Control- Or, Why I Haven’t Written a Book

People ask me why I haven’t written a book. And because I promised to clean the kitchen earlier, I’m going to sit down and tell you. And it might sound really pretentious. In short, I wasn’t mentally or emotionally capable of writing a book and dealing with the fall out. In long…

I actually had a literary agent in 2009-2010.  A proper one. I met her by accident. She casually emailed me, having found this blog, to ask me in for a chat. So I went.  I’m always up for a chat. I will speak to anyone. A beautiful office off Leicester Square, with this beautiful woman,  bare feet under her desk.  I didn’t think the chat was an interview. I went in there with talc all over a skirt and unwashed tights. I talked about writing a book, maybe. I’m a writer and I want to write a book.  Writers write books. Semi popular bloggers write books. I didn’t actually realise she was a literary agent- or the director of the company.  She was both.  She was one of those women who awe me- tiny little scrawler, benefits crawler.  She was disarming and friendly, wickedly funny and clever, and believed in me. I hoped we’d be friends.

I remember running out of the office to Robert, in blinding sunshine, skipping and dancing. I was going to write a book!  I would do what I had always wanted to do- be a writer, a REAL writer. Not just a blogger, not just someone on Facebook.  I could write a book people keep on their bedside table like I kept, “The Bell Jar” on mine. To find comfort in. I might even get a little advance.  We walked through rich London, past restaurants off-limits to patchwork stigs like us. I held his hand and pointed at menus.  “One day”, I said, “We’ll get dressed up and I’ll take my advance and we’ll eat in here”. It felt like I was entering a whole new world.

It never was, of course.

The agent was lovely.  She sent encouragement when I flagged (often), once even a box of fancy tea and biscuits, which was utterly appreciated because at the time, I could afford neither (fancy or otherwise). I felt cherished- when was the last time I felt like that?  I took the impoverished writer thing and ran with it. Or lurched. Because it’s hard to write a book when you haven’t got the distance from yesterday.  I could put my thoughts down- even use my blog- and be honest. But honesty is terrifying enough when you’re writing words you can hide.  Ones that are published, in ink, and can never be hidden? Pulped, maybe, but read.  In someone’s head, inaccessible to me. I can’t say, “But…”

Then my diagnosis was changed by my psychiatrist to borderline personality disorder. It sent me into a tailspin, because I had spent the past 4 years on a punishing regime of medication, trying to come to terms with things, medication I apparently didn’t need, terms which apparently were not mine to accept. My CPN had written letters about it. In retrospect, it was the best thing that ever happened to me.  I’d gone there to talk about stopping medication. He approved and the predictable happened. But what I also did was realise I had a lot more control over my situation that I had thought. I’m not saying everyone does. But I did.

I had relied on the bipolar crutch too often. I knew what everyone wanted, the, “Bipolar Memoir”- the most saleable of things. I didn’t want to inadvertently speak for a community I maybe wasn’t even part of.  Highs, lows, glamour, despair- but above all else, blameless. It’s a precious identity. This outside thing. You are the centrifuge. And that wasn’t me. Maybe I still had the bipolar aspect. But what I had ignored, always, painstakingly ignored, was that I had a lot of trauma. Festering memories. Pain, scarred all over my body. Things which I minimised but which were hurting. And the BPD diagnosis made me look at them- really look at them.  It was time to deal with them.  And I did, and eventually I stopped self harming. All of my BPD aspects disappeared (whether age, or insight, who knows). My moods didn’t, but it was still a win for me. To face it all, and still be facing it. Crushingly self aware in many ways, infinitely more anxious in others. But I am a person. Neither borderline nor bipolar was who I was, who anyone was. I am a person and not a set of diagnosis. Not a set of symptoms. I have a history and a future and it’s not all there in a few words. Not even in 100,000.

And at the time, I didn’t feel like I could write a book anymore, when I hadn’t come to terms with those things myself. Things weren’t as simple as I had thought they were.  Bipolarity was half the story. Maybe not even half.  These weren’t just things that happened to me. They were things that were happening to me.

“Can I fictionalise it?” No, because I am the product.

How much of yourself can you give away? How much can you believe your life is fundamentally interesting? How much can you sell?

So I couldn’t write a book when I wasn’t sure myself of what my story was. When I didn’t want to sell myself. There were things I wanted to put down, so much. I wanted to write and write about my dad. The good and the bad. To immortalise, somewhere, somehow, somewhere else than our brains and our increasingly mosaiced memories.  He existed, look! He was here. We are here. I wanted to write about West Belfast. The oddness of growing up in the shadows of a mountain and the British army.  Of having parents with mental illness. Of being working class. Underclass. I wanted to write about the silly things. The annoying things. They things that make you a person. It’s what everyone wants to write about. If it was just those things, I would have written it. But my narrative, my, “angle”, was never clear cut. No-one’s is. And at that time- 24, before I began to really get better- I didn’t have the distance, the objectivity, or, in fact, the balls. 

If I wrote a book, I could never go back. It would be there, forever.  These kind of books require confession. And how could I confess to sins I didn’t know I had committed? I didn’t want to be unfair to my mum, or my siblings, or my family. To my relationships, to my past, my present. It was very much not the right time. I couldn’t write a book that I could never take back, and I couldn’t write in the state of mind I was in, which was always worse than I let on. Those people who are not people, but who are ideas of people filtered through me.

So I didn’t. The agent and I lost touch- she probably exasperated by my flakiness, which became total inertia.  I couldn’t lose the control I had over my own story. I couldn’t submit my history to editing and blurbs. Because it is so dreadfully important to me to have that control. I have this space. I can be uncomfortable in others. I don’t get Twitter sometimes- the flying of the deleted tweet unnerves me. I’m not good at brevity, I can’t do 140 characters, and all my views are grey, not black and white.  These are my words, my thoughts. Ones I’ve had to reclaim, from the child telling her teacher she’s being bullied, to the teachers telling me I’m too ill for school, to psychiatrists reframing my experiences in their language (mania, hypomania, depressive, panic disorder etc), to the government telling me I am worthless, to relationships telling me what I feel is wrong when to me, just feeling is so important and the most integral part of being alive, of wanting to feel, to argue, to talk and talk and talk.

I have regretted it, lots of times. Sometimes I think what an opportunity I wasted. I’d happily take Clare Allen’s job. Self consciously, I have always thought of myself as a writer and always wanted to be one. And I could have been one- and how would the back sleeve have looked then? A smiling face, a glorious kitchen. A fallacy. I wasn’t recovered- not even close. Mad people are only allowed to write retrospectively. Not while being mad. What kind of blurb would have stood astride it?

I’ve seen friends of mine (talented, hardworking friends) become Proper Writers and feel as though I’ve been left behind. Wasted the one big opportunity I had, in the world of Proper People. Probably desperately uncomfortable, probably desperately alone. With a book that was false and awkward. But with a book, with a book…

Now? I could probably write a book. But over time, I have come to appreciate the aspects of my life I don’t write about here. Don’t want to. And you have to. When I started blogging, the confessional was something new. It’s everywhere now, this instant feedback on your life. Sometimes unwelcome. Sometimes asked for.

I still want to be a writer. I have no idea how. Nobody is interested in me now. Nobody would want to be my agent (which I would need as I am horrible at self promotion). Maybe the time has passed. “The Secret Life of a Late Twenties Charity Worker”. That kind of kills, in some ways. This is my life, nearing 30, and I’m not a writer yet. But I still do a lot of what I love. I am glad that I didn’t write my 2010 book. How would I have ended it? It wasn’t the end. It’s not the end.

Dear Edwina, Thankyou for last night. I hope it was as good for you as it was for me. #bigbenefitsrow

Mentally Interesting:

I love Jack Monroe.


Dear Edwina;

It’s 9 o clock on Tuesday, the morning after the night before, where we were both on a panel on The Big Benefits Row on Channel 5. I haven’t watched it back, I was there, and know what I look like when I’m angry.

I need to get this out – because it’s everything I wanted to say last night but couldn’t, as I kept being rudely shouted over by you. Honestly, my three year old behaves better than that. At least he knows that when Mummy does her ‘will you just be QUIET and LISTEN to me’ then the best thing to do is to stop running your mouth and let Mummy say her piece.

But you didn’t. Because you were terrified of what I had to say.

I wanted to say, when asked by Matthew Wright, that poverty is almost indescribable to someone as blinkered as…

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Self conscious post

This is a self conscious, “Ooh, I have a few new readers at the moment and it might be a bit depressing round these parts so here’s something silly at the top” post. It’s been a tricky year but 2014 will be better.

In the meantime, you should listen to this song.


So once again, I am attempting to get off Quetiapine.  Oh so many reasons (weight gain, think I might have developed diabetes, flatness, spending ALL my spare time sleeping, not being sure I have manic depression, not being sure I believe in manic depression actually existing), but the biggest one being I don’t think I need it. My psychiatrist agrees with this. (Although recommends keeping an, “In Case of Emergency” stash). It’s been six years on varying doses. I am doing it sensibly this time- i.e titrating. Everyone around me, including my manager, knows what I’m doing. I have gotten down to 100mg and so far:

I feel like I am permanently on the edge of flu

I am itchy as fuck

I am feeling overemotional and tearful and hypersensitive

My brain is racing again and I can’t concentrate

I keep getting electric shocks in my hands

I feel nauseous and my appetite is decreasing (the latter is good, I have gained 5st in a year on the higher dose).

My sleep is fecked- I am waiting up constantly but still feeling drugged when I wake up (I slept well yesterday though, but that was an ills exhaustion-medication combo)

I just don’t feel like myself.

I thought this would get better, as it’s been a few weeks, but some days are worse than at the beginning. I think this is also partly because my immune system is a bit fecked right now so I’m picking up the ills along the way.

I don’t know whether to credit Quetiapine and other medication with my stability these days, or to credit getting older. Was I ever ill in the first place? Or was I just young and someone who had gone through a lot of trauma? As I’ve grown older, I have begun to accept- painfully, often- the trauma I’ve experienced and realising it’s had an impact on me.  I haven’t had a, “(hypo)manic” episode in about 2 years. I had a depressive one a year ago, and it was pretty bad, but in general, I am just an anxious, analytical person.  I am always a little bit hyperactive or a little bit low, it’s what I’m like. I do realise my sustained, “episodes” deviate fairly markedly from my, “baseline”. I do know they come out of nowhere, and I know what that suggests. But either/or, I don’t think any of that is bad enough to warrant taking medication for the rest of my life. For a long time I have thought that, and have begun to think that the medication is keeping me unwell.  Not in an anti-psychiatry way, but that the side effects are outweighing the benefits.

25mg is the dose I am dreading. That’s when total insomnia will come and I’ll have no choice but to power through.  The last time I got there, then 0mg, I had rebound psychosis from insomnia and it was quite scary. The police had to be called because I thought our house was being robbed and barricaded myself in a room. I felt almost instantly okay again when I took 400mg and slept for 2 days and I hated that.  I hate that my normal is being drugged up and exhausted. I hate that my normal is knowing, every day, I’ll probably die 20 years younger than most people I know because of my medication and its effects.  I just don’t want to do it anymore.

I am slightly afraid, though. Afraid of all my emotions pouring back and of not being able to cope with it.  I do think my medication has helped keep me sane over some of last year’s trauma, because they held me in numbness, suspended me in fatigue and flatness.  Maybe all the years. The flood that might be coming terrifies me. But I’d rather be drowning than be alone, forever and forever, on my dry little island.

I’ve gotten off Lamictal and Prozac already- wish me luck.

Panic- fun and games in the back of an ambulance

Hello, been a while since I updated here. I’m pretty knackered!

News for those wondering- I didn’t win the Mind digital award, which I didn’t expect to.  Thank you for your good wishes, though. It was won by the lovely Charlotte, who thoroughly deserved to win. I still had a fun night, and when the winner was announced, I could finally go for a wee I had nervously held in for hours. It was good.

I had a bit of a shite experience last weekend.

Continue reading

Now that’s weird…

…I didn’t actually publish the, “Now I Am Six” blog post from earlier- I have no idea why it did publish.  It’s from May 13th….EXACTLY 6 months ago…

Totally freaked out! Wah! Ghost blog!

Let’s be clear – Tory and Lib Dem MPs have decided terminally ill patients should work or starve

Mentally Interesting:

This government is inhuman beyond parody. There should be riots in the streets about this. What is happening to us?

Originally posted on Pride's Purge:

(not satire – it’s ConDemNation today)

Back in 2011, Conservative and Liberal Democrat MPs joined together to reject an amendment which would have exempted terminally ill cancer patients from benefit cuts.

They decided that if you are diagnosed with a terminal illness such as cancer – but have been given more than 6 months to live – you will have to work or starve.

Here’s a previous blogpost about that:

The government has finally done something so outrageous even I can’t be bothered to satirise it

This decision by coalition MPs was so outrageous that after intense lobbying, there were some concessions made by the government.

However, in a bizarre piece of upside-down DWP logic, it now seems that if you have less than 6 months to live – you will be refused benefits.

This is from the Chester and Ellesmere Port Foodbank blog:


Jenny came to the…

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