Slight Return: The Unexpected Consequences of Recovery

Hello!  Two posts in a day, whoops!

There’s something I really want to write about, so I’m sneaking in to do so.   Wearing a wig and a moustache, so, er, hello, I’m… Pawneen.

So.  I have declared my recovery.   What I didn’t declare was, “BUT WHAT THE HELL DOES THAT MEAN ANYWAY?”  Do you ever really recover from a mental illness?  I’ve been told since the beginning, the dawns of time, the stale air of the psychiatrist office that bipolar disorder (yes, it’s official, folks, again, apparently) is a lifelong illness that cannot be cured, only managed.  My general attitude, as a mad and at the time, undeniably emotionally unstable twenty year old was to howl and then resign myself forever.  Well, it was after the prerequisite six months of exhorting them all to go fuck themselves and that there was nothing wrong with me.

“But!”, psychiatry interjects, “many people with mental illness go on to live full, productive lives!”  My reaction to this was along the lines of, “Who-outside Wikipedia entries and the occasional BBC documentary- goes on to live full, productive lives?”  The models thrust forth to me were people with enough money and such a background that they could enjoy the luxury of bouts of illness without homelessness-causing, life-ruining consequences.  The people I met were people who, like me at the time, were on benefits.  And- Pawneen, you should have borne this in mind-under the care of the community mental health team.

I saw people moseying into the sunset on television, and tripping face first into the grave in my real life.  From my dad’s death from alcoholism, to my friend Vicky’s suicide, to my other friend Brendan’s accidental overdose after his brave (and yes, it was brave, he faced it with bravery, and wit, and charm and brilliance, for he was witty, charming and brilliant), “Fuck you” to alcoholism and depression.  They were the models in my life and I resented the implication that they had somehow failed because they died.

This notion of what it is to really be ill has leaked into my views of blogs as well- including this one.  Sometimes, I’ve thought, “If we’re really that ill, how come we’re writing blogs?”  That’s a bit of a shameful thought because it buys into the cliché that everybody ever with a mental illness is rocking back and forth and dribbling down their hairy chins.  It isn’t true.

People have written to me saying, “You don’t represent people with manic depression!  You do this, or that! You’re too well!”  For one, I never wanted to, nor did I ever try to.  I used this platform to talk about, and I used the fact that people responded well to this blog to speak out about mental health issues.  It always irritated me when people said that.  I would also never exaggerate, ruin my life or be more ill just to give people something more juicy to read about, or to justify my existence as a mental health blogger.  Image is not everything and hell, in this case, that’s an extremely dangerous way of thinking.

However, I do understand where they are coming from.  Because I feel that way every time I read an article on body dysmorphic disorder.  It’s always the same- stunningly beautiful woman, in the stunningly conventional sense of what beautiful is, hates her appearance and indulges in the glorious ritualistic anxiety-induced behaviour that BDD entails.  I read them and find myself thinking, “Oh, for god’s sake.  Another gorgeous woman with BDD.  What about the people like me, the ones who aren’t beautiful and who are fat and odd looking and genuinely Not All That?  I’m sick of these gorgeous woman being the face of this disorder!  I’m sick of them using people who look like models to illicit maximum sympathy!”  Then I end up in the bathroom staring at the one acceptable mirror in my flat wondering why I’m not beautiful too. (As an aside, despite the fact I’m very much better in my BDD-esque rituals- as in, I leave the house these days before six hours of make up and panic attacks have elapsed-I still only use certain types of mirrors that are either dirty or broken and none that show anything more than my face or parts of it at a a time.  Kind of like a jigsaw)  God, I can’t even do BDD right.  If I’m not gorgeous enough to have BDD, then maybe I am just that ugly, that it’s not delusional.

It’s a moot point, though, because at least it’s being written about.  It matters because at least now someone reading that article knows what body dysmorphic disorder is.

So, there is more than one face of mental illness.  It isn’t just suicide or complete, sunshining recovery.  There’s the middle ground.  That’s where I am now.

I am nowhere near as unwell or oblivious, moody and erratic as I used to be.  The last proper swings I had lasted a few months each, and from then I’ve mostly been “normal”. I’ve been depressed lately, but it’s not been that severe, and I think it’s because of the stress of my college stuff not being sorted, moving and money.  This has, in part, clarified my diagnosis.   My moods go from (hypo, because I don’t consider the months last year to be a full manic episode)manic to depressed, then usually a bit of normality, and there you go.  It happened last year, very sharply and very clearly.  After the depressive episode that followed my summer high, my mood levelled out to fairly alright.  And then I became stressed and depressed again, but having gotten the stress in hand, I feel better.

I manage, though.  I know what to do when my mood starts climbing and falling.  The falling is rather less easy to manage, because what I do to make myself feel better is deprive myself of sleep, which leads to the climb… You get the idea.  But in general, I manage.  My moods also aren’t as severe as they used to be, and this is in part because I tend to act quickly when they start to go awry.  Depression is harder because I still don’t think taking antidepressants for more than a month or so is a good idea for me.  They make me go a bit mad.

Over the years of growing up from a teenager to an adult, I have learned more about myself and more what works for me in managing my illness. I’m not so dogmatic.  I don’t think psychiatry has all the answers. I don’t think there’s a pill to fix my problems.  I don’t think manic depression was my only problem, either.  I’ve worked on those, and I’m doing fine.  At some point, I realised that there was a lot I could do for myself that had nothing to do with doctors or nurses or antipsychotics.  And I know now that moods happen and if I have a turn it’s not solely down to being ill- there’s other reasons and things I can do about them.  And there is a big difference between a depressive episode in me and being down because of something.

I stick to the mimumum of medication, using it only when I start to become high, to knock myself out and get sleep, which tends to help a lot.  If I took the whole shebang once more- depakote, Lithium, Seroquel, an antidepressant- I’d just be off and on them.  The side effects would be too difficult for me to cope with, and I’d stop taking them, and the merry go round would begin again.  This is just me- it’s not the case for everybody- but I’m a short woman who despises sleeping a lot and who absolutely cannot manage to wake herself up before twelve or thirteen hours have passed.  It doesn’t work for me. There’s a chance in the future I will be back on more medication than I’d like, but I’ll deal with that if it happens.  The general rule is that if I start shaking and I get racing thoughts and start becoming belligerent, it’s time to medically induce a coma for a few days.  I know stress messes me up and I try to keep a handle on it.

I think I expected too much from treatment.  I thought that, VOILA! a few pills later, I’d be fine, normal, stable and happy.  I thought that I’d never have a mood swing again and become someone who could forget they were ever ill at all.  I am happy, mostly, but the illness itself has left its mark.  Although I consider myself to be somebody who has recovered from the worst aspects of this, there are little things that recovery emcompasses that I’d never have considered.

I still can’t read.  My concentration seems to be permanantly shot.   I haven’t read a full book in some years.  My concentration is good for not much more than an article.  I was hoping that my ability to read was on holiday, but no, it’s sodded off and is making a wonderful home somewhere else other than my fractious self.

My memory is still faulty.  It’s still awful.  It was awful when I was very unwell.  It was merciful in that it meant I’d have forgotten some of my more shameful behaviour.  It was cheeky in that I remembered things wrongly.  But day to day, it’s bad.  I forget to do things constantly.  I am doing my physiology module right now and struggling quite badly because I find it very hard to remember facts.  I have a long time- hopefully- to learn how to become better at this.  It’s upsetting, though.

People no longer worry about me.  By the same token, they automatically don’t believe me when I say I’m okay.   I lied for such a long time about being okay that even when I’m telling the truth it sounds like a lie.

Every time I visit the GP, I still get treated a little differently because I have MENTAL ILLNESS under my active issues.  The appointment I have with the psychiatrist on the 1st is partly to address this.  I don’t want it there anymore.

Then there’s the one thing I was both afraid of and hoping for.  I’m quite a different person now than I used to be.  The biggest difference is that I am far, far less confident one.

Manic depression, or indeed, whatever it is, took care of my socialising for me.  In high moods, I felt social. I felt confident.  I sought people out and I was talkative, gregarious, flirtatious, amusing, the life and soul of the party.  The inevitable depressive episode rendered me a statue in bed whose phone gathered dust.

Now without the sustained excesses, I don’t know how to socialise.  It makes me anxious, and I’m not sure how to speak to people.  The hypomanic person whose company people enjoyed (and sometimes derided, laughed at and were irritated by) doesn’t make many appearances these days.  I’m not the person who will do every dare.

I’d been kind of hoping I was just a toned down version of my hypomanic self.  Alas, I’m not.  Not without a few night’s of missing sleep and a drink in my hand, anyway.  When I know I HAVE! to do this social thing, I sometimes sneakily induce a tiny bit of hypomania by staying up so that I can cope with it.  Don’t get me wrong- I’m not a dour, quiet person.  I am quite, er, bubbly? in real life.  But I’m still too shy to socialise.

So, I rarely go out and I almost never instigate anything social.  Before I do go out, I have a drink to quell my nerves.  I knew I was a socially nervous and anxious person, but without the high spikes, it’s become way more of an issue.  I do like people- I love people, in fact.  I like being around people, I am fascinated by people, I enjoy company and I’m the kind of person who doesn’t mind talking to the mad one on a bus (when it’s not me being the mad one on a bus).  I find it hard, though, and it means that for someone who enjoys people’s company, I’m rather lonely.

I also find it hard because- and I’m not sure if this is just me or some sort of brain-damaged by a baseball bat and a few thousand years of highs and lows- I do have little tics.  My speech has never quite recovered and I still have the habit of mixing up my words.  This gets worse when I have a little spike, but it’s also there, in general.  I feel quite paranoid about it sometimes.

I forgot that people had seen me act in a certain way, and, even being better these days, there’s no forgetting it.  I can’t rub the memories from their mind.  I can’t from mine, either.  And some of the things I do remember are exquisitely painful, and I am still haunted by guilt and fear.  It doesn’t go away, unfortunately. It diminishes, but doesn’t disappear. It’s always there- as Larkin would call it- a standing chill.

The confidence doesn’t just extend to my rusty social skills.  It’s everything.  I don’t have that total absence of self confidence that I do when I’m depressed, but in general, I don’t feel very confident about anything. I don’t really promote or push myself.  I miss that bravery that I sometimes had.  I have no idea where to get it from naturally.  Any ideas?

AND! there is also the huge, giant fear I will become really unwell again or go mad and ruin my life.  I am surprised at how afraid of it I am.  I worry over opening a fridge in case a spiky sea urchin hurls itself back into my brain.  I am absolutely petrified of getting really ill because I feel like there is everything to lose and the thought of being thrown back into that pit is so scary.

I’m way behind in life and I find that hard to cope with sometimes.  I’m not where most twenty five year olds should be.  Should is a terrible word anyway, but I do sometimes feel flattened by a sense of failure.  The last four years I’ve tried to make productive despite it all, (it, it, it), but they do sometimes feel like a vacuum.  Like I was asleep the whole time and have just woken up, groggy and confused.

I feel quite capable of doing more now (I STILL NEED A JOB AND WORK, THOUGH, HINT HINT IF ANYONE CAN HELP), and that I’ve finally regained control of my life and my mind.  It is no longer that important to me that people know I am manic depressive so that I can explain some of my behaviour, because there’s not much to explain anymore.  I pass for non-mad.  I never thought I’d get to the point where I could just, for the most part, Keep Calm and Carry On. But I didn’t get away scot-free.  This is a strange a land as any I’ve ever been.

13 Responses

  1. Weird I’ve been thinking about this for a while. Especially after I was told that the BPD diagnosis doesn’t fit me anymore – so basically “recovered” And its great to hear a Dr who I trust saying this – but what does it mean? I think things like – will those awful times come back or will they come back but not as intense?
    More things to think about🙂
    x

  2. Hello Seaneen,

    I am afraid you have to take control of the BI-Polar diagnosis , if that is what you have, rather than the illness controlling you.
    Thank you for returning for with your not so secret life of a Manic Depressive and I wish you well in seeking a career.

    Regards David.

  3. i know what you mean – i haven’t had a major episode in a very long time (one relatively minor hypo last year and a few short lived depressive eps) and sometimes i wonder whether i am “still ill” as morrissey would say. then i get over confident because i don’t know how far my being well is because of me and how far is because of meds. there really is only one way to find out and sometime i’d like to because the meds make me feel like shit on toast, but there are certain vague plans i have at the moment which require me to be as stable as i can possibly be and so i think for the moment i’ll just have to assume it’s the meds and keep taking them.

    but this sounds like a positive decision for you – i think the new flat and (relatively) new education options will maybe allow you a nice clean start – i hope it all goes well🙂 x

  4. You are so good at pinpointing the fall-out. You don’t remember as much as you used to…but you do seem to remember what is really important when it comes to describing the ups and downs and side effects of this malady. I recognize everything you describe….the basically happy, bubbly person who now wears the mark of the illness and its scars. The difficulty reading…and how frustrating that is. The gregarious personality that is now shy, bound up with social anxiety… and is lonely.

    Isn’t it true that the initial wild and crazy period is not the balance of life for a bipolar? Isn’t that just the wild introductory period? Aren’t you now talking about what the majority deals with…the daily living…or trying to live…life with its challenges, and a bag of tools that are just not at all perfect?

    Oh if people like you had been broadcasting your thoughts, feelings and experiences 25 years ago, how different it could have been for so many who were hiding in their houses, thinking they were alone in the world.
    Seaneen…I mean Pawneen… 🙂 Thank you. Again. Let’s please keep this going.

  5. Some of you speak of feeling less ill… wondering if it will come back… ? After 20 years of this storm…we live in some amount of quiet most of the time…but there is no ‘letting up’ of the illness. Maybe that will still come?

  6. I can particularly relate to the shyness. I thought I had got over mine, but I have realised that I am now no longer shy around strangers. But with those I know a little bit or like a lot, I am terrified. I never instigate things and, like you, as I result I am lonely. However, I am trying to go with the opposite of what my brain is telling me to do. If I am scared of inviting someone to spend time with me, the aim is to invite them anyway and hope for the best. That’s the plan anyway!

  7. I’ve been reading bits & pieces about recovery lately, mainly over at Rethink. One of the things, fairly major things really, that occurred to me was that recovery is a concept that I’ve never heard talked about either in hospital or at the CMHT. I’ve heard a lot of talk about WRAP and wellness et al online but in practice, recovery as a concept or a state to aim for does not seem to exist at the psychiatrist’s office.

    I like the Clinical Vs Personal definitons of recovery Rethink use. I think I’ve reached a point of Personal Recovery: I am no longer under the CHMT but I do take my Quetiapine reilgiously. I utilise all those annoying lifestyle mgmt changes such as exercise and sleeping and not putting powders up my nose and this is what the annoying bit is, they seem to work ok.

    I prefer misanthropic over shyness but then I wouldn’t say I hated everyone as I like most ppl well enough when I meet them, I just think maybe I don’t like the idea of them.

    Good Luck with everything. Is there no chance of Direct Payments to fund your course?

  8. Being scared of episodes coming back or reoccurring really frightens me as well and that fear can make it hard to move on in life. Sometimes I don’t want to engage in things because I’m scared of a big episode… like school for example. It is really hard to navigate.
    I hope with managing yourself and all the things you’ve learned about yourself any big bad things stay away.

  9. I definitely identify with a lot of this. Recovery is a weird thing and something I have come to terms with and I am not quite sure I understand what it means yet.

    My memory is really frustrating me too. I keep getting lost going to places I’ve been to before. I used to pride myself on the fact I never got lost.

    The worrying about how you come across thing is another thing I struggle with, especially with going back to work. I worry I’ve forgotten the conventions of business conversation.

    It is encouraging how far you have got though and I really admire you for it. I hope things go well and continue to improve.

    xx

  10. I’ve been suffering the loneliness albeit for different reasons. I drink too much but managed to quit entirely for three months over the summer. But the downside was that I had absolutely no desire to see anyone socially at all. I can’t really be bothered to see people unless it’s over a drink.

    Consequently I rather fell off the world as far as friends were concerned in those three months. Fortunately my mates aren’t the sort that will stop responding to me if I go absent for some time. I’m seeing a friend this weekend but that’s partly because I am drinking too much again and am throwing out the sobriety in order to regain the socialising.

    This isn’t an attempt to draw parallels between bipolar and alcoholism. Totally different things. I’m just saying that I can currently relate to the loneliness.

    I wish you well.

  11. If I had to pick a favorite part of this amazing post, it would be “But what the hell does that mean anyway?” In my experience, “recovery” is defined by others measuring how well you fit certain criteria. The same goes for one’s level of “functioning.” I feel your frustration (maybe?) at wondering what the hell that means when it seems like now you have a whole new set of questions and worries. Feeling better IS better, but that doesn’t mean it’s easy.

    Those who have commented before me share this. And, while I’ve hunted around my city and the Internet, for a place to talk about what it’s like to be “less crazy” or what the hell it means to be “crazy, but not seem crazy,” I have had little success.

    We shouldn’t be lonely while trying to be “better.” We should have a place to talk about what life is like when you can enter a room and be the only person there who knows you might be off your rocker. We should be able to define for ourselves what it means to “function.”

    I started this forum last month: definefunctioning.wordpress.com. Getting by matters, not diagnosis.

    I commend you on your honesty with yourself, even when it seems like others might not believe you’re doing fine when you say you are. Good luck,

  12. This post sums up how I feel SO MUCH. Thank you.

  13. Hi,
    I read your blog with interest because a) you are a person who has RECOVERED and b) your struggles with social anxiety.
    I totally relate to you especially about having once been “the life of the party” due to all the amazingly hyper and daring behavior – which is seen as fun – to basically feeling like you need to reinvent yourself to find a fun but well personality inside.
    I am struggling with this also.
    Researching big time how I can be less anxious and have fun at parties and having small talk.

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