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Introductions- Revisited

Well, hello there.

Firstly, hello. This is a blog about manic depression. I’m a manic depressive, and I don’t mind. If you’ve found me, you probably already know what Manic Depression is. It’s also known as Bipolar Disorder.

In the wonderful words of the Manic Depressive Fellowship: Bipolar Disorder is a serious mental health problem involving extreme swings of mood (highs and lows). Both men and women of any age from adolescence onwards and from any social or ethnic background can develop Bipolar Disorder.

Aaaand, that’s it, really. It’s a mental illness characterised by extremes of mood. It’s thought to be biological in nature, caused by a mixture of genetics, chemical imbalance and stressful life events. I’ve started this blog to spread a bit of word about Your Average Manic Depressive. We’re not rock stars, or authors, or dashing, plummy comedians. We are people lumbering through our lives, weighed under by medications and never really knowing if we’ll get better or not. If reading this, you recognise anything in yourself that’s a bit worrying, or anything in someone else that’s a bit worrying, get help.

If you want to know it, here’s my story.

My name is Seaneen. I am 4ft 11″ tall with changing hair colour. This is me:

I live in Highbury Park, a nice area in North London.

Durrrrrrrrrr. I spend most of my time writing. When I’m not writing, I like to read and take photographs and kick ass at Mortal Kombat.

I have good friends. I smoke. I buy all my clothes at charity shops. My favourite bands are the Bonzo Dog Doo Dah Band, The Divine Comedy, Manic Street Preachers, PJ Harvey, Kenickie, The Smiths, Pulp, Suede et al. I love comedy, especially Monty Python, A Bit of Fry and Laurie, The Young Ones, Family Guy and Ripping Yarns.

Aaaand I love literature. In my “To read” pile is J.P Donleavy, Flann O’ Brien, Sylvia Plath, Oscar Wilde and Albert Camus.

No, Seaneen is not an English name.

I’m originally from West Belfast in Northern Ireland. It’s a Republican, working class area, staunchly political, poor and always exciting. I lived with my mum, my dad and my four brothers and sisters.  My dad died in 2006 from alcoholic liver failure.

I’ve struggled with the symptoms of manic depression for years.  I’ve had massive episodes of mania followed by long stretches of depression.  It’s messed up a lot in my life; relationships, jobs, the general ability to function.
This is the story of how I came to be diagnosed with manic depression.

Sometime during October 2006, I found myself sitting on a hard plastic chair stationed at the top of a dimly lit corridor in a North London mental hospital. Rob drained a cup of tea that had been made for us by a patient while we waited for the nurse. I fidgeted and stared straight ahead, too afraid to make eye contact with any of these crazy people. I had no idea why I was there and how it had come to this.

A few hours beforehand, I was at home, curled up on the sofa while blood poured from my neck and arms. My fingers were pressed in my ear as I fought the rising tide of garbed voices and fractured thoughts that were ricocheting through my exhausted brain. I could barely sit still. I was agitated and wild, slashing at myself in order to relieve some of the pressure building up inside me. For the past few months, since my father’s untimely death of alcoholism, I had been alternating between starburst euphoria and suffocating despair. I had spent nights talking to hallucinations and every time I left the house, I tried to bring someone back with me. And now, I was a peculiar mix of ferocious energy, joyous ambition and paranoid, dreadful depression. I had lost a lot of weight, stopped sleeping and stopped washing.

I was a smelly, exhausted wreck whose hands would not stop shaking. And I knew, in some way, that the game I had been playing since I was twelve years old was up.

Rob returned from work and decided to take action. We took a lonely, silent taxi journey to the local Emergency Reception Centre for mental health. I had been there a month before. This time was different. I was asked to stay and wait for the psychiatrist and a team of social workers. I agreed and waited outside, jumping from foot to foot, chain smoking and talking constantly, confusedly to Rob.

When I was summoned, it was to a room where I was faced with a stream of gentle questioning.

I answered the shakily. I have just turned twenty one. I started feeling this way when I was twelve. I’d been self-harming since I was thirteen. I’d recently lost my father. I moved to London when I was seventeen. No, it was more of a whim, really. I used to live in West Belfast. Yes, my life there was pretty horrible. I had a job until a few months ago.

And then a series of questions that faintly echoed ones I had been asked many years before.

“Has there ever been a time when you have been more active than usual?”
“Has there ever been a time when you have slept less and found you didn’t really need to sleep?”
“Has there ever been a time when you have felt more creative or productive than usual?”
“Has there ever been a time where you have seen or heard things that weren’t there?”
“Has there ever been a time when you have found that you are talking much more than usual?”

After answering “yes” to every question, I was admitted an as inpatient to the hospital and walked through the moonlight wards to where I would be spending an indefinite amount of time.

And we’re back to waiting for the nurse. It was late, about one a.m and I was afraid. I was taken to a room and given a pale blue patient’s gown to sleep in. The nurse offered me two pills- Haloperidol and Lorazepam, which rushed me into the first sleep I’d had for a long time.

I spent four days in hospital. On the night before my discharge, I had tried to sleep for eighteen hours. A friend had appeared in the wards like a bright sun, bringing flowers. I took them, thanked her and resumed trying to sleep. However, my brain would not stop raising. I was inbued with an unshakable energy that I had to somehow burn off. However, I couldn’t concentrate. Fragments of books and plays spun through my mind. I lay on the bed, speaking aloud to myself, attempting to play number games, word games, anything to coax my thoughts into ceasing their marathon. At about five in the morning, I had shut the bathroom door and was doing star jumps, shouting my own name over and over again. The aptitude for sports that had eluded me in my teenage years had somehow instilled me with an electric shock of physical endurance.

On my final day, the fifth month anniversary of my father’s death, I was introduced to a psychiatrist and two men from the local Crisis Team. There I was very quickly and efficiently diagnosed with Bipolar Disorder I. I knew only one thing about bipolar disorder: it was the clinical name for manic depression. My doctor explained that bipolar disorder 1 was the variant of manic depression that encompassed episodes of mania as well as depression. I had qualified as being manic by experiencing episodes of “psychosis”- the many periods in my life when I was a terrified captor to hallucinations. Suddenly, all the times in my life I had half-recalled telling people that I was famous and touched by God made sense. I had batted them out of my memory, dismissing them, as many others had done, as teenage silliness. A lot of the time, I became depressed and extremely ashamed and guilty of my erratic behaviour. I could hardly bear to think of it- nights scaling a multistory car park and laughing, breaking into someone’s house just to try and sleep and failing, as I usually did.

The episode that had me hospitalised was a “mixed episode”- an episode which encompassed both mania and depression simutaneously. When I left hospital, I was suffering from mania, not for the first time, and not for the last.

I returned home and began the process of accepting and managing my illness. Armed with Lithium, I believed a whole, new and healthy life would be blossoming before me.

I later found out it wasn’t that easy.

Since my diagnosis, other things have been tagged on rather haphazardly: rapid-cycling, meaning there are few gaps between my episodes of mania and depression, problems with panic and a whoel slew of psychiatric medications, to stop me going too low, to stop me going too high, in the quest for that magical equilibrium that the world calls, “Normal”.

I take a crazy cocktail of four medications: Depakote 1000mg, Seroquel 400mg, Paroxetine 20mg and Lithium 1000mg.

I couldn’t have got through the dreadful experience of hospital and the difficult months before and after if not for the love and patience of Rob, my friends and my family.

I had long since held the theory that manic depression was purely an idiosyncracy bestowed upon the middle classes. I never knew that it was a serious mental illness and never thought it would strike down a young girl from a rough council estate in West Belfast. For the past decade, I had been a secret manic depressive. I couldn’t understand why, I was a fairly normal girl. I loved to read, write and was a religious fan of The Bonzo Dog Doo Dah Band. I was obsessed with comedy and could quote Monty Python and Peter Cook in that irritatingly student parrot fashion.

In February 2007, I decided to start an online blog detailing the true day to day life of a manic depressive and the challenges I faced, including getting the help I needed, dealing with medication, coming to terms with my diagnosis and dealing with discrimination.

I owe my life to the kindness and love of Rob Britton and to my family and friends.

So here is my guide to being a Mentally Interesting Girl Navigating the Labyrinth of the NHS Mental Health Services. You’ll laugh, you’ll cry, and probably do both at once if you’re a manic depressive like me.

28 Responses

  1. This reads like the beginning of a really good book. You’ve got talent – keep goin. Plenty famous authors in the history of us BiPolar 1s.

  2. Thanks for the blog and associated material. I hopes it helps you to write it, because it’s powerful as a reader. Like you, I have Bipolar 1 and am an ultra-rapid cycler (yeah, boo hoo). I’m a tad older and lived with the illness undiagnosed for thirty or so years. It was only when I went troppo and spent 14 months locked into deepest darkest depression – a bit beyond Africa – and on an ever increasing dose and severity of anti-D’s that we eventually worked out what it was. Unlike you, I have reacted well to Lithium but not without some unpleasant side-effects (weight gain, shakes and a sex drive with a broken universal). I still cycle, but since Lithium, I have mostly depressive phases (eight last year, one manic). Sorry, little rave there. I really wanted to encourage you and ask you to try and keep battling your demons. Even on those days when you can’t find the strength, try. The world needs peole like us to be alive and speaking out and just being who we can be. As Billy Connolly says, there are too many beige people out there and bugger all of us rainbows! Thanks again for your honesty. BTW, I love your term “Mentally Interesting”! Cheers, Lango.

  3. I’m on Lithium (800mg). It makes my mouth taste like blood and they keep testing my blood but it works. I like your pill box. I had one I liked, but I made the mistake of washing it and the couldn’t dry it propely, hence lots of fluffy useless pills. I now have a pill tower, which is as rediculous as it sounds.

  4. Shawn again here. I am one who’s been of the medicines for years now and have the question of whether or not it helps those who do take it. I am a rpid cycling type one as well, but my stages are mainly manic or mixed. I relate to drawing mustaches at work all day, running around showing others, and then going directly to the bank to spend money for bills. I was fairly young and naive when i was first diagnosed. Should I consider getting back on meds? (My friends already think so…) And, if there is anything, what helps you with your memory. Questions open to anyone, please!

  5. Shawn, you ARE considering getting back on the meds, and if you are asking the question maybe you should – try ‘em at least. And that memory thing is a bugger, isn’t it? Anyone with any helpful hints on that, it would be great.

    Seaneen, I am so DEEPLY impressed with your blog. It is beautiful and I hope it spreads like wildfire amongst all the Mentally Interesting – like some kind of viral I’m mad and I’m proud message to the world.

    Certainly I shall be recommending it asap to my recovering bulimic daughter, age 19, currently living in London (I am in Sydney).

    She will identify bigtime with your story, as daughter of a Mum who developed late-onset Bi-Polar 1 (at age 41) and was spectacularly sectioned (8 police and medics it took to subdue me – can I claim bragging rights for that :-) I was SO HIGH it was AMAZING. Never shown the slightest sign of anything Mentally Interesting prededing this episode, was regarded as eminently sane and sensible – the successful older sister of 6, and CEO of an international publishing company. I will also be recommending it to my niece, age 23, who shares many of your interests, also lives in UK, and whose mother, my sister, was given many labels including bi-polar over 25+ years of mental shenanigans, before finally throwing in the towel and committing suicide in 2003, 5 years after my diagnosis. And you are right, Seannane, losing a sibling is hard.

  6. seaneen – hobbes is gorgeous! he looks like my kitty who my ex-housemates (bastards) nicked along with his brother-kitty. not something i’m happy about. actually i might need to ask you a favour on that score…..

    i have a pill box too but it fell to bits, so i just keep everything in a drawer by my bed (you open it and it looks like i’ve raided the chemists ’cause i never keep the boxes) and the current blister packs in a tin by my bed. do you take the seroquel at short intervals? that’s a hell of a lot of 25mg pills to be taking! i take 250 at night and 100 in the morning – but my Pdoc told me it’s slow working so a morning dose should still be working at, say 4pm. but i find if i get really anxious i start going up and have to take an extra 50 at the time just to take the edge off . i think the Pdoc knows i do this and doesn’t seem to mind too much.

  7. At long last, I’ve found you! I have been looking all over this goddamned internet, trying to find you, girl! And here you are! I have missed you and think of you often. I hope you remember me from Poppy’s board.

    I still care, Seaneen, though it’s been a while. I am sorry you’ve gone through such tough times, but you’re still alive and for that, I am eternally grateful.

    I’d like to reconnect, if you’re willing and able. If not, it’s ok. Gimme a mail sometime, ‘kay?

    Lots of affection. :+)

  8. you are a very good writer, seaneen. i know it is hard, bipolar is very hard. keep up the great work. you have a serious gift; thank you for sharing it with the rest of us, and thank you for speaking out about mental illness. it’s important; we need advocates who can hold their own on the page.

  9. Just got diagnosed with bipolar I myself at the age of 34… had my low times but none serious since I was 24, then bam! Full on “I’m a CIA agent” stuff for a couple of months.

    Thanks so much for being here and and helping demystify this thing…. you’re much more eloquent than I’m capable of being about this just yet…

  10. Hi! I’m impressed with the speed you went from ‘boohoo. why me?’, to accept then embrace bipolar… maybe rapid cycling does have it’s uses =P.
    You writing is both interesting and informative. I’m always curious as to how others deal with bipolar, so thanks for your insight.

  11. Hi Seaneen,
    Beautiful Irish name by the way. I just wanted to tell you about my 17 yr old daughter. She was dx about 2 years ago. She has had 3 dx so far. I think were sticking now with BPD. I have read countless things on mental illness, I am happy I found your blog(my computor illiterate self) You have helped me understand my daughters behavior better. I only got through March, I am going to read allittle every night.
    Hang in there, and THANK YOU
    Maureen

  12. Seaneen,
    I’ve been looking for a good bipolar blogger for quite awhile now, to read, and get more informed on the illness. I love your blog, its so great! I was diagnosed with bipolar 1, in Jan. of 2006. I’m not on any meds right now, I’m having to switch around insurance regions and I ran out of meds. I just moved from Alabama to Virginia and I’m pretty stable without meds for now. I should get back on meds soon though. I requested you to my friends list on MySpace earlier tonight. You’ve inspired me to write more about whats going on in my life, and I will in my blog on MySpace. Thanks so much for posting your blog!

  13. Just found your blog yesterday – it’s fantastic and I think you write really eloquently. Thanks especially for being so honest about everything. I started blogging a few months back but I don’t really seem to have the hang of it; I still feel kinda shy about being truthful about myself, even in blogland. So I hope you keep writing and maybe stop by sometime and say hello on my lowly blog :) . Incidentally do you think you showed symptoms as a kid too or only from your teens? I ask because I have officially had bp1 for six years now (since I was 18) but I’ve been pretty strange mood-wise my whole life… and I was wondering if this is common. Take care, and good luck! x

  14. Seaneen have hope…
    Read Human Givens by Joe Griffen and Ivan Tyrrell – they have new ‘let’s not reinforce your memories of bad stuff by reliving the past’ ideas which may help break the cycles of depression and further enhance better recovery. They do not dismiss the validity of medication but do suggest that certain psychothera-methods can do more harm than good to the mind. Best of luck with your life. Take care of yourself, it’s a precious time with more sunrises than rainy days around each dawn. http://www.humangivens.com

  15. I am so inspired by your writings. My daughter was diagnosed when she was in 5th grade, and I see so much of her in you. Sheis now 15 and wonderfully quirky and kind. She struggles though and I will introduce her to this blog. I’m sure she will find a comraderie that she has not been able to find in her circle of “friends”. Thank you so much for being so honest and downright funny. Bless you.

  16. Hi. I’m Mentally Interesting as well. BP I. My parents knew that something was ‘off’ about from the time I was a toddler. I was diagnosed an early age luckily and now I’m sort of okay.

  17. *off about me. Sorry, I suck at typing.

  18. Me too. I think I’m on the way down right at the moment. Yesterday: OK, not great. Today: not great at all.

  19. Hi Seaneen, I have been diagnosed with BPD, but bipolar runs in my family and it’s possible that I may have some form of it too (don’t have aggressive violent rages that’s classic with BPD, only get irritable and shout and swear sometimes when in a generalised up, energised mood, have severe depressions, and brief periods of probable hypomania. Also have had psychotic episodes when depressed). I’m 27 and have a 3 year old son and have been hospitalised twice since he was born, however he is a lovely, happy, intelligent little boy and seems to be thriving. I wanted to let you know that it is possible to bring up children when you have mental health problems. Ofcourse sometimes when I’m extremely depressed / psychotic / suicidal I need extra support but I’m lucky to have a mum and partner that are supportive and my son goes to nursery 3 times a week so I can go to support groups etc. and have a break. I do worry about the future for him, how my illness will effect him, whether he will develop some form of craziness, but we are all people and everyone has issues, hurdles to get over and I think as long as I love him, support him, give him plenty of my time and help him have confidence in himself, that will give him the best hope of being the best he can be. It’s not easy but thankfully I have times when I’m ok (ish). Your blog is great and your writing is too. I wish you all the best and hope you can find some kind of peace in the instability. I take omega 3 and 6 (in a cod liver oil capsule), the ones I have at the moment have added vitamins and evening primrose oil. It helps memory and concentration and also depression or so trials indicate. I think it helps so maybe you or anyone else reading this with similar problems could try them. Hope you keep writing this blog and good luck with your aspirations!

  20. Thank you for this blog. I, too, have bipolar. Spreading the word about it helps educate people who misunderstand mental illnesses and chips away at the stigma. I’m from the USA and live in NYC now, but I was in London a couple years ago for an exchange program at the London School of Economics. That’s when I had my first experience with suicidal depression. I heard mental illness is a big problem in London due to the weather. Anyways, keep this journal up and stay safe. You are beautiful, by the way.

    Dave

  21. I’ve been diagnosed five days ago, more or less one year after moving to London. (Could it be that the big, diverse city helps you accepting that – well, you’re not “just a bit strange”? Or there’s just the lucky chance that a counselor at the London School of Economics – now the coincidence is with Dave – recognized the symptoms?) Yesterday I took my first dose of lithium. I am trying to accept it. Your blog is helping in an amazing way – I leave this comment here at the beginning, but I think of the blog as a whole…

    (And Hobbes is really, really nice! I expect him to look a bit older now, but still cute.)

  22. hey seaneen,
    I was diagnosed with bipolar disorder after i had my baby at age 18. Like you, I was relieved at least the pain had a name. I’m also a writer from london because when i feel manic, i write when i feel low, i write. its the only constant in my life. its was good to know by reading your blogs, that i’m not alone.
    angela 19, london

  23. Thank you………as an author you created a space in which I was able to think about the highs and lows of you.as the writer you are able to reflect on yourself…see yourself…..the whole of you….much more to you…..

  24. my father commited suicide after years of being an alcoholic.Depression runs in his family and i suffer from depression too.Its a hard tough life and people dont get you!i get tired sometimes.i have attempted suicide thrice but i cant do it again, now i just try to live best i can

  25. seaneen, this, i do believe is the only blog that has held my interest. for that i commend you. i’ll make this short cuz that’s where my attention threshold is at… there is a product out ‘empowerplus’ from ‘truehope.com’ that is slowly doing something for me that i thought would be lost. it’s giving me my head back. happy new year and keep on being.

  26. Just wanted to say:

    1) It’s good to read this stuff, I’m going to a shrink in a few weeks to get diagnosed either way after four years. I’ve just gone on meds and trying to work out whether it’s regular mood swings or “rapid-cycling” (I’m swapping from depressed to hyper at least 4/5times a day)… I’ve saved the page so I can come back and look at the links etc if it does turn out to be bipolar

    2) Your very pretty ^^

    Emeth xxx

  27. “You’ll laugh, you’ll cry, and probably do both at once if you’re a manic depressive like me.”

    Heh. I love that line. :D

  28. [...] This was my first post, but it had been edited long after the 10th of February 2007.  So really, this was my first (public) post. [...]

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