A rambling entry for you!
More on the invalidity of psychiatry from the Times.
In the madosphere, I am one of the more pro-psychiatry voices. It leads to an inbox I sometimes can’t bear to check, in which I am assailed from all corners berating me for promoting a myth and for allowing myself to be a psychiatric victim. I am not entirely pro-psychiatry. I don’t, for example, believe in antidepressants as a first line treatment for depression. I don’t believe in forced medication unless someone is a danger to someone else, and I think that everybody has the right to take their own life, and to refuse treatment. I think people should be monitored closely and made aware of their medicated side effects, to be allowed to choose not to take them, and I think therapies should be more widely available. I do think as an industry, psychiatry is deeply flawed, but not as a practice. But in short, I support the idea that mental illness is not just a sociological label for perceived deviancy, and that medication is not just mindless drugging.
On a personal level, I’ve always referred to what I go through as an illness. I call it manic depression rather than the dispassionate bipolar disorder, as manic depression as a term is more expressive than bipolar disorder (often shortened to bipolar, which means approximately nothing). Manic depression succinctly sums it up.
I refer to it as an illness because that’s how I think of it. And in my own experience, it feels like an illness. To me, it feels as physical as a descending flu. Its complete disconnection of my actual life (rarely am I “triggered” and often am I depressed in circumstances that don’t call for it, and vice versa) has meant that I think of myself as someone fighting an outside force. I have been aware- some may say too aware- of the likelihood that I might die doing so, and that I find it terrifying.
Because of this, some people would argue that it is a case of me not taking responsibility for myself. Surely if I think of it as an illness outside myself, then I won’t do all those, “lifestyle changes” and I’ll get into the victim role? Well, all long term illnesses require you to live a certain way. In terms of my illness, I do live in a different way that other people my age. More carefully. And I think if I didn’t think of this as an illness I could fight and treat, I would go mad. This growing, shivering jellyfish of a thing is unbearable in itself, and neatening it helps me. I wasn’t always of this opinion. In the past, I was scornful of the idea that people should take medication. Hence the lateness of me getting treatment.
In terms of my stance and the pro-psychiatry stance, there’s a bit of confirmation bias going on on both sides here. In my experience of anti-psychiatry, many have cleanly ignored all studies that point to the idea that some mental illness may have a basis in biological, claiming bias in the studies due to the Big Pharma and leapt upon anything vaguely critical. Likewise, people like me who believe that some (and I do mean some. I think quite a lot of mental illnesses and disorders are caused by life, such as PTSD) mental illnesses are biological may turn a bit of a blind eye to the psychological studies. In my case, it’s part exhaustion and wariness at feeling constantly as though I have to prove that it’s okay for me to take medication. Because I do have that imaginary “illness”, the fight is personal.
While writing this blog I have had to justify not only my belief that I am “ill” many times but also my very existence as a person on sickness benefits and a person who takes medication. None of you can see me and although I try to describe my day to day, I fail, because I don’t write my day to day when I am feeling less than able to. I only write when I feel up to it, and recently, for example, I haven’t.
As with anything, the more you must assert something, the more you believe it. A small issue becomes a big one. Take, for example, the fact that I grew up in Northern Ireland where I existed in the strange hinterland of having to fight for a national identity. I identified as Irish because I was raised in, well, Ireland, amongst Irish culture, into a Republican family. But Northern Ireland is in Britain, so I am technically British, even though I grew up in a place with bilingual street signs and learning Irish. I have found myself in so many arguments where I have been told over and over again that I have no “right” call myself Irish. And even though I find nationalism deeply repugnant, I protest more, and the more I protest, the more it means to me.
Manic depression also has an undeniable cultural image which puts one on the mindbogglingly strange position of being prejudged for an illness that they have (aside from mental illness, the only thing I can think of that has a similar thing are sexually transmitted diseases, by which I mean being ill and being judged in some way personally or morally for it). But hey, it’s better than having schizophrenia (as some of you do, according to my poll). At least with MY illness I am a creative waify wastrel and not a murderer.
So, with all these factors at play, as well as the fact that it’s engrained in my life and personality because I became ill when I was very young, manic depression is a part of my identity.
Recently I’ve been questioning whether this is good or bad. The crux is that it is unavoidable but I don’t think there is an interesting character trait that can’t be explained away by pathologies. I shy away from describing myself as, “manic depressive” but sometimes- psychiatric diagnosis aside- it really is the most accurate way of describing my personality, which is mercurial in the extreme. I can’t say if I’d be the same if I didn’t have manic depression because I have no “before” photo cowering in the beaming splendor of the after. But I do understand now, finally, after years of agonising, that as a person I am just a bit moody too.
There is also the fact that I have made a tiny name for myself in writing about it. That cements an image of, “Manic depressive writer Seaneen Molloy”. On one hand, I am so proud of this image. I hope the things I say and do help, and it helps me because I feel as though I’m doing something productive with my time off work attempting some sort of recovery, and with the pain of living with it. On the other, I get a bit paralysed these days publicly writing about anything else, because although my main motivation is to express myself, it is also to help, or make people laugh about something that is in some ways taboo.
With mental illness, I think a period of over-identification with it is natural. As much as it irks me (and I’m sorry if any of you are reading this), people writing or saying things like, “Oh my god, what I did was just SO bipolar/borderline etc” is understandable for a little while. After my initial RAGE (and it was rage, boiling, blistering rage) and terror at my diagnosis, I felt an overwhelming relief. So that’s why my behaviour was like that. That’s why I feel this way. Thank god. I thought I was going mad. Okay, so I was, but this madness has a name.
But I think I’m moving after from defining myself by it. I have been, in recent times, forcibly pulling my life back from the role of being mentally ill. It doesn’t mean I’m not mentally ill, I am, but to think of yourself totally in those terms is shooting yourself in the foot. I have been trying to look after myself and attempting, with trouble, to think of my life in the long term (making lists and so on) rather than the short term, because I had pretty much assumed I was going to die anyway. What also helped was that, although it took me ages, I now (sometimes) believe Rob’s constant assertions that I am not a bad person. That I didn’t ask for this. That it isn’t fair but it isn’t my fault, either.
Whereas the illness itself still looms large, I am beginning to think of the treatment in less dramatic terms. So what if I have to take medication and see a CPN? Lots of people do. It’s not that big a deal. I resent it, yes, but I guess everyone does to a point. The unexamined life is not worth living but analysing to the point that I do just keeps me in a stasis.
And I am trying to think in my own rational terms. ”Illness”. There it is. It’s a shame. But there it is.
(This could be by 10 times more articulate but fuck it)
Filed under: Bipolar Disorder



Stumble It!


You make some v salient points (well you always do) but stigma? I won’t say “what stigma” ~ but come on! That has reduced massively over recent years, for “bipolar” especially. Even Stacey on EastEnders seems to have it. In fact it seems to be a v trendy diagnosis nowadays.
You say “except schizophrenia” and there’s a huge paradox. Severe bipolar disorder probably involves more personal suffering than just about any other mental disorder and though schizophrenia’s considered “worse”, I know someone with pretty severe longstanding paranoid schizophrenia (prone to grandiose rather than persecutory delusions) who lives a life of near-bliss compared to the vast majority of the population!! I’ve seen him quite ill, in which case everything’s “sweet as a nut!” but I don’t think I’ve ever EVER seen him miserable… or even stressed-out..!!
The stigma is different to what it is – but you still have the stigma of having a mental illness which most people don’t quite understand.
If you have physical problems they are often brushed away as “being in your head” by many doctors. If you’re justifiably upset by an action/ external stimulous it is always taken that you have/ are overreacting because you’re bipolar. If you have a tumultuous relationship the tumult and the chaos must be all on your side of the partnership[ because you’re bipolar. A lot of presumptions are made about people with mental health problems which really do disadvantage you on a day to day basis.
And whilst there are far worse diagnosis for stigmas that manic deptression (I’m glad that I’m not the only person who far prefers manic depression to bipolar disorder as a name) being a poppy/ glamourous diagnosis (or at least being percieved to be) means many people think it’s made up or you’re trying to be cool and fit in – as if it’s a phase or a fashion that you’ll get over if you only want to enough. I think that’s probably the hardest thing to deal with as far as others perceptions of the illness go.
We share a lot of the same views. I think it’s hard to be either/or with this sort of thing. Like most everything in existence, it has its nuances and shades. I’m largely for, but with the opinion that it must always be voluntary. I’ve been seriously damaged by the system, but my way of “fighting” is to change it or do what I can to change it, even if it’s just changing the perception of what mental illness is and how it should be addressed. It is an illness — not quite the same as body illness, but definitely able to be classed as one. It doesn’t mean we should have to feel either stigma or violent rebellion because we’ve been told we’re ill.
I was once anti-psychiatry until I realize how you sustain what you’re fighting against when your sole goal is to be against it. You verify its power and you waste your own precious energy.
Thanks for posting this.
Another interesting blog
. In the last year or so I’ve really become quite an active ‘blogger’ and met lots of different people from various minority groups and the one thing they have in common is that those in the majority (usually critics) deal in ‘universals’ as my friend calls it, putting all people who share a minority group in one big box.
As a disabled person myself I don’t find that helpful (although people’s clumsy generalisations are mainly amusing to me) and I am interested to know, do you feel that the mental health care system deals in ‘universals’ and do you feel people would be better served if those professionals actually listened more carefully to individuals and treated them by responding to their *personal* experience of their illness rather than just the ‘you have X so we treat this with Y’ attitude?
I also agree with you about our attitudes to facts of our disabilities helping or hindering. For me it’s ‘yeah, that hurts today’ or ‘yes I feel washed-out’ but I’m just going to work around it, no big deal.
I’m not pro-psychiatry to the bitter end, but I’m definitely against the bashing of the entire field of it. I can sort of understand what the Doctor was upset about. I agree that talk therapy does help a great, great deal. But I can also see it can’t be up to the psychiatrist, these days to do the talking. They are over-worked and over-burdened as it is (at least here in Canada). That’s where you, the patient really have to be proactive in trying to make sure you’re appropriately treated. Accept the medication, but bloody well read up on it. Ask questions of others, and of yourself “Is it helping me?” I’m still currently on a trial after my last psychiatrist meeting about if Zyprexa or Lamicatal is the best for me, along with Lamotrigne. She’s given me prescriptions for both and said ‘here you try them out and see what feels best for you for controlling the mania. Believe me, if I could do without them I would. But if I don’t, I get no sleep at all. 3 hrs a night maybe. And a racing mind that hasn’t slept is not good, to underscore the obvious.
If’s funny but the same thought of not defining myself by the introduction of “hi I’m Deb, I’m manic depressive” was in my head just this morning. I am such a more complex person than that. I agree too, bipolar disorder means little to me. I’m manic -depressive, sometimes at the same time. I’m not happy and then bitterly sad – sometimes I’m both, at the same time.
Thanks for the lovely entry. Worth the wait. (((hugs)))
My experience of manic depression is that stigma is alive and well. Admittedly, I do it to myself. I am working hard at believing that I am as good/worthy as everyone else (not defective). Today I know that, but I lived with that kind of low self esteem for years. It took me about a year to ‘get over’ my last hospitalization. I lost alot, mostly my credibility (i will do Anything to avoid ever repeating that experience). I lost an excellent job opportunity that I had worked 6 years in post secondary education to qualify for. AND – I was working for Canadian Mental Health (hahahaha)! I have realized that in order to ever have a chance at being a support person to others (I am a human service worker) I have to distance myself from alot of my social supports. Frankly I don’t feel I can be seen hanging around a drop in center with other persons living with illness. I need to be seen as ’stable’ and ‘responsible’ (basically ‘normal’) – and because of stigma, I can’t do both. I live in a smaller community and it is publicly known that I have manic depression. I’ve also engaged in alot of volunteer work helping others. I study sociology and am sad to say I don’t really expect we’re going to change the world anytime soon.
I’m creating a good life for myself despite stigma and finding a place in the world where I can coexist with it. Oh, i recently quit my department store job (minumum wage factory worker type experience) as I basically had a meltdown due to stress like; the job and being a single mom and having manic depression, etc and am now back on disability, studying again. I’m ok with that today.
xx
I also really am happy to have connected with your blog. It makes me think. My experience with manic depression, admittedly not easy, has also led me to discover my passion.
Isn’t it great to have a good day??
xx
hey Seaneen…I can assure you the attacks made against you have nothing to do with your stance, being that I come from a very different place and I get the same thing FROM ALL SIDES…not anti enough for some, too anti for others…
it’s the nature of what you’re calling the madosphere…or maybe it’s the nature of the internet…
there are a bunch of a@#holes out there and they come in all stripes and have all different opinions…
you and I don’t see eye to eye and yet we get along fine…because we both have a basic respect for each others personal experience and how we choose to interpret them…
that’s all. respect. and people’s right to self-determination.
no one has all the answers and those who think they do do so at their peril…
you and I are opinionated and we allow ourselves to be vulnerable therefore we turn ourselves into targets.
it sucks bad. I know.
peace to you.
You say rambling, I say one of my favorite blog entries yet!
My husband is more on the anti-psychiatry side (which makes it difficult for me), but I also agree that it is the industry that is flawed, not the science. In the article you linked to, they didn’t mention anything about the new developments toward connecting neuroscience with psychiatry and psychology, which has only begun in the last 10 years or so. I have hope that once the research and knowledge of these sciences are integrated, we will have a much more complete picture of the brain and mental illness, and as a result, much better treatment options.
[...] Identity –Seaneen Molloy once again her defends her stance on mental illness, which in the world of madness blogging is considered fairly pro-psychiatry but which I feel is pretty moderate and well-considered. [...]
Fuck me, what a rant!! lol! ..You do know I mean that in a good way, right?! lol!
Hey babes! Guess the way I see it is in a similar way to John McManamy, ..doesn’t really matter what u label it as: Bipolar; Manic Depression; god u may as well call it Fred for all I care! Fred’s been with u a long time n gonna be with you for even longer so may as well be something you like!
..Truth be told, it doesn’t matter what u call it, so long as u find an appropriate, effect and efficient method to manage it that’s suitable for u, that’s all that really matters, n medication, talking it through with yr nursey dude thingy and creativitive expression etc are all part of that.
I take medication, but I’m not a fan from a beliefs/values point of view. ..Defo agree, latest science research, even over the past decade, factually proves neurological factors/genes, environment all interact, (as u well know!), to have an impact so medication is part of the answer, just hate that it robs u of who u are and yr creativity.
Kind of one way I look at it is.. if the majority of people were bipolar and the minority ‘norms’ then bipolar people would effectively be the new normal, so does that mean we then medicate the minority norms??! ..I’m being deliberatly provacative, I love debate, I just hate the fact that behind all this bullshit facade the real issue is how we as a society perceive mental health and the fact that something needs to be corrected. It’s not me, I shouldn’t have to be corrected or fit it; it’s not a ‘one size fits all’ society; ..it’s how society treats me that needs to change. Just in the same way back as recently as the 1950’s being gay was still classed as a mental health condition and now, widely, society is absoultely dandy bout it, n so it should be. We’re like the one area, the last socially unacceptable taboo that is still fucked ova by ignorance. Womans rights, black people, disabled people got it so it’s bout time it’s our turn. I tend not to think of this as an illness coz of these beliefs, but also coz I guess if I did I’m be in that negative vibe of somehow thinking I’m inferior, n I’m not, n I guess the PMA this entails for me personally has been a much better way of acceptance, then you can put it away n not think bout it.
Anyhoo! I do believe in totally exploiting the DDA for employment rights or for getting yr benefits etc. Hey, if we’ve gotta work with this unelected system that we were born into then I’m gonna use it when I have to. Tis a bloody game really.
Oh, n if yr sick of writing yr blog right now coz u don’t feel quite there right now; then don’t! ..Not coz no one doesn’t wanna hear from u babes but coz u don’t need to put some self imposed pressure on u to write, especially when yr goin through the energy drained lows. ..N if they are bothered, fuck em! Doesn’t matter what anyone else thinks, they’re entitled to their opinion, just yr life’s bout yr own choices.
Wow, ..what a rant!! lol! Right back at ya kidda!
Mucho lurve xx
Your thoughts on this illness are always extremely interesting and well considered. In fact, I think you are one of the top writers on manic depressive illness and your insight is invaluable.
Please keep it up Ms. Molloy! You are a great asset.
Pro/anti-psychiatry… so black and white. And I really like that you don’t take such a stance.
You know, in Maths people’s “solutions” sometimes are completely wrong yet they end up with the correct answer. That sums up what I think about the “science” (hey, let’s be honest, a collection of *hypothesis* does *not* equal *theory* i.e. science) of psychiatry. They are clearly groping around in the dark having no clue (check out the literature if you don’t believe). But, somehow have happened on some very effective treatments. The whole thing is rather bitter/sweet.
When it comes to the anti people, they really annoy me as well. I was actually told that since the shrinks back when defined homosexuality as a mental illness back then, then the entire DSM/ICD is clearly fictitious. So, I had an imaginary illness. How asinine is that! My response was asking what is going to be a moral change in the future that is going to make someone becoming so depressed that they go headlong off a balcony ok. “Oh, Jack, that silly guy. This time he …. and finally did himself in. What a character.” I didn’t get a reply to that. Colour me surprised…
At any rate, I’m having a rough go of it lately (I really wish someone would treat me) and just popped in to say the above and thanks for another thoughtful post.
Crispy
I thought this post was very well thought out. You seem to have a strong grasp of who you are now, which it sounds like might not have been the case a couple of years ago.
I hope you can continue writing what pleases you, be that manic depression topic, or life stuff or whatever.
Louise x
So very well put Seaneen . It is alway’s a delight to see your work writings etc. pictures too. I have always wondered if you may have other blogs on other subjects etc ? A daily rant rave or other items of interest ? I have found an enjoyment in reading your work an social events . In my own little world on the blogosphere I have found having many variable rants raves blogging about so many different subjects gives me a focal point away from being all to bipolar an expressing my alternative life of difference beyond bipolar desperations an ravings . In so which I linked my name to my blogger profile which contains a multitude of different blogs for all to see having more than bipolar to write about has given me the opportunity to get away from that stigma an label of bipolar which is all to defining in itself setting us all up for those judgemental bastings of a over done well cooked bird. It seems to me there is so much more to the bipolar individuals that I have read about it would be a great thought to see an read about Seaneen other that the occasional bipolar rant an ravings . Will you enlighten us on other thoughts an possible blogging of the great an powerful Seaneen .
Cheers to you . With all the love an appreciation I can express in words . Well a big hug to ya Seaneen !
Cheers Dirtdog
Opps forgot to activate follow up comments . Always love your writings Seaneen .
I always think of this as “Seaneen’s blog” and maybe it’s the blog of a manic depressive, but it is not a blog about manic depression. There is a person behind it.
Which is what a lot of the anti-psychiatry mob seem to overlook – the individuals who form their herd of drugged up sheep.
I’ve had a few anti-psychiatry comments left on my blog. Not one of them began “Hi la!” In fact, they all looked like C&P jobs, so I marked them as spam. I’m happy to talk to anyone with an anti-psychiatry stance, but I do not want to be talked at. I’m a person, I’m an individual, don’t come at me with an agenda.
You, for example, are not “pro-bipolar.”
And you aren’t bipolar either. You may live with it, but it isn’t you.
So much of our identity is tied into what we do. If you’re surviving on DLA because of an illness then your role in life seems to be as a sick person. But, Seaneen, you wouldn’t be happy selling insurance in a call-centre either.
I hit the jackpot and got two imaginary illnesses, bipolar disorder and PTSD. Woot
I’ve even had the pleasure of teaching a therapist that sometimes it is all in one’s head, as she was taught to believe pretty much everything was, and sometimes it’s all in my body driving my head nuts. Fun to see the lightbulb come on in her head, I must say.
We are who we are, not our illnesses, imaginary or otherwise. The point is being us and having as good a life as we can, I think.
Love your lists
*hugs atcha*
hang on… was that a times journalist or you? the fact that I cannot tell the difference you should take as a huge compliment!!
A really brilliantly articulated comment on the subject (and I’m not just saying that because I aggree with you – honest).
Most of the time, I am trying to prove that I am not ill, that bipolar is a label. I’ve been given this label because I have thoughts, ideas, and feelings that other people don’t understand. These people tend to fear what they do not understand and want to make it go away.
I believe that my brain biology is different than others but not necessarily wrong and until they can tell me exactly what they are fixing and what these chemicals are doing my theories are just as good as theirs.
The so-called mentally ill can’t function in society because we realize that society is made up too. So what if we don’t want to play the stupid games people have made up? We see through them. We see through life itself. We see a different reality and a different truth.
Take care and best wishes.
[...] il corollario e Grande Domanda: ma sono io o è la malattia? Anche se non credo di poter superare questo splendido post di Seaneen Molloy (splendido anche per gli standard di [...]
If I were you I’d throw the bastard drugs in the Thames, on second thoughts if I were you I’d go to parliament and blag your way in saying ‘I’ve been on radio 4 and everything, proper respectable me!” then throw a rubber johnny stuffed full of olanzapine at gorden brown, do that and I’d bloody want to marry you
If you’re enraged about the close-mindedness of times online, just have a look at the things they lump together with the illnesses that ruin our lives:
(End of the same page)
Also in Life & Style
* Frying pan paella
* Male elite cyclists and triathletes at serious risk of fertility problems
I think that says it all about the validity of times online.
“So you’re depressed? Why don’t just fix yourself a delicious pan paella with one of our awesome recipes? Or better yet: get some exercise! How about cycling?”
I totally agree with your view of manic depression and other conditions as illnesses, and with your balanced stance on psychiatry as something that isn’t intrinsically ‘evil’ as a lot of people seem to think.
An emphasis on talking treatments, wellbeing, diet, whatever, can instill deep feelings of guilt and personal responsibility in people for their condition, which can make things a lot worse, only increasing suffering. Of course excercise, diet, therapy can all be helpful, though among my friends, those who care least about their diet seem to be the happiest….
This stigma about medication can lead people in desperation to look for to homeopaths and other snake oil salesmen to ‘heal’ them (I know this from my own experience).
I know that I almost died from my mental illness (bipolar without the highs is as near to a diagnosis as they can manage). I suffered extreme depersonalisation (a constant feeling of ‘unreality’), agitation and a complete sense of hopelessness for a year and a half. It felt like an illness, and to disregard it as such trivialises it.
The only thing that helped me in the end was Lamictal, and I’ve three pretty good years since.
I usually avoid (as much as possible) defining myself by my illness (I hadn’t even heard of that horrid term ’service user’ until recently), but I’ll read your blog from now on – it’s as good, and useful, a personal blog as I’ve read.
And it IS OK to take medicaion.