just go to bed.

Hooray, I’m not dead!

Tongue in cheek but …

Happy one year anniversary of me not succeeding in topping myself! And three year anniversary of being diagnosed with the mentals!

Shame, my flat’s a bit of a mess right now.  Maybe I should find some more pills for the sequel and get it cleaned again.

It’s been a very strange year indeed.  Changeable, surprising, painful, joyful, somewhat unproductive and downright fecking weird!   When I don’t feel so delicate, I’ll go into detail.

In 2009 I seem to have mastered the art of forcing myself to carry on living with a glimmer of confidence it might actually be worth it.  I went mental from April-July and didn’t realise how mental (manic, mostly) I’d been until I was chewing my fist off in August and howling, “OH MY GOD WHAT THE FUCK WAS I THINKING?!”  Swings and WOO-HOO! roundabouts, though.   I went through the heartbreaking end of a relationship with someone hugely important to me that I probably wouldn’t be here without and who I love(d) very much that was complicated with-and partly caused by- madness, which made me (and makes me, and scares me because I don’t want the same thing to happen again, to take people for granted, to make the same mistakes) sad and angry, but survived and coped with it like a “normal” person, i.e crying an awful lot. And began a new relationship with someone who taught me what love was when I was fourteen, which, to be honest, is sometimes very surreal.

I haven’t escaped a year without a fairly severe wobble since my mid-teens, so if I make it to 2010 lesser-scarred (and hopefully not mentally scarring those close to me, like I did this time last year), it’ll be a bit of an achievement.  Self fulfilling prophesies may not be us after all. I do have nightmares sometimes about the events last year.  It was fairly traumatic, but hey ho.  More traumatic for everybody else who saw my boobs that day though.

If I’d expired in my own vomit last year my Radio 4 play would have ended on a bit of a downer.  And I’d never have met Michael Palin.  Did I tell you I met Michael Palin? LOOK I MET MICHAEL PALIN!

That’s him considering the marriage proposal I’d scribbled in the inside of the book.  It was accompanied by a line drawing of my breasts.

Point is, it’s a year on and I don’t feel that way anymore, which I couldn’t imagine back then.

Anyway, hooray for me not being dead!  Cut yourself a slice of cake, but do hide the knife.

Edit: Robert sneaked out in secret and bought me a lovely coffee walnut cake with three candles.  It was bloody delicious and the other half has gone into hiding lest I scoff it down immediately. All a bit silly, but there’s nothing wrong with taking one day a year to go pat yourself on the back with some cake.  Or to let someone else do it for you.

Big old pile of toss

I feel like shite today. How are you?

My body the hand grenade

Because this blog is the only place I feel free to moan.  This isn’t a blog about eating disorders and body dysmorphic disorder but I still have both (to use the names of the terms, shorthand) and they are making me fucking miserable.

Read more »

Is there any debate on this?

I have to rush out to go to a wedding reception so apologies for this post being short and rubbish but quickly, here’s a story on the Daily Mail website about a twenty six year old woman who swallowed anti-freeze and arrived at hospital with a note requesting her wish to die.  Which was honoured.

It has the usual hysterical Daily Mail title of,

What kind of country have we become if doctors and lawyers allow a disturbed young woman to die?

The coroner’s verdict was unequivocal. Dr Alexander Heaton, he said, ‘went over and above what was required of him’ when Kerrie Wooltorton was admitted to the Norfolk and Norwich University Hospital.

She had swallowed anti-freeze, but insisted she didn’t want to be saved. In her hand was a note which began: ‘To whom it may concern, if I come into hospital regarding taking an overdose or any attempt on my life, I would like for NO lifesaving treatment to be given.

‘I would appreciate if you could continue to give medicines to help relieve my discomfort, painkillers, oxygen etc. I would hope these wishes will be carried out.’

Kerrie Wooltorton who died at the Norfolk and Norwich University hospital after drinking anti freeze and leaving written instructions not to revive her
Kerrie Wooltorton, pictured with her godson George Miller, died at the Norfolk and Norwich University hospital after drinking anti freeze and leaving written instructions not to revive her

Those wishes were eventually carried out, to the letter – throughout the 37 agonising hours it took for Kerrie to slip away. But, initially, a second opinion about Kerrie’s mental state was sought by Dr Heaton as to what he should do: in other words, should he save this young woman’s life or not?

The medical director of the hospital was contacted. The hospital lawyer was consulted. Then, and only then, was the decision not to treat Kerrie taken, the Greater Norfolk Coroner William Armstrong told me this week.

In other words, as far as Dr Heaton and his colleagues were concerned, all the boxes had been ticked. Legally, anyway.

Had he and his team not respected Kerrie’s wishes, Dr Heaton argued, they could have opened themselves up to charges of assault. That’s the law, apparently – one which, to all intents and purposes, has now resulted in lawyers sitting in judgment on life-and-death cases in A&E departments.

Such cataclysmic developments should give us all cause for concern, and this special investigation into the circumstances surrounding Kerrie’s death will do little to allay the fears of those who believe a culture of ‘medicine by lawyer’ is beginning to prevail.

The case has provoked fears that ‘civilised’ Britain is moving insidiously into an era of euthanasia on demand. All but forgotten, it seems, by those at the centre of this tragedy is the central principle of the Hippocratic oath, which has guided doctors for the past 2,000 years. It is: ‘Never do harm to anyone.’

She requested pain-killing treatment and explained she had called an ambulance because she didn’t want to die at home alone.

The problem here is that she was young and physically healthy and her illness was a mental one.  There is a prevailing attitude that anybody with a mental illness who is suicidal isn’t in their right mind.  In fact, having a mental illness at all- which invariably clouds your judgment (as does pain in the case of terminal illness, but that’s different because death is imminent)- means that their wish to die shouldn’t be respected.  That people are always treated, always eventually saved, will always look back and say, “I’m so glad I didn’t end my life then”.

But that isn’t always the case and sometimes, ending your life is the rational decision you take, not the irrational one.  And as far as someone can demonstrate that they know what they’re doing, then their wishes should be respected.

The Hippocratic Oath is the tenet of practice in modern medicine but medical intervention can just be a sticking plaster prolonging the process of life without any consideration as to which quality of life the person has.  It’s the whole, “sanctity of life” idea, that, “Hey, at least you’re alive!”, without thinking if that life is worth living to that person.  Not everyone would choose life over death.  If they had intervened in this case, Kerrie might have just been on dialysis for the rest of her life, and possibly would have made another suicide attempt.

I know it’s all well and good saying, “might have been”, by the way. Likewise, you could argue she might have been okay, might have been happy. But she wanted to die, the doctors honoured her wishes and they shouldn’t be attacked for it as harbingers of moral doom.  It is far more respectful to actually give a thought to the individual person’s desires than to just treat them with the vague, hypothetical, “first do no harm”. And I think it’s everyone’s right to end their own life if they want.  It is their life, after all.

Anyway, excuse the lack of proper intelligent commentary here but I mostly just wanted to bring this story to your attention- what do you think?  Should the doctors have intervened and tried to save her life?  Should suicidal people be allowed to die if you can’t prove that they’re in their “right mind”?

Workshy scroungers redux

Hypomania is calming down. I am a little bit disappointed by the relative quietness in my head. This typing sounds like thunderclaps.

Anyway, hooray for the Conservatives, the new-New Labour.  First we find out that DLA is in danger and now they want to cut incapacity benefits and boot people onto JSA, which is already a criminally low amount of money.   Given the idiosyncratic and very-much-geared-at-physical-illness criteria for ESA in deciding who’s “fit for work”, let’s enjoy our final few months hating ourselves for being too mental to hold down a full time job so we can hate ourselves for being even poorer.

The Conservatives say they would pay for their £600m plan to “get Britain working” by cutting the incapacity benefit bill.

People on employment support allowance who are deemed fit to work would be put on the jobseeker’s allowance, reducing their benefits by £25 a week.

All incapacity benefit claimants would be assessed to see if they could work.

Robert noticed my worried face as I read this story and said, “It’s ages away and anyway, it won’t be for people like you, who have real illnesses and have the doctors and nurses helping you”, but it is for people like me, and for people like you, not just the famed, “dodgy backs” of Britain.  (Speaking of which, as I write this, I have a completely buggered neck I can barely move.  GIVE ME MONEY).  It’s not the first time someone has said, “Ah, but YOU deserve it”.  They can only say that because they know me well enough to know and see first hand how severely my illness affects my life.  I’m still judged unfit to work by the DWP but I’ll eventually be assessed and probably booted onto JSA.  I can walk, after all.  And people who do bullshit, like a certain someone I know who does the double (works and claims benefits) and who faked a panic attack at an assessment, should be pulled (and in her case, kicked up the hole although there are many people who are in such poverty that they claim benefits for the much-needed extra income, which is seemingly never addressed).  But the process for judging who is and who isn’t “deserving” isn’t just a medical one, it’s becoming a moral and social one.  The system is hugely flawed.  Have a read of the Benefits and Work forum to see actual examples of the judged “dodgy backs” who find themselves utterly fucked because of it.

I am aspiring to be in part time work by mid-next year.  Nobody, including myself, believes me well enough for it yet,  but I try to routinely do something (even if it’s just writing something by a deadline) to test myself and to keep busy.  I am meeting the therapist for an assessment on the 22nd so that might help, too.  But it’s besides the point.  There is a sour attitude towards people who are ill in Britain right now.  I feel like human flotsam, guilty for every single penny I spend, even though I worked and paid my taxes since I was seventeen.  Just force people into shitty, badly paid jobs and cut benefits to the point where there’s no financial gain to be had on them. I don’t even have the energy or the impetus to write about it.  “Benefit reform” by both Labour and the Conservatives have long since ceased to pretend to be humanitarian.

(P.S:  I should say that I am embarrassed to be writing this as I know some people reading will be thinking, “Get to work! There’s nothing wrong with  you!  You can type this, you have a life!”  which is a little internal prejudice against myself I hold also because my problems are mental and I am often ashamed of them.  Which I think says quite a lot about what “real” illness allegedly is

Lydia just pointed out how much she hates the, “what do you do?” question from people.  Ah, yes, me too).

Dos and Don’ts was nominated for a Mind Mental Health Media Award. Hooray!

Cheers, MHM!

Leading mental health charity Mind today announces the shortlist for this year’s Mental Health Media Awards, sponsored by Comic Relief and Shift.Terry Pratchett, Fiona Phillips and Alastair Campbell are among those competing for the full length television documentary prize, and the BBC and Channel 4 go head to head in many of the categories, with top rated soaps Eastenders and Hollyoaks battling it out for the soaps and continuing TV drama award.

This is the first year the prestigious event, which celebrates the best portrayals of mental distress and reporting of mental health in broadcast media, will be managed by Mind following its merger with Mental Health Media earlier this year.

Radio Drama

  • (BBC Radio 4)
  • Dos and Don’ts for the Mentally Interesting
    Uplifting factual drama based on 23-year old Seaneen Molloy’s acclaimed blog about learning to live – and love – with bipolar disorder.

Yay!

I am proud, though feel somewhat fraudulent (and I do find it tricky listening because of this) as the play was partly based on a relationship with Rob that is no longer (though it’s no-longer-ness does not negate its loveliness and immensely life changing importance when it was an is.  And he is still my much loved friend).  But!- it’s very very lovely that people consider the play to have raised awareness of mental illness.  I hope it did in some way. I never really know what to say about it because its existence at all is highly surreal! But I was very happy and proud to be involved.

So, well done to the lovely Louise Ramsden, who adapted the play, and Fiona Kelcher, the equally lovely  producer!  (And squeak! Jimmy McGovern is one of the judges!  Quake!)  I have no idea if we’ll win anything but it’s still rather nice to be nominated for something (last prize I ever got a plastic parrot that had been wronged by nature).

Also on the shortlist:

EastEnders (BBC One)
One of EastEnders’ most loved characters, Stacey Branning comes to terms with the prospect that she may have bipolar disorder, the same condition that her mother has had for many years.

Eastenders fans, what do you make of this portrayal?  A spiteful text was sent to Robert about it about the episode in which she was diagnosed. Watch it! I hadn’t watched it in years, but the texter clearly thought such a portrayal would, er, somehow unmask my own monstrosity and his lunacy at being with someone like me.  (You can read Robert’s not-entirely-serious ramblings at The Trap Box and decide who is the real lunatic. The answer is, as usual, neither).

What from I’ve seen, it’s been handled rather well.  The discussion with the psychiatrist raised both a wry smile and inspired a somewhat uncomfortable shifting in the chair from me.  TV drama tends to go a little overboard when trying to convey bipolar disorder.  The characters are usually jumping up and down and waving their arms frantically, or leaden with depressive paralysis.  But Stacey was agitated- that skin crawling, can’t sit still, can’t hold a coherent thought agitation that’s very familiar to me.  And her terror, having seen her mother go through it, and her denial, was quite an important point to get across.  Now she’s descending into psychosis.

I was a little bit pissed that the histrionic, “promiscuous” (I hate that word, I hate what it implies, I don’t believe in it, but it’s what Eastenders were scripting her as) character was the one who became mentally ill, and thought it might have been more effective if someone less stereotypically “mental” became so, but I guess it did illustrate the descent, the gradient, the tremors.

Anyway, what are your thoughts?

I’d like MHM to introduce a web category for outstanding websites and blogs about mental health.  I imagine it would be a somewhat impossible task to be representative, but a cursory look over —————–> shows that there’s more than enough to warrant such a thing.  (And on a side note, how pissed off does the woman on the banner look?  GERROF MY WEBSITE!)

And to say I have bloggers’ block right now is an understatement.  I might join the ranks of the uber-Web2.0 Facepeople and do a video post next time, providing I can somehow brush my hair over my face and talk from beneath the curtains like the Wizard of Oz.  I may be struggling with writing, but christ, I can talk. (Though cannot promise to be coherent or interesting since I have slept not-much of late and I am a tiny bit high and have been admittedly somewhat unstable lately.  I am managing though, just not very good at concentrating for long, or short, periods of time! So, er, probably not a video but I can try).

(P.S:  I got an indefinite award from DLA, which I’m guessing is due to the, well, obvious.  It’s been three years since my diagnosis and here I still am. Anyway, no sooner had I found out the happy news of not having to do the renewal form in two years, I discover that they’re thinking of scrapping the fecking thing! You gits!)

(P.P.S:  The Mentally Interesting community still lives at Ning! Go frolic! Or as best you can do on antipsychotics! Go forth and stumble!)

ARRRRRRRRRRRRRRRGH

-DELIVERANCE!  Literally.  DLA forms have turned up!

So, er, panic averted.  Anyone got anything nice to talk about? Read more »

A note

I habitually private/delete posts here that I consider too personal/too whingey/too directionless (on a blog like this, the criteria is rather… loose).  So if something you comment on goes missing, it’s not you, it’s me.

I got a few emails with my last into-the-ether post asking if they’d personally pissed me off.  No, and no-one ever has ever pissed me off enough for me to delete the post in a hissy fit.  So never fear!

So, some moaning to get out of the way:

I haven’t felt like writing in general lately so forgive my sporadicness.  It’s been like that for months, so.   I’m struggling so stupidly with writing that I keep finding that, when I do, I miss out words, spell things wrong and generally fail to find a flow.  I don’t feel like a good writer anymore, and I don’t feel like I have any of worth to say in this blog.  I’m so far unsuccessfully trying to boot my arse back into the habit.  That I am having such trouble with it has saddened me.  Blogs are often a good starting post to clear the blocks but this one, not so much.  I keep it deliberately focused on mental health and because I’ve been in a funk- both mentally and “creatively”- I haven’t really felt like writing about it.  There aren’t many ways to say it, unless I just post a picture of tumbleweed, like this:

That’s pretty much it.  I’m going to start a new, general blog in the hope of helping me regularly write again, and about subjects other than a) mental health and b) myself.  I could sit down with a Word document open but unfortunately it never seems to encourage that, “MUST DESTROY THE LOVELY SNOW WITH MY FOOTPRINTS!” feeling that I wish it did.  I might go through the comments on this post for inspiration.

I’m not unhappy.  I’m just a bit lost.

I’m still muddling through the changes of the past few months.  I haven’t felt like publicly talking about any of it.  A load of good things have happened too, but I am a screamy-tantrumy-child when it comes to change.  I need to think of the future, and I’m…well, yes, a bit lost.  Not entirely sure where I’m going in my life in general.  Vortexy, confusing.  And another reason I haven’t been writing here or in general is Life Stuff- I’m doing the Life Thing, living it, rather than blogging it.

Hope everyone out there is okay.  Once again apologies for not keeping up with people and being terrible at replying to e-mails.  I haven’t really felt like I’ve much insight to offer for some time now.

It has been a strange and difficult year.

BBC Ouch on disability

Hello!  Here is another article from me on BBC Ouch.  It’s about what I discussed here recently; feeling like a fraud in terms of “disability”.

Here’s an excerpt from it:

One night at the pub, I was emptying my pockets looking for my keys when it fell out. It lives in a distinctive orange wallet and has the words ‘FREEDOM PASS’ emblazoned across it. An acquaintance picked it up for me and cocked an eyebrow. “How come you get one of these?” he asked. I cocked an eyebrow right back.

“Because I’m disabled”, I responded. With a barely concealed smirk, he replied, in the laborious tone of disbelief, “But you’re not disabled”. And, although my social worker, the Department of Work and Pensions and Islington council, beg to differ, a part of me agreed.

Disability is defined as, “a physical or mental impairment that substantially limits one or more major life activities”.  Having a mental illness does “substantially limit” my life. There are times in which I barely function on any meaningful level. No one would look at me and guess that sometimes I need help bathing myself, or that there are times I can’t cook a meal. But I do, and there are.

And yet, even though I’m speaking to you from Britain’s best disability website (oh yes), I feel like a total fraud. I felt like a fraud when I was filling in my Disability Living allowance forms, I felt like a fraud when I was staring blankly ahead for the passport photo I needed to get my Freedom Pass and I felt like a fraud when I retorted to my friend. I just have a mental illness, and some people don’t even believe that mental illness exists. Though I live with one, even I question whether I’m ill or just weak. And when it comes to mental disabilities, many people may question whether mental illness counts as a disability at all. Why should I get a Freedom Pass? What do I know about genuine disability?

The rest lives here.

Sorry I haven’t written in here for almost a fortnight.  It’s been a busy one, although most of it has been taken up with carking Lemsip in a bid to fight off the ills.   I’ve been busy in the social sense of staying sober and sleeping in the sitting room trying to stop coughing,  but absolutely unproductive in every other sense.  I haven’t written anything in two weeks.  I need to get back into the habit of writing regularly before I surrender myself to utter uselessness.

In terms of mood, I’m going through one of those strange emotionless, spaced out phases which are neither noteworthy, nor easy, to write about.

Before I go, a relevant post on therapy

Hello!  Occasionally some posts, like this one, will be illustrated by the lovely Prozacville, so go and visit him and give him praise as you would a deity.

I am sick of having “issues”.  But here is a post moaning about them!  Delicious irony.

But ooh.  I had forgotten the (free and fixed) Macbook had Photobooth.  Here I am relaxing in my sitting room.  Not pictured are my chandelier, maid, cigar and rent boy.

Except I’m clearly not relaxing in my sitting room, as only maniacs can relax when a lens is on them, and I have in fact turned the Macbook upside down and that’s not a relaxing pose.  I also have silly hair.  I dyed it red and blue, which apparently means orange and green.  I like to think I look like I’m sporting beguiling autumnal plumage, and not that I just look like a twat that’s been left out in the rain too long.

Ah, an illuminating appointment with my social worker today, so, thought I’d write about it.  Long, self obsessed and introspective- you could say it’s a Classic Secret Life… post.  (And a caveat here: remember this is a blog exclusively about mental health.   Some people seem to forget that.  I do not go through my day to day life going, “ARGGGGGGGGGGGGGGGGGGH”.  I have other, more cheerful topics of conversation).

I’ve never really gone into detail about my now twice-monthly (or, as the kids say, “fortnightly”) appointments with my social worker.  They are mostly a bit of a chat, commentary on mood and someone for me to talk to.  She’s a lovely woman, quite clearly no-nonsense, which is sometimes appreciated and sometimes not (who doesn’t occasionally want a bit of, “Ah, there, there” and to just moan into your sleeve) and I like her.  The appointments are usually conducted in a small room with one window, and today there was the smell of cat piss emanating from…something.  I suspect it was me, since I’m not entirely convinced that Girl Cat hasn’t weed on the cords I’m wearing.  Then again, I didn’t really care this morning when I got dressed.  A cheeky sniff almost clears my name, but I have a bit of a cold so I may well infact stink of her waters.  My social worker insisted it was somewhere else in the room as, being a residential area, cats sometimes become cat burglars (a term which used to confuse me greatly) and pee all over the place before they’re shooed away.

She helps me with practical matters, and carried on my old CPN’s work in terms of benefits and housing.  But I can mostly do these things alone.  Okay, it takes me about three and half millenia to get round to doing it,  but I am fairly independent, as far as people within mental health services go.  She has been trying to sort out direct payments for me to study something, with both of us agreeing I need more structure in my life.  I keep- genuinely- forgetting to ring up, but I will tomorrow.  To be quite honest with you, I don’t particularly feel up to a lot right now, but I’d regret not trying, and it may well be good for me, especially with Robert going to university in October.  We could compare notes.

Today we discussed therapy, and why the person who makes the assessment had been unwilling to make an appointment with me.

I had therapy was last year, and it was CBT for body image problems (BDD).  I spent most of 2008 in a depressive stupor, indeed, I don’t particularly recall much of it.  Therapy started off okay, but I was already rather depressed, and as it progressed, I began to feel worse.  By the time of the fourth or so appointment, I was so depressed that I didn’t actually give a toss about my appearance, so it was difficult to engage with it.  What had seemed greatly important no longer felt important, along with everything else in my life.  So, the therapy ended.

It was assumed that the trials of therapy had worsened my depression.  The stress of looking inward and so on.  To this day, I still don’t think that was the case, but maybe there was something subconscious.  Either way, in September (or possibly October), I was prescribed Effexor, went loony, took a huge overdose and there you go.

So.  The Therapy Lady didn’t want an appointment for that reason, and also another reason, which is that she didn’t think I saw some of my problems as being part of my personality and that I only saw my problems as part of a chemical imbalance.  Ergo, therapy would not be helpful.

It is true that I have tended to be overly clinical about myself.  I am increasingly seeing myself as a whole person, with other problems, but for a long time, I was quite clinical about everything.  I saw my moods etc etc as being outside myself.  Which puts me in a helpless position, no?  Not entirely.  I have made the appropriate “lifestyle changes” to manage my illness- I didn’t drink for ages and am not doing so again, don’t take drugs, try to sleep, try to eat, avoid stress etc etc etc.  But…

Being diagnosed with bipolar disorder was a kick in the bollocks for me.  Who in their right mind (FNAR!) wants to be diagnosed with a serious mental illness?  It sucks.  It’s crap.  It makes you feel as though you have, “REJECT” stamped across your forehead.  The only way I felt able to cope with it was to see it in a medical sense, as an illness, as something outside myself.  Because if I thought that I bought this on myself, that it was my fault, that I was flawed and fucked up (which I do often think), I could not cope.  I would simply just not be able to face it.  Giving myself distance, writing about it, even sometimes coldly analyzing, was what I needed to do for a few years.  And I was rather, “Ah.  Well.  That explains an awful lot”.  And I should have been relieved, but I was devastated.

It was easier for me to see it that way.  I would not have come this far without that perspective.  It’s unhelpful for therapists, but I needed to face up to and deal with the other stuff in my own time.  I do consider bipolar disorder to be a chemical thing, by the way.  The chemical basis, if you will.

I have other diagnosed problems, namely body dysmorphia, bulimia and self harm.  My social worker mentioned that those things in tamden with bipolar disorder are not that common, due to the shifts in self perception and weight that comes with bipolar.  This is true,  but it still stands, although in terms of bulimia, I’d consider myself better.

That’s enough for me- I don’t really want more fecking problems, more diagnosis. I have trouble enough agreeing with the existence of the others.  I don’t want to be pathologised.  And, although maybe once I did see these things in isolation to bipolar disorder, I don’t think I do anymore.  As time has gone on, I’ve moved further and further away from defining by diagnosis, and thinking in terms of diagnosis at all.

Then she said the dreaded words- “personality disorder”.  My arse clenched right up.  You couldn’t have fit an atom up there.  Because I knew what was heading towards me, with the stinging predictability of a slap from a raised hand.  Borderline personality disorder.

Diagnose me with shit if it’s accurate.  Don’t diagnose me with inaccurate shit just because I’m a woman who self harms and has rapid cycling.  Borderline is one of those things nobody really wants to be diagnosed with because it is the equivalent of your doctor saying, “Fuck knows”.  I don’t want to be diagnosed with it, either, because I think it’s wrong. I was told I had “borderline traits” after an hour long appointment with a doctor in Haringey a week or so after I left hospital.  That isn’t a diagnosis, but I even disagree with traits. Read more »

24

Right, enough self pity for now! I need a self pity break.  I have one scheduled in my calender.  (This is not true.  The only calender I have in my vicinity is the Ramadan Countdown Calender.  It has chocolates.  It was a worthy purchase).

Tomorrow I am 24!  Or I could be 24 today, because nobody knows for sure when I was born.  You think my mother would remember me crawling out of her vagina, but apparently she doesn’t.  And I didn’t really crawl, I just kind of fell out.  On maybe the third or fourth of September, I was born in a lift.  Which gives me HILARIOUS ammunition when people chastise me for not shutting doors behind me.  Oh yes.

Anyway, for my birthday I got a ticket to Offset, in which I shall break my festival hymen.  (This post seems all about the vagina today.  Let’s see how many more references I can slip in).  So, that’s where I shall be this weekend. Before I go, I will clean my sofa cover as, due to an unfortunate incident with a bowl of cereal, it looks like I have pissed myself.

So, I’ll see you in a few days or so.  Have a good weekend chaps!  I’ll leave you, as usual, with an attempt to force my tastes down your throat.

Oh dear

What’s the most violently dispiriting thing about filling in my DLA renewal forms: that I have to write about my worst days, my calamitous failures, my frequent inabilities to do even the simplest of things, in order to keep receiving it to be able to carry on living in my flat (my entire living situation is dependent on the severe disability premium because I’m under twenty five), or that I have not lied once?

There indeed really have been times- and more than I would ever like to admit- that I have been so depressed that I haven’t peeled myself off my bed to go to the toilet and have just gone in a nearby cup.  And there have been times I have wandered the streets propositioning random strangers for sex.

Where I am right now is not that low (looking back on those times, I do not recognise myself in them, and at the moment, my mood is quite low but enough that I at least feel somewhat human) but I know and fear I could be there again.  But hey, achievement for the day, I finished filling the fecking thing in.  It took me months to feel able to do it but I did.   I hate, hate having to dance for money and I still struggle to see myself as someone “disabled” by something, even though going through the form truthfully kind of shows that I am in some way.  Still, Hooray for me.

(The problem is, I don’t think I have severe bipolar disorder.  I am not sure I have it at all).