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About Me

Hello!  This is the new version of this page.  The old version is here and is a bit more indepth.

Here is a self important FAQ for you.

First of, this blog is almost solely about mental health, rather than a day to day blog.

Who are you then?

Hello!

Well, the long story is here. Here’s the short story.

I’m Seaneen, a twenty four year old Irish girl, originally from sunny West Belfast in Northern Ireland. I moved to London when I was seventeen, and currently reside in North London with two cats.

I’m 4ft 11″ tall (I gained two inches being measured at the doctor, much to my shock) with “…” insert colour of hair here. I dye it a lot. I’m pale, with cold hands and feet. My style is “charity shop” and if you were waiting for the “chic” then don’t hold your breath. I’m a big old leftie and an atheist, if you don’t mind a bit of pigeonholing.

This is my face:

I like reading, photography, smoking and comedy (such as The Day Today, Brass Eye, A Bit of Fry and Laurie, Saturday Night Fry, Not the Nine O’Clock News, Monty Python, Peter Cook and Dudley Moore, Eddie Izzard, Bill Hicks, George Carlin and such).   I like music, too, particularly The Bonzo Dog Doo Dah Band, The Divine Comedy, Vivian Stanshall, Neil Innes, Manic Street Preachers, Kate Bush, PJ Harvey, Suede, Pulp, PiL, XTC, Dory Previn, David Bowie, Mansun and larks. Oh yes.

I have four siblings and only one of them is remotely normal. My dad died of alcoholic liver failure in 2006, so there’s also a lot about alcoholism on this blog.

I am a writer and spend my spare time insulting the cats, smoking, forgetting everything (especially the lyrics to songs, about a decade of my life, the ability to respond to emails, what I said when drunk and people’s names) and drinking tea.  When I’m not writing here you may find me writing at BBC Ouch and One in Four magazine.  This blog was also made into a play for Radio 4, called Dos and Don’t for the Mentally Interesting.

I know your name!  Shouldn’t you be careful in hiding that kind of information?

I get asked this a lot, as I’m very open here about who I am. I am Googleable, if that’s a word, and sometimes I am a bit unnerved that people can find out so much about me before they even know how to pronounce my name.

Although I went through that period of, “Mentally Interesting Over-Identification” when I was first diagnosed (i.e talking about it constantly, reading too much), I generally don’t introduce myself with, “Hey, I’m Seaneen, and I’m manic depressive…” But… I have this blog, which kind of does that for me!

I am open about who I am here.  There are a few reasons for this. The first is that I don’t want to be an anonymous person with manic depression. I want you to understand and know the person behind the illness. I also don’t want to add to the stigma of suffering from mental illness by hiding behind the internet.  I don’t have a little shell protecting me from you.  I want to show people that the stereotypes attached to severe mental illness are simply not true.

I do have a severe mental illness that affects my functioning but I’m also a living, breathing person, with faults, and follies. People with mental illness, like people with any illness, are not a faceless crowd of dribbling fashion disasters. Being mentally ill is not rocking back and forth all day.

Having a mental illness affects an awful lot of my life, but it doesn’t make me more creative or gifted than someone else, nor does it make me more violent or criminal than someone else. People with manic depression are not all geniuses, nor are they all total headcases.  They’re just people.

So, you have manic depression then?

I do! My clinical diagnosis is Bipolar I disorder rapid cycling with psychotic features. This means I have what some would call classic manic depression (I prefer “Manic Depression Gold”), with alternating periods of mania and depression and both of them encompassing psychosis (delusions, hallucinations, paranoia and the like). The rapid cycling part means that I have frequent episodes with little or no gaps in between when I’m “normal” or euthymic. In my case, I tend to “switch” from one episode into another. They’re not always extreme but they are continuous, which is kind of like jumping from one patch of quicksand to another. I’m also a frequenter of the peculiar hell of mixed episodes.

Like a lot of other people with manic depression, I have other psychiatric problems, like the little fish drifting alongside the big blue whale.  In my case, I also suffer from Body Dysmorphic Disorder which is FUN!  I did CBT for about a month but was ironically too depressed for it to continue.

Aaaaaaand finally, I have issoos with social anxiety, bulimia and self harm, although the latter two are largely under control, so hurrah there!

My diagnosis of bipolar disorder came after a period of hospitalisation. Naturally, I didn’t believe them and sought a second, third and forth opinion.  I had been diagnosed with a “mood disorder” when I was 16 and given carbamazepine, but, neither knowing what a mood disorder nor carbamazepine was, I didn’t stick with either.

This entry goes into more detail concerning my treatment.

What led you to being diagnosed with this?

In short, I had a complete psychotic breakdown and was hospitalised. In long, read this.

It wasn’t out of the blue, I’d been ill for years, rather badly so since I was around twelve. I was first diagnosed with the vague term “mood disorder” when I was sixteen.   I didn’t receive the concrete, staggeringly obvious diagnosis of bipolar I disorder until 2006.  I’d been suffering from fairly extreme manic depression since I was twelve.  My teens, they were… interesting.

Like a lot of people who went quite a while before geting help, I was Proper Mad for a good long time, up until my early twenties (very early, about aged 20).  I had very little insight into my mental state and was extremely reluctant to get help.   When I did flirt with the idea, I took medications for about two weeks before never been seen again.   I was massively distrustful of the medical profession.  I thought they wanted to drug me into numbness and HEY!  I’m a writer!  I NEED to  be totally insane!  That old chestnut.

Some people ask me why I take medication- believe me, it was my last resort, not my first.  I had to be dragged screaming.  Literally, because, like many before it, it took a hospitalisation before I accepted help.

I’ve always been a very manic manic depressive.  I suffered through very frequent and very extreme bouts of mania (and dysphoric mania), which nearly always progressed into psychosis.  Consequently, I’ve said and done some downright bizarre things in my life and depending on when you’d met me, you might have dismissed me as a loon.  A charming loon, but a loon nonetheless.  I lost a good ten years to being undiagnosed and without insight.  I don’t remember large chunks of my life.

That is difficult to cope with.   The unsung impact of extreme episodes of illness can be memory loss.  There’s probably a good hundred people out there I should be explaining myself to, if only I could remember what I did!

I’m not a different person to how I’ve ever been.  I’m still, well, a bit odd,  just calmer, with more self awareness and less extreme mania.  The medication is worth it.  For the most part, my medication controls mania.  I do still get mixed episodes and hypomania but haven’t walked down the street declaring that people worship me for a while now.

Now it’s the depressive part of things that is a total pain in the backside.   I’ve also seen more doctors than I even knew existed.   A few of them have been weird too.  All shoulder pads and tiny notebooks and speaking to me in a very slow, studied way.  Hmmmmmm?

You’re being treated, I guess?

Yes, I am. I see a CPN weekly and I take medication. It took me a long time to get here as I was bustled around the incompetent edges of the mental health system for ages. Now I am in good hands and I’m on medication that is slowly curbing the worst excesses of my condition. Having competent medical care makes all the difference; my current CPN is extremely helpful.

I’ve taken a lot of medication and I’m at that crossroads now in deciding whether it’s worth me taking anymore as, so far, two years into treatment, I’m still not stable. I recently had an Effexor induced flipout which landed me in hospital.  I am one of those very lucky manic depressives for whom antidepressants are probably off the menu.  It means I’m fairly screwed when it comes to treating the quite crippling depressive side of my illness.

I’m currently taking Seroquel and seeing what happens, as I’m out of mood stabilisers, and antidepressants are by now the worst idea ever, but in the past few years I’ve taken Lithium, Depakote, Olanzapine, Risperidone, Effexor, Seroxat, Setraline, Zopiclone, Lamictal, Haloperidol (in hospital) and a few others.  Yes, I do rattle when I walk.

How does it affect your life? Why do you let it?

By reading this blog, I hope you come to find the answer.

It affects my life in pretty much every way you can imagine. And, although I sometimes think of the positive aspects of this illness, it’s kind of messed up my life so you won’t find much, “Hurrah for bipolar disorder!” here. It’s wrecked absolute havoc on my relationships, my jobs, my finances, my having somewhere to live and torn through my family and pretty much everybody who cares about me.  Recovering from this, attempting to find a middle ground, as I am trying to do, is taking a long, long time.

It tosses up my energy and makes me very inconsistent. During times of depression, I have little energy, sleep too much, suffer from anxiety and panic become paranoid about leaving my flat and withdraw socially. In my most severe episodes of depression, I have become psychotic and suicidal. During hypomanic, manic and mixed episodes, the paranoia is still there, but coupled with mad irritation, anger, rage, grandiosity, aggression, a total lack of sleep and inhibition. During those times I have far too much energy and nobody can really follow me so I am hell on wheels to be around. Again, in my worst episodes I’ve ended up suffering from psychotic stuff.

My memory is utter toss and I kind of put this down to manic depression. I don’t have solid memory of any of my manic or severely depressed episodes. Week to week, with fluctuating moods, my memory is pretty bad, too. I don’t recall verbal things very well. I can’t properly recall either the good or the bad, and I have to write down things a few times and keep them in prominent places or I will forget them.

I must stress, though, that although I do suffer from mania, increasingly, it’s not the much famed euphoric kind. Oh, don’t get me wrong, I have believed I’m famous, penned novels and attempted to seduce half of Britain in the throes of euphoric mania but in general, my upswings are bitter and peppered with irritability dysphoric manias. They frequently leave me more suicidal than even my most severe depressions. So, not fun.

I have rapid cycling, which is irritating.  Part of my personality is that I’m mercurcial and moody but there’s moods and there’s moods.

I think of mental illness as akin to a physical one; it is something that I have, rather than something that I am. Nothing happened to me to make me have manic depression, likewise, I did not do anything wrong to get manic depression. It isn’t a case of “letting it” affect me; mental illness is like any other type of illness, its effects tend to be uninfluenced by your own desires. If you had cancer, you could not stop its ravages by whispering, “Stop” to it. Only medical treatment will do that.

(You just compared mental illness to cancer! How could you? Well, it may be a crass comparison, but if you consider the mortality rate of mental illness- for example, 20% of people with manic depression commit suicide- you’ll see that it’s not all that crass).

Many mental illnesses, manic depression included, are thought to be biological in nature. Episodes can be influenced by external circumstances but can also be caused by nothing.

One cannot switch into an alternative mindset by wishing alone. It’s an illness that will affect your life and if it’s messing your life up, you need to treat it, in whichever way; with medication, therapy or whichover other methods you want to try, such as meditation.

However, I do try to help myself. I take my medication (most of the time), I try to get sleep, I eat healthily and I try to avoid stress as much as possible. I’ve swotted up on mental health and know more about manic depression than I really should. I try to stop episodes before they become unmanageable and my boyfriend helps in that sense.

My life isn’t awful. I have good friends, I love my family, I have an extremely smashing boyfriend. Living with this illness is very hard, though, so I won’t bullshit you there.  I’m not “mad”, however.  I’m sensible, eccentric, shy, creative, clumsy, a bit dense sometimes, and restless.  Just mentally ill, too.  It’s rubbish sometimes, but there it is!

How does your medication affect you?

Let’s put it this way; I don’t have many late nights. I take an antipsychotic and until recently was also taking an antidepressant and a mood stabiliser.  I can become tired very easily because of it. I am useless in the morning and covered in bruises from banging into stuff.

They affect my concentration quite often. I feel nauseous for a few hours after I’ve taken them.   I have tremors, i.e shaking like a twig in the wind.  In the morning my speech is slurred.  I can also be, let’s say, uninhibited?  after taking medication.  It’s a good thing I live alone as I have often been caught walking around naked and drugged in the past.

The biggest and most irritating side effect from my medication was weight gain.  As I also suffer from BDD and an eating disorder, this was bordering on intolerable, and I gained three stone in as many months and weighed almost 13 stone.  A lot of people will find that side effect particularly hard; it is the medication, it affects your appetite and your blood sugar.  I did lose the weight and now weigh a little above 8 stone.  It’s not impossible, so stick with it if you can and don’t lose heart.

I also can’t drink, so I’m a teetotaller. Not a very conducive combination for a killer social life, then.

I think I/a loved one has manic depression/I’ve just been diagnosed. Can you help?

All I can say is take any concerns you have to a doctor. I can give advice regarding that, but in no way can I diagnose you or tell you if you do or do not have manic depression. Manic depression is a spectrum illness and it varies greatly in severity and only a trained professional can diagnose it.

One thing I will point out, though, is that having “up” and “down” periods in life is normal. It is when these periods severely affect your life or become suicidal/psychotic that you have a problem. Simply put, mental illness is normal moods and emotions taken to extremes. If sometimes you feel energised and awesome, and sometimes you feel like crap and it isn’t interfering with your life, don’t worry.

If you are diagnosed…

Firstly, doctors are fallible, and get a second opinion if you want.

Being diagnosed with a mental illness can feel like a slap in the face.  Taken from the most literal point of view, it is, “There is something wrong with your mind”.  Our minds are us, so that can be a staggeringly hurtful insult.  Who wants to be ill?  Okay, it’s good being different, but ill?

There is also the age-old terror of the treatment taking away who you are.  And I’m not going to lie to you- it does affect you.  In the early stages of treatment- especially if you’ve been advised, and agree to, going down the medication route- you’ll probably have to take a few different medications before you find out that helps.  The side effects and the just-effects can be really hard to cope with.  Initially, most psychiatric medications will either slow you down a lot or speed you up a lot.  They can affect your cognitive functioning.  If you take antipsychotics, prepare to sleep.  And if you’re like me and used to being a fast talking, restless spinning top, it’s galling to be told to slow down.

The slurry-speeched slow/fastness of the medications does become less intense as time goes on and you find an equilibrium.  If you don’t- and it is notoriously difficult- then it’s time to adjust doses or change medications.  But do give them a chance.  They’re not going to change who you are.  And if you find that they are, then it is completely your decision whether or not to stay on medications.  But be careful, either way.

It’s up to you whether or not you want to tell anyone, but I’d at least tell your nearest and dearest.  They might be relieved, they might be confused.  Either way, it’s their responsibility how they feel, and not yours.

If you need to take time off work or school, it may be best to be honest.  In the immediate aftermath of diagnosis, you might have a lot of appointments to go to, just to sort stuff out (psychiatrists, therapists, psychiatric nurses or social workers, for example).  However, I completely understand the desire not to tell them, and the fact that there is a massive amount of discrimination against mental illness doesn’t help.  You are covered by the Disability Discrimination Act.  See Rethink’s website for help.

And I’d advise you to read up on it and ask others to do the same.  The links on the right there are a good place to start.  Knowledge is power, although try not to start printing out everything you find and pasting it on your walls then praying to it night after night.  That’s a bit weird.

So, this blog then. Whyfor? Aren’t there enough mental health blogs out there?

There are loads, and some are very good. I thought I’d add my voice to the chorus.  Who doesn’t want a Northern Irish foghorn, eh?

I started this blog in 2007, initially to chart my progress. I’m a writer so this is a good dump for my scribblings on the topic. I keep this blog to serve as a link to myself and my illness, to make sense of it all. I keep it up because some people find it helpful. I also find mental health fascinating and never get bored writing about it. My readers and commenters are cool people, so I’m glad I started this blog.

So, that’s me, then, nice to meet you!

73 Responses

  1. I came to your blog through Mood garden.

    I live in Belfast. I have never lived very long anywhere else.

    My name on moodgarden is Marilla

  2. I ran across your blog while doing research on alcoholism. Your story is very interesting and you write in a mind captivating way. I do believe you would make a greater writer. I’d read your book. Think about it…

  3. HEY, I HAVE RELATIVES IN CORK,MEATH AND DUBLIN. NEVER FELT SORRY FOR MYSELF, JUST KNEW I WAS DIFFERENT. HAD 2 SISTERS 1 BROTHER. THEY ALL THOUGT I WAS TOUCHED BY THE DEVIL. MY MOM ALWAYS SAID I MADE HER SKIN CRAWL. IM 39 NOW. THANK THE LORD FOR PROGRESS AND WORD OF MOUTH. KIDS LIKE YOU WOULD REALLY BE SCREWED WITHOUT THE MORE OPEN UNDERSTANDING AVAILABLE. GOOD LUCK.

  4. Hi Seaneen,

    Thanks for your kind comments on my blog. I bumped into the link for your site via Salted Lithium.

    You do write beautifully, and your honest account of your illness is really humbling.

    Adding you to my feedreader and looking forward to reading more.

    All the best.

    x

  5. Hi Seaneen,

    I’m fumbling about on this entry trying to find out how to pronounce your name and thought I’d leave a proper hello.

    So hello to Seaneen and all of her readers. I’m Mike. I say things when I shouldn’t.

  6. instantly mad about you!

  7. Hey Seaneen, I hope you are feeling ok today. Some one who I love has battled with this for years, I know how hard it can be sometimes. If it helps, they have been ’stable’ for sometime now and have accepted that a regular needle in the bum is better than the chaos and mayhem of their extreme highs and lows.

    God bless, may your talent with words serve you well

  8. Hi. I really feel for you. I’ve recently found out I’m Bipolar I. But I’m also 26 and I just had my first full-blown manic episode (with psychosis) this year. Up until then it had only been depression and mixed episodes (those are the best, aren’t they?) So I really feel for someone who has had so many manias by your age. You can at least be grateful you live in the UK. Living in the states, on top of everything I have the stress of never being sure if I’ll be able to get treatment.

  9. Hi Seaneen. I ran across your blog today while looking up local resources to deal with my BP2 disorder. Not sure how I ended up on a UK blog, but I am glad I did!

    I was diagnosed just shy of 3 years ago and am suffering through my first episode of depression/anxiety where I am completely unable to work. I identify with your words and am glad that you have taken the time to share what you have to say.

    Thank you. :)

  10. if i met you on the streets
    i’d run up to you and give you a huge understanding hug.

  11. I really have to bookmark this site, I like your style. I too am bi polar, manic depressive, rapid cycler, mixed emotions. I hate when the two come together and you are off in a corner laughing your ass off one minute and sobbing uncontrollably the next. My Father was bi polar, my daughter is, fathers sister, nephew on fathers side. I have a site on this illness also…endlessdaze.com
    if you ever want to peek. Good luck, keep writing. I will be back.

  12. I have been reading your blog for a while now, and I really enjoy it. So much so, that I decided to start up my own. Keep writing, and keep well :-)

  13. Bravo to you. You are an extraordinarily brave woman. I battled depression for a very long time and quit college because of it; I also did not want to admit I needed help. I will continue to read this blog regularly, please update a lot.

  14. I just got my diagnose a few days ago, after a life on valium, pain killers and anti-depressants. I my own terms, I am criminal, sadistic, anti-social, paranoid and scared like fokk, shaking like a leaf every time I hear a new voice. In medical terms; Bi-polar 2. How cool is that? Exactly as cool as you describe it!
    I love to read “fucking angry” posts and articles written on bad days and you´ve sure had a few of them. Put your thinking down on a paper and get it printed, or even better; script a documentary! You have the talent and bollocks to put the right words on the wrong feelings. Cheers and thanks!

  15. Hey Seaneen,

    Nice to read a concolleague’s story (ies). I always like to hear (again and again) than I’m not alone. I’m still awaiting the soothening effect of doing so haha.

    I’m 26, diagnosed BP2 accompanied by borderline tendencies, living near the beautiful Amsterdam. I’ve just started lithium, still building. I take antideppressants as well.

    Nice blog, thanks. honesty is appreciated.

    O, I have an idea, maybe if al the readers organise their mania at the same time, in summer, and we visit London. Sounds like fun. Hmmm, i think my deppression is lowering!

  16. Hey Seaneen,

    I came across your blog by following a long chain of bloggers with mental health issues. I’m not DP but have undergone a serious bout of clinical depression, so I can’t say I understand what BP is like, only that it must be hell.

    Your blog is well written and I’m enjoying reading it.

    All the best :)

  17. hi seaneen –

    i’m looking forward to reading your blog in the future. i too am a 22-year-old female diagnosed with Bipolar (and, predictably, other messes of the mental kind). I really appreciate your openness about your illness – I have yet to blog about mine, and I’ve known for nearly a year now. Thanks for setting an example for me!

    Cheers from California,
    Suzanne

  18. i found your site on my” favorites” on my computer. i know my daughter placed it for me to find, perhaps she is trying to tell me something through your site.
    my daughter ,26, lost her father, my estranged husband, very recently to kidney/liver failure. he was 48. as in your case mental illness/addiction runs through both sides of the family.

    i hope that if my daughter believes / has been diagnosed as being bipolar or manic depressive she is seeking help , i hope she also learns that she needs help with her alcohol abuse.

    it’s important that she realizes that the mental illness/addiction that runs in our family can and has been treated succssfully.i hate that my own battle with addiction has scarred my daughter but it does not define me and my daughter needs to know that my struggle is not a weapon she gets to use against me .
    i have done all that i could do to help her deal with her father’s death.
    it was a terrible end to a wasted life. my daughter needs to understand that.
    i carry a lot of guilt for allowing my children to witness the abusive/dysfunctional relationship i had with their father.

    Perhaps because of that guilt, i tolerated the disrespectful way my daughter treated me and her brothers and sister. long after their father had left.

    i was wrong to tolerate her bad behavior and negative attitude. it is a poisonous way to live. it is how her father lived.

    i can’t understand why she has chosen to emulate her father’s attitude. he was never a happy man and he could have been. his untimely death does not change how he lived his life. he blamed his father for all of his faults and problems but never accepted his own responsibilities as a father.

    if my daughter reads this and i hope she does, i want to let her know that i love her more than she could ever know. i am more than willing to help her, however, a diagnosis of manic depression or bipolar disease does not excuse her cruel actions. i cannot tolerate her abusive behavior any longer. i don’t deserve it and i will no longer accept it. i want her to know that she broke my heart and i pray that she is getting the help that she needs.

    • Dear Karen-I read your story and it touched my heart.When I told my only son, I had b.p. he also used it to torture me, blaming every thing I ever did or said, on it. Then he, his wife & my g-kids deserted me. Instead of embracing me with understanding, and love, the way I raised him-hate and re-coil took over.Well the jokes on him, because after all the things I now know, about b.p., all the ’signs’ that were there that I didn’t see….I know now…….he has it too.Only he doesn’t know it yet. I pray for him,to return to his funny, old self-and for him to tell me he loves me,and I pray for all of the hurting moms’ and victims that we are.and that b.p. is never to be used as an excuse to break some ones heart, or abuse them. Don’t take it -stand strong.your’e worth more than that.

  19. Hi Seaneen,

    Been reading round your blog for a few days. I know you’ve been told this, but you’ve got some serious writing talent. =)

    My name is Ellie, I’m 18 and living in Belfast. I’ve had depression numerous times; lately these episodes have been interspersed with periods of high-energy, totally-uninhibited behavior and very little sleep etc. I don’t refer to the above as mania because my GP bristles every time I suggest it. He’s never seen me ‘up’ because when I’m like that the last thing I want to do is see a doctor…

    Anyway, I’m struggling through the NHS in N.Ireland, trying to get them to take me seriously. I’d really appreciate any advice you have for getting them to listen, because at the moment it seems I am going to have to actually throw myself in the Lagan before anyone even considers that I might really be feeling *that* bad and confused by my extreme and rapid mood swings. At the moment I’m on some waiting list to see a psychiatrist in about a hundred year’s time. >_<

    Anyway, your blog is pretty inspiring stuff to me at least. Thank you for writing it.

    x

  20. Seaneen-By the way, keep up your writing! Totally great and honest and straightforward. And good luck with your depression. I hope you will be able to conquer it some day. I ended up here while looking into dreams and mental health. Maybe you might find some answers there for yourself. I am going to check out my dreams and see if I can help myself. If I find that it works, I will let you know. Take care.

  21. Updated this page, sorry Tony for nicking your FAQ idea.

  22. I hope you might consider some alternative methods of treatment.

    Duane

  23. This is an amazing piece of work this blog, it’s just astounding….methinks you are destined for great things!

  24. i came across your blog looking up meds
    very interesting i might add
    you seem like a very smart young lady
    keep up the good work!

  25. I found this blog on a google search and boy am I glad I did. I thought I heard someone mention it in a free chat room.
    Awesome read!

  26. i am so glad i found your site

    you are so young yet so insightful about both your condition and the way your condition is treated

    my son was diagnosed with bi polar 1 with psychosis 19 years ago and has been in the psychiatric system for that time

    he doesn’t have your insight and in the past has come of his medication just at the time when it had taken effect and he needed to continue with it- he currently has a 100 mg depot each week of depixol – a small dose – he has been on larger doses and many other antipsychotics in the past-he was also on lithium for a time which gave him a very good quality of life for a year but also serious side effects and he came off it and
    for about ten years he has used street drugs to control his symptoms and currently smokes £10 per day of heroin and 70 mls of methadone to keep him stable- this has never increrased and does actually help though i had to go on a steep learning curve to accept their use and understand his need for them and that mental health professionals themselves know of many patients who use these drugs to dampen down their psychoses where legal anti-psychotic drugs do not.

    i am not suggesting that you go down this path- my son has many convictions for possession of a class A drug.

    my family have been through hell with this illness and because my son’s father has a similar tendency to mental ill health though not as serious[ we split up a long time ago ] he does try to help from a distance but can’t deal with the everyday issues which arise

    i have four other children who have all suffered through my sons behaviour , though they are now as adults able to reflect on their brother’s illness and see it and him with more compassion

    my son has spent some time in prison for non payment of fines [ 3 weeks] ,a year in psychiatric hospital as well as shorter term admissions under a section, and tried to end his life three times about five years ago in the same period . his quality of life can be said to be very poor and because of his vulnerability often gets exploited by others around him

    the reason i am contributing to your blog however is twofold- yes you write amazingly well- you are talented- let this help you to deal with your illness and make a living

    and to also tell you about an entry i read about epilepsy and bp disease i encountered on your website

    as a child my son was epileptic – maybe lasted about five years all told – and as it was the type known as petit mal was not treated with any of the medication available and i was advised it would clear up in the course of time and i should not worry. as my son is also extremely intelligent and was progressing well at school and the sleep time absences receeded i did indeed think that he was in fact recovering by the time he was 8 years old. However his behaviour then became a little bit OCD and he would spend hours getting ready for school washing his hands[ thats when he would go in the bathroom at all because of becoming contaminated] and would exhibit other odd behaviours. Still i did not worry unduly about these as i thought he would grow out of them with support, which he almost did , but there remain some vestiges of this even now.I didn’t connect these to his epilepsy at the time.

    what i came to think over the years however and especially as i reflected on his illness and the lack of clarity the professionals had about how mental ill health can occur [ and at the time the theory that the home environment caused mental illness was gaining ground ] was that actually all these aspects of my sons behaviour and his illness are linked and that his illness is actually biological in origin and that his childhood epilepsy was the onset of this

    however there has only been one psychiatric health professional who has ever been interested in taking a history of my sons life and trying to understand the connection between the way he is now and how he was as a child-

    she them precribed him some carbamazapine to supplement the anti psychotics and his mood did change considerably for a whole year [ this was when he was in the hospital long term- not the same year as taking lithium ]

    unfortunately as is often the case when my son was discharged he came under the care of another psych who took him off the carbamazapine as there was “not enough evidence that it worked”!

    if he had wanted to i would have pushed to get this medication represcribed but as it was my son had put on three stone in hospital and attributed it to the carbmazapine- and he quickly wanted to lose it

    over the years i have become the expert about my sons illness and the only one who can provide continuity of information to the various professionals involved yet only once have i ever been asked seriously for a history to support a diagnosis

    when i read the entry about epilepsy and bp i was elated not because it holds out a cure for my son but because a patient had taken the time to research the potential relationship between the two conditions,and often all the great break throughs which come about in any walk of life are discovered or revealed by people who are most closely involved with them [- this can include dedicated professionals too] .

    so i am urging you to carry on with your blog

    i will contribute with any information i can

    i did write to louis appleby the mental health tzar in england to discuss the issue of using opiates in the treatment of mental illness but of course he is limited by his profession in what he can condone or discuss publicly

    and i want to say to you -you are your own best physican – stay conficdent in that- and thank goodness for an open and free internet

    best wishes and love

    hope you are getting some relief at the moment

    liz xx

  27. Hey!
    This is strange, I found your blog through someone I know in RL just tonight, but I read it religiously around March/April 2007 just after I’d been diagnosed (obsessively researching anything bipolar related)- I think I stopped just about the time you were moving out of where you lived with your boyfriend? I have no idea why I stopped reading but it’s nice to have found you again.
    Jennie
    x

  28. Your blog is what I wish my blog was.
    Seriously. I can’t wait to sit and read the whole thing, top to bottom left to right.

  29. I stumbled across your sight on accident. A good accident I might add. I am 38 and was diagnosed with bipolar 18 years ago. Actually I have had it my whole life. However, when I was a child…..they didn’t believe children could have this mental illness.

    It does take time to come to process the fact that one has this illness, let alone get treatment for it. When we are in our twenty’s we think we are invincible. I applaud your knowledge of Bipolar and the other ticks that come with it. Not many your age embrace reality and face it head on!

    You have described emotions that I have felt most of my adult life. I am married and am a parent, those added to Bipolar Disorder make it even harder. (sometimes a trip to the hospital can be good to rest and refocuse).

    Again, Thank you for being brave and sharing. I hope many young people……well people of any age with or without the illness can learn from you.

    Willow

  30. hey, i’ve just found your site after searching for help with mania- i think i am in the grip of one! and want to find advice on how to chill a bit. I made right tit out of myself last night mania and alcohol are not not good.

    ponypip x

  31. great blog, great title.

  32. i see you have the atheist out campaign logo there … would be happy to publish ur story if you feel like doing the interview at my blog

  33. Just wanted to say that your blog is informative, intersting, and insightful. Kudos!

    It’s always nice to read something that makes you feel less alone…Thanks for sharing.

  34. You are a gifted writer.

  35. Thank you for the blogroll! As per my comment on my blog back to you, I am very flattered. You have reciprocity and are on mine as well.

    Cheers,
    PA

  36. Hello – thank you. My husband (been together 17 years) has had bipolar disorder since he was a teenager, but only diagnosed two years ago.

    He believes he can keep a handle on his moods and has refused all treatment other than citalopram. So there are times when he gets badly depressed or totally manic and he’s often ended up in A&E, been treated by the duty psychiatrist and then when he feels better flunks out of any further treatment offered.

    I love your writing – I write too but found it too hard to write about my experiences of living with someone who has bipolar, so I admire, not only the honesty with which you write, but for the understanding and insight you’ve given me into how it really feels. Hopefully I can try to be a more understanding partner.

    Thank you for sharing it.

  37. i love the name of your site. i was recently diagnosed as bipolar after i had a psycotic break. as i have began to feel better and more “normal” i have been able to admit to my psycologist how abnormal my thinking was. waiting outside to meet my next.. contact. aranging stones as a signal to “them” whoever that might be. i’m on seraquil and it seems to be working well for me. my breakdown was terrifying. i have been writing about it on my blog. but thankfully my symptoms seem to be under control. except for a little sleepyness in the morning and a bit of irritability. i have to start expressing how i feel verbally instead of bottling and then lashing out.i have 4 good reasons to stay on my meds and not give in to the call of the psycosis. my wife and three small sons. if it weren’t for them i’m not sure i would have wanted to come back to reality. life was just way too interesting.

  38. I have suffered from several depressive episodes, and this recent one has led to me trying to kill myself.

    My doctor suggested that she thought I might be Bipolar, so I am being referred to a Psych. ANyway I heard you on Radio 4 when I got back from docs and wanted to say I love your blog!

    I don’t know if I am Bipolar- we will see, but I certainly want mental health issues out there, so people undestand them more

  39. I read your blog after listening to health matters, my only experience of dealing with mental health problems is seeing patients attending the Emergency Department I work in. I think your story is so interesting, it provides me with a reminder to remain understanding and as helpful as I can be when patients with mental illness attend in a crisis.
    Though your life seem difficult at times I hope you make it an enjoyable one. Some of the greatest individuals in history had mental health problems, so though it may be hard at times you can still make a fantastic contribution to society.

    • Dear Andy-thank you for being in the right field at the right time.Your beautiful empathy, towards people with mental disorders,is astounding in this day and age…..Doctors, (if your not one) could learn from you.Oh, I forgot to tell you………God reads this website——-so the next nice thing that happens in your life, might be a special gift for you, and your kind heart, from him—-bless you, and all that are like you..

  40. I’m sorry.

    I’m just…sorry.

  41. No idea where to put this but I just wanted to say thankyou for being there x

  42. Seaneen,

    Have been reading through some of your blog entries just found it tonight. i have to say honey im really proud of you. the way you have grown throughout the years that have passed since i saw you last.
    you are an inspiration to many and long may it continue. keep up the great work love.

    all my love

    Caitríona
    p.s i still feel a great sence of pride to have had you as a friend xx

  43. Thank you Caitriona. That made me quite tearful! I hope you’re okay!

  44. smile- ling

    now

  45. hi great story.

    your right to compare bipolar to cancer. I work in medical research, looking at bowel cancer. Bipolar is one of the most complex diseases known… the exact cause is very elusive to current science. Our knowledge on cancer is far superiour, i hope more attention is given to mental health research in the future.

    btw i was diagnosed with anxiety 7 years ago

  46. You are inspiring.

  47. Hi. I live in East Belfast and I’m 18. Last year my Father was arrested for downloading child porn from the internet. Ever since then my moods have been ridiculously high, with me talking rubbish to strangers and singing and laughing at nothing. They have also been horribly low, with me unable to get out of bed and not having the will to wash myself (disgusting I know!). I am on anti-depressants, but they seem to make the highs higher. I go to a therapist and he said this;
    “You have a type A personality. The depression comes when you burn yourself out, from being high”
    Not only was I offended at this (i.e. this man is telling me I am (*insert all bad things here) simply due to my personality). People who are around me however, describe me as having no inhibitions and as “bipolar”. I am upset and confused about all of this. I want this to go away, whatever it is, because I feel like it ruining me life… help?
    xoxo

  48. Thank you, I have read lots of your blogs and can identify with all of these, I have ben having these “episodes” since I was 21 and I am know 31. I just thought I was alone mad and most of the time have bee living my life in a distressed uncontrollable state.

    I have a 4 yr old as well so days when I don’t want to dress, wash and get up, I have to and force myself as I am scared that they will take away the only good thing in my life. Although I have attempted suicide 3 x before my daughter was born, I lve with these thoughts everyday but can’t do anything because of her!

    I have not been diagnosed that will be happening on Fri, thank you. Your blogs are helping me to not feel alone, at the moment I am sick of getting phone calls af are you ok? I just want to scream what do you think? Of course I’m bloody not, then they would be upset and angry as they just want to make everything better.

    xx

  49. Great blog! I just added my voice to the mental health blog chorus, as well. I’ve had a major depression diagnosis for years..but now starting to think it’s maybe Bipolar 2…somewhere along the spectrum. Thanks for having such a wealth of information. It feels good to know you’re not alone.

  50. Recently I’ve been diagnosed as being bi-polar. I had a major episode in 93 (head voices, colours changing, religion! etc) when I was in Japan, and in January this year quite a major one. I’ve been on anti-depressants before this and now it’s lithium carbonate and others. I’ve been to both ends of these moods so I can understand where you are comin from. I hate the bottoms and fondly remember the energy of mania.

    I think the way you write is brilliant: it’s as though you are speaking. It’s very informative and also its very funny at times.

    I’m from Liverpool originally but now live in Australia. You can see me, if you want, if you go to my blog via Madam Miaow’s comment’s page.

  51. I had to catch up with your blog after listening to “Dos and Don’ts For the Mentally Interesting” on Radio 4. We are poles apart in age (I have just turned 50) but have so much in common. I am amazed that a 23 year old lists Monty Python, Peter Cook and Dudley Moore, Bill Hicks, The Bonzo Dog Doo Dah Band, Vivian Stanshall, Pulp, XTC and David Bowie among their likes – all heroes of mine too. If I could ever write a piece as brilliant as Sir Henry At Rawlinson End, I would die a happy man. Of course, it goes without saying that I have bi-polar disorder. I saw my first psychiatrist at the age of ten, but wasn’t diagnosed with bi-polar until three years ago. It came as something of a relief to be honest – I thought I was just mad. In truth, I am not so keen on labelling mental illnesses (in my view everyone is mentally ill to some degree) but it does at least give something for others to hang their hats on. I am mostly plagued with depression, but I have also had some spectacular highs. These have usually ended with me losing whatever job I held at the time and then closely followed by a rapid downhill run on the mood roller coaster. Fortunately, I always managed to creatively re-engineer my CV to cover these downfalls and get back on the employment merry go round after a suitable period of recuperation. This all came to an end when the last three jobs ended in 18 months, 3 months and then 4 days respectively before I flipped out and become an immobile, irrational and suicidal depressed wreck. It was then that I was diagnosed with BP. Anyway, I don’t want to prattle on for too long, but I thought I would just say ‘Hi’ and that I will be a regular blog follower from now on.

  52. Really enjoyed reading about you.
    If you like you can take a look at my website http://www.bddhelp.co.uk
    All the very best,

    Emma x

  53. Hey Seaneen!

    Lovely blog this, really helpful. I am 24, my mum has been diagnosed with schizophrenia and I understand your thoughts. I often feel as if I am on the border since I have severe memory losses and suffer from depression many times with difficulty to concentrate. Your blog, in many ways, is a big help in understanding what might be going on! Keep writing! :)

  54. i wonder if the reason you are struggling is because something in your childhood hasnt been dealt with?
    i have been diagnosed with several different labels but that is just how my brain developed and coped with sexual abuse. ive tried all the meds and done all the treatments. they have never helped. i decided to just take a healing path.

    i think youre an amazing woman and very courageous. The stigma to mental illness is similar to the stigma of poverty and abuse. you are helping change that by bravely sharing your journey.

  55. Hi Seaneen, found your blog as I was searching around the Bonkersfest sites and have enjoyed reading your story. I believe that childhood sexual abuse began rewiring my brain in a way which enabled me to cope with my life at that time. Was diagnosed with depression in 1971 (I am 59) and have struggled with mental distress throughout my life. Diagnosed Bi-polar almost three years ago, and initially felt relieved, explained my extremes of fluctuating lows and highs, and my increasing inability to deal with ‘life out there’ until I discovered that I was now considered to have a degenerative brain disease, and ALL that I am is now to be viewed through a bi-polar lens, and that it is considered that people with any of these ‘disorders’ will never recover and will need to take lifelong medication. Well, I thought, BALLS to that! This did not fit with my feminist and spiritual beliefs about the causes of mental distress. The ‘psychiatric prof’ tried to get me to take lithium, BALLS to that. I have consistantly throughout my life refused any meds treatment. I Began googling and found Eco-psychology. Most excellant understandings about the causes of mental illnesses, I was DELIGHTED.

    As for being MAD! you bet I am, MAD AS HELL about the state of the world, the suffering, oppression, poverty, greed, violence etc etc. The great shock to me is that not more of us are mad. How can people remain sane in this appalling world we have created where we live in fear of each other!!!

    Anyhows, being diagnosed enabled me to look at my mental distress in great depth and to begin to use what i know helps me to remain balanced. Take care of myself, my health, my diet, and most importantly, be very very careful who I let into my life and who I spend time with. I do the things which I am passionate about, paint, read, write, sing. If I have a more serious episode I know that what i need is peace and calm and people around who understand and love me. I am fortunate to have three amazing kids (all adults now) and a few excellant friends.

    More and more people are now being diagnosed with bi-polar and other DISORDERS, even young children!!!! its just crazy, they exhibit their grief and pain, extremes of emotions, high and low, and are now being labelled!! WHO IS IT WHO IS MAD! Pretty soon we will all be diagnosed with some disorder or other, there are now hundreds of so called disorders keeping a huge multi billion pound industry in business.

    Howandever, I am not knocking people who do take meds and who do believe in these diagnosis, we each need to do what we feel is best for us, and hopefully the choices we make are informed choices. A book I would recommend is Alternatives Beyond Psychiatry, very interesting range of views and experiences of mental ill health, medications, alternatives, recovery.

    I admire young people like you who are so open and willing to share their stories with others, this is what we need, to get it all out there in the open, to put right the wrong facts, to reduce the stigma, and to give hope that there can be recovery. Just a quick mention of something scientists are calling, neuropasticity, research shows that the brain can indeed alter and change, recover, even from schizophrenia, hearing voices, tumours, trauma to brain through accidents. See (steven@vermontrecovery.com)
    Ok thats me done, didn’t mean to write so much, got carried away, as I am prone to do, I hope this helps some people out there. I am firm in the belief that mental distress is a natural response to human suffering. On finishing I will offer the wisdom of many years of struggle and living through traumas, abuses, addictions, self-loathing, fear, etc and it is this, Listen to your inner voice, inform yourself, there are many viewpoints, many alternatives, google everything, read everything you can on these disorders, and Seaneen, bless you my dear, may it go well with you. Blessed be, MoMac.xxxx

  56. Just stumbled across you!

    I’m 29, rapid cycling bipolar II. I’ve only been diagnosed for six months, still trying to come to terms with it all and sort myself out a bit.

    Even though I’ve only skimmed through many of your posts so far, there have been so many times I’ve read something you’ve written and gone, “Oh, god, yes! I know that one!”

    Anyway. Great blog. Consider me a new fan. :o )

  57. hello ..im richard …i found your blog cus it was linked to my song ‘ kisses moi non plus ‘ just thought id say hi …

  58. Bloody hell your only twenty three! You writing makes me forget

  59. Many,many hugs. I’m a bper classic :) I come from a family of bpers and am in America so I’m a member of NAMI which is an online support group that I love and hate depending on what time it is. I’ve done every med there is so I definitely understand the ups and downs. Cheers to you and here’s hoping you ride the wave(manage the intricacies of our conditions) with skill with every year.

  60. Hi Seaneen,
    I was fascinated to read your writing, as well as the other blogs. You are obviously highly intelligent, insightful, and full of life, despite all your problems.
    Most of your concerns (as well as those of the other bloggers) are from the viewpoint of a bipolar sufferer, and mainly involve the problems in living with it, plus attempts to alleviate them. But there is also a huge group of people, who, although not BP afflicted themselves, are directly affected because they are close to others who are. These relatives or friends can have their lives seriously disrupted, and develop mental problems of their own.
    I have BP sufferers as family members as well as friends, and have developed some ideas that help me cope . I wrote a small book about it; called “The Crashing Ego”. I would like to know where to get a copy of yours.

  61. Hi Seaneen,

    You have a marvellous way with words, and I appreciate the way you talk about mental illness. You don’t self-indulgent or self-pitying like some people can, although you describe your condition with sensitivity and great insight.

    I suffer from almost exactly the same thing you described – I have rapid cycling bipolar disorder with psychotic features. Like you, it’s almost wrecked my life in many ways but it doesn’t define who I am. At the moment I’m also on Seroquel, and I take Epilim and Citalopram as a mood stabiliser and antidepressant.

    Your story is really inspiring and your optimistic outlook gives me courage. I hope you continue writing x

  62. Good morning Seaneen and thanks for your easy reading and informative blog.

    I’m guessing you have quited hardy inner city cats what with all those insults you’ve been dishing out.

    I hear fish oil of the EPA kind can do wonders for depression and the like so i’ve decided to try it and forgo fresh breath – hands up if you take cod liver oil?

    It may also do wonders for your relationship with your two cats and even help you to remember those damned song lyrics and names! Whatever happens, your joints will serve you well in your old age.

    By the way, what are those Norf London moggies of yours called then?

  63. Your courage is admirable and inspiring. I should strive to be as honest as you are with yourself & your readers.

  64. Hello!!

    So nice to meet you, I, well as my daughers, and other relatives, have been diagnosed with bi-polar disorder. With it, for some of us, there seems to be an odd connecttion to seeing the future… So crazy… to be sure… I’ve just begun my story; http://beyondthepurplesky.blogspot.com/:
    I am manic, and psychic, and bound to who I am. I’ve been labeled bi-polar, and accept it willingly. Oh, the meth seeming induced spells that saturate me, immediately procceeding the visions…Have you experienced such an episode? Just curious. Love your blog so much!! All the best,
    Melody

  65. Hi,
    I am “acrosss the pond” and I thank you for blogging so honestly. I don’t hide the real me very often so PEOPLE get used to it!

    I have a bipolar type 2 disorder. My brain would sometimes like to kill me so suicidal ideation is a frequent state of my mind.

    If a CPN is the same as a NP (nurse practitioner) mine rocks. She is a true partner in this illness of mine. Long live the CPNs of the world.

  66. My partner was diagnosed bipolar, then schizophrenic. I looked after her for years until her illness sort of took her off to live elsewhere where it is impossible for me to live with her.

    No relationship problem though other than the illness interfering in our lives.

    I still look after her a bit from a distance and we have the best of relationships; but the illness has also completely trashed my life as well as hers and left me the single dad of a now eleven year old son I look after full time.

    So I understand a lot about BP and schizophrenia (which my own mother was also diagnosed with).

    Your blog is brilliant. Your writing is brilliant (I earn my own living from writing) and your blog obviously helps people – other BP sufferers in particular – to understand things a bit more. Keep it up and go and write some novels.

  67. I have been reading your blog for a few hours now, and I love it. I have the same diagnosis as you have, atm I’m even taking the same medication, and reading this was like coming home. I write about bipolar disorder and mental illness in general on my Norwegian weblog, and work as a writer as well, so I can’t help feeling related to you! (c;

  68. the fact that I see a lot of myself in this article makes me smile.

    i’m becky, btw. rapid cycling bipolar ll. more down than up, i’m still under the impression that my mind is trying to kill me.

  69. I know you clearly said you were an athiest, but that doesn’t matter, because atheism is illogical. There is no way to disprove the existence of God. You are either a “strong” atheist, or a “weak” atheist. It is literally impossible to be a strong atheist, because if you were a strong atheist, you would know for a fact that God does not exist, and the only way to know God does not exist is to know All Things. So you must be a weak atheist. Based on your beliefs and values, you have made the conscious decision to believe there is no God, even though you don’t know for sure whether or not you are wrong. Which leads to my point. Faith in Jesus Christ for Salvation originates from a single confession. What if I were to tell you that Jesus has the power to heal you from your mental Bipolar disorder. That doesn’t mean you’re never going to feel depressed ever again, but your you will know for a fact that your mind has been healed. The uncomfortable weight you carry with you will be lifted off permanently. You will feel released and set free for the first time in your life. Let me tell you that Faith in God is not based on evidence. It is based on experience. Are you willing to experience the power of God in your own life? God wants to take your hurt and sin away, and He will!… that is, if you will fall before His Son’s Cross, and repent. You may have a lot of fan mail, but are you really happy? Have you ever considered that a mental illness can also be influenced by demonic forces? Did you know that Jesus Christ is Alive, and that He has the power in Himself to free you from every torment you go through behind closed doors. There are many things about your life that you don’t even share here. Only God knows the intents of your heart. He came to heal your broken heart if you will invite Him in. Turn to Christ, and be delivered.

  70. Shawn can I ask what’s happening in your world that you would come onto a persons blog, question the persons choices, then go on and such about God and atheism?

    If truly your God and Christ know Seaneen’s heart then why are YOU worrying about it? Does your God not have the strength to manage her on his/hers/its own? God can supposedly make billions of solar systems and universes but needs you personally to speak for the grain of sand that is Earth? Really? Seriously?

    Now a saying for YOU:

    If you do not tell the truth about yourself
    you cannot tell it about other people.

    ~ Virginia Woolf ~

    Now Merry whatever and think about letting God do his/her/it’s own d*mn job. Give the divine the strength and force you pretend to believe in.

    Seaneen,
    You’re awesome.

    oh and ps to Shawn-if you want to preach get your own blog and do so.

    Thanks in advance.

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